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denver88's Recent CancerCompass Activity

  • denver88 has replied to a post on the message board

    after my whipple i was on Pertzye enzymes, worked fine, ended most cramping and excessive gas, then insurance stopped covering this enzyme and i went on Creon enzymes, gas returned and other minor digestive problems, you might try Pertzye (speilling might be wrong) but it is very expensive when insurance doesn't pay for most of it

    March 15 at 10:24 PM view post
    • denver88 has replied to a post on the message board

      The answer to your question as to whether your pain is cancer related can't be answered on this message board.  You need to get a CT or MRI scan, science is the way forward and the sooner you attend to this the better, no excuses to delay, find out what it is, demand a scan, and get a plan to address the findings.  

      March 15 at 10:19 PM view post
      • denver88 has replied to a post on the message board

        I was diagnosed with Stage 4 neuroendocrine cancer, had a Whipple operation and then they found it spred to liver, all caught very early.  As you know neuroendcrine tumors mostly grow very very slow. The tumors on pancreas were removed (Feb 2017 during Whipple), since then I have been on Lanreotide receiving injections monthly and the liver tumors have stablized and some of the approximately 10 shrank.  Why...

        March 06 at 2:40 AM view post
        • denver88 has replied to a post on the message board

          I've got neuroendocrine cancer and due to my energetic and demanding pursuit of answers to my feeling unusually ill with stomach problems they caught the NET early.  I had a Whipple in 2017, no sign of PC in pancreas (they removed part of it), it had spread to the liver and is still there, they also removed gall bladder and part of intestine and ducts.  I have been receiving monthly lanreotide injections si...

          March 01 at 3:03 AM view post
          • denver88 has replied to a post on the message board

            If you don't trust or feel comfortable with the doctors/radiologist findings get a second opinion.  An MRI may be more specific than a CT.  One thing is for sure you need an evaluation that you trust.

            February 28 at 5:33 PM view post
            • denver88 has replied to a post on the message board

              CT scans are one of several tools for diagnosis and are helpful.  My first scan, CT, did not identify my pc tumors, i pushed for an MRI and that identified the tumors.  Your symptoms could be related to many issues but I refused all the knee jerk conclusions such as problems with gerd and pushed for the MRI that may have saved a further worse situation or my life expectancy as it was caught very early, surg...

              February 21 at 10:49 PM view post
              • denver88 has replied to a post on the message board

                If you are referring to neuroendocrine tumors that was and still is my situation.  You know the basics that these are very slow growing and difficult to identify until well along but can be detected with CT and MRI's in their infancy.  Depending on the progress, and mine was in the pancreas and liver, they are very treatable.  My post Whipple surgical operation from two years past was successful, part ...

                February 21 at 10:38 PM view post
                • denver88 has replied to a post on the message board

                  In brief, i had a whipple two years ago, my cancer had spread to my liver, that was two years ago.  i had no post surgery chemo, my type of cancer was neuroendocrine as opposed to the more serious adenocarcinoma.  My gall bladder was removed, the head of the pancreas removed, section of the intestine also removed.  That was two years ago.  First as for pain, I was lucky, had very, very little but ...

                  February 21 at 10:29 PM view post
                  • denver88 has replied to a post on the message board

                    I went through the same frustration with doctors, all seem to only want to treat simple things, cold, and flu.  I pushed for CT and MRI scans when I thought something was wrong with me beyond heart burn.  I wanted to know and be tested for gall bladder problems, liver, kidney and pancreas.  I pushed and wouldn't accept no for an answer and thankfull i had good health insurance.  You are in a pancr...

                    February 21 at 10:18 PM view post
                    • denver88 has created a new message board discussion

                      A recent comment on cyberknife caught my eye and I think it deserves comments from our members.  i have read many good results with this process from patients and medical journals.  the statement about "lasting results"  implied the cancer is initially killed off but due to weaknesses/flaws in the procedure it comes back?  please offer your experience and if you find this claim has substance. ...

                      February 07 at 4:05 PM view discussion
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                      About denver88

                      Pancreatic Cancer

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