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denver88's Recent CancerCompass Activity

  • denver88 has replied to a post on the message board

    I can't offer much as my Whipple went well.  If the vomitting is from nausea he might try Phenegran or Zofran, used for chemo nausea and works for most.  Is he on enzyme tablets that most take after the Whipple?  I'm 2 years out from the Whipple and still get ocassional diarrhea but mostly caused by my diet when I eat cheese and dairy product (excluding yogurt), i eat a lot of peanut butter and plain w...

    May 02 at 3:07 PM view post
    • denver88 has replied to a post on the message board

      Why are you pursuing nanoknife,n surgery, etc vs something like lanreotide at this point, has the cancer in liver spread or can't be contained with injections like lanreotide????   

      April 16 at 10:53 PM view post
      • denver88 has replied to a post on the message board

        after my whipple i was on Pertzye enzymes, worked fine, ended most cramping and excessive gas, then insurance stopped covering this enzyme and i went on Creon enzymes, gas returned and other minor digestive problems, you might try Pertzye (speilling might be wrong) but it is very expensive when insurance doesn't pay for most of it

        March 15 at 10:24 PM view post
        • denver88 has replied to a post on the message board

          The answer to your question as to whether your pain is cancer related can't be answered on this message board.  You need to get a CT or MRI scan, science is the way forward and the sooner you attend to this the better, no excuses to delay, find out what it is, demand a scan, and get a plan to address the findings.  

          March 15 at 10:19 PM view post
          • denver88 has replied to a post on the message board

            I was diagnosed with Stage 4 neuroendocrine cancer, had a Whipple operation and then they found it spred to liver, all caught very early.  As you know neuroendcrine tumors mostly grow very very slow. The tumors on pancreas were removed (Feb 2017 during Whipple), since then I have been on Lanreotide receiving injections monthly and the liver tumors have stablized and some of the approximately 10 shrank.  Why...

            March 06 at 2:40 AM view post
            • denver88 has replied to a post on the message board

              I've got neuroendocrine cancer and due to my energetic and demanding pursuit of answers to my feeling unusually ill with stomach problems they caught the NET early.  I had a Whipple in 2017, no sign of PC in pancreas (they removed part of it), it had spread to the liver and is still there, they also removed gall bladder and part of intestine and ducts.  I have been receiving monthly lanreotide injections si...

              March 01 at 3:03 AM view post
              • denver88 has replied to a post on the message board

                If you don't trust or feel comfortable with the doctors/radiologist findings get a second opinion.  An MRI may be more specific than a CT.  One thing is for sure you need an evaluation that you trust.

                February 28 at 5:33 PM view post
                • denver88 has replied to a post on the message board

                  CT scans are one of several tools for diagnosis and are helpful.  My first scan, CT, did not identify my pc tumors, i pushed for an MRI and that identified the tumors.  Your symptoms could be related to many issues but I refused all the knee jerk conclusions such as problems with gerd and pushed for the MRI that may have saved a further worse situation or my life expectancy as it was caught very early, surg...

                  February 21 at 10:49 PM view post
                  • denver88 has replied to a post on the message board

                    If you are referring to neuroendocrine tumors that was and still is my situation.  You know the basics that these are very slow growing and difficult to identify until well along but can be detected with CT and MRI's in their infancy.  Depending on the progress, and mine was in the pancreas and liver, they are very treatable.  My post Whipple surgical operation from two years past was successful, part ...

                    February 21 at 10:38 PM view post
                    • denver88 has replied to a post on the message board

                      In brief, i had a whipple two years ago, my cancer had spread to my liver, that was two years ago.  i had no post surgery chemo, my type of cancer was neuroendocrine as opposed to the more serious adenocarcinoma.  My gall bladder was removed, the head of the pancreas removed, section of the intestine also removed.  That was two years ago.  First as for pain, I was lucky, had very, very little but ...

                      February 21 at 10:29 PM view post
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                      About denver88

                      Pancreatic Cancer

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