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dodgerblue's Recent CancerCompass Activity

  • Dodgerblue has replied to a post on the message board

    I was very fortunate as my tumor was on the outside of my right parital lobe, so the neurosurgeon was able to just scoop it out without having to navigate through any healthy brain tissue. He removed all visible tumor, so 99. something %. There are always remaining cancer cells so hopefully radiation and chemo killed or put those in a comatose state. Dodger

    January 05 at 7:59 PM view post
    • Dodgerblue has replied to a post on the message board

      Mine were every three months, but I’ve managed to get them out to 4 months at this point Dodger

      January 03 at 9:46 PM view post
      • Dodgerblue has replied to a post on the message board

        I’m good Shell! Hitting 5 year mark was exciting because by the numbers my prognosis was 3-5 years, scary in a way because I may need to figure out to do with the rest of my life. I think there is good chance I may never have a recurrence, which is great, but I’ve kinda prepared myself that I would have one, so... empty nester in another year, so guess I must plan another grand adventure. Dodger

        January 03 at 9:44 PM view post
        • Dodgerblue has replied to a post on the message board

          Hi all! I’m alive and well! Just haven’t been on site as much as in the past. This site was an incredible resource for me years back in terms of answering treatment questions, side effect questions, finding long term survivors, and unfortunately meeting many whose loved ones lost their battles. Everything I read served me in some way, and I’m very happy to know that I could pass some of that along. I’ll try to...

          January 03 at 9:37 PM view post
          • Dodgerblue has replied to a post on the message board

            Anxiety is very common when first dealing with this dx, although u haven’t even gotten your exact DX. Seeing a therapist, getting a anti anxiety med, exploring if there are any brain tumor support groups in your area could all be helpful. Dodger

            November 06 at 2:32 PM view post
            • Dodgerblue has replied to a post on the message board

              Hi Shell, I understand your apprehension about radiation treatment and if your daughters tumor was strictly grade 2, forgoing radiation would be a viable option in my opinion. However, given the fact that it wasn’t a 99 percent resection(all visible tumor) and there was a grade 3 component to her tumor, I would definitely recommend radiation treatment. As my surgeon told me,”a grade 3 can act like a grade 2 or...

              November 06 at 2:45 AM view post
              • Dodgerblue has replied to a post on the message board

                I was diagnosed at 38, tumor was 5x6 cm in RT. parietal lobe.  Got to retire after diagnosis, just enjoying life now. Dodger

                January 13, 2018 view post
                • Dodgerblue has replied to a post on the message board

                  Welcome,   It sounds like your case was similiar to mine.  I'm assuming your going to undergo radiation and 6-12 month of Chemotherapy?  That is standard treatment anyway.  Your prognosis should be quite good, despite whatever statisitics you may come across.  I'm 4 years out since DX and have been recurrence free thus far.  Not sure why your contrast in MRI didn't light up...  As ...

                  January 11, 2018 view post
                  • Dodgerblue has replied to a post on the message board

                    Long term survivorship statistics don't exist for brain cancer, never seen anything over 5 years, but these cases do exist.  I agree, statistics are basically useless as every case is different and no two people will have the same journey.  Best of luck, Dodger

                    January 10, 2018 view post
                    • Dodgerblue has replied to a post on the message board

                      Your parents were married for 50 years, while you may still be dealing with their separation and circumstances surrounding it, I think they should be allowed to come and say goodbye. Dodger

                      January 10, 2018 view post
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                      About dodgerblue

                      Patient, Survivor
                      Brain Cancer
                      Clinical Trials and Research, Acupuncture, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Diet, Massage Therapy, Naturopathic Medicine, Recipes, Supplements

                      I'm a 43 year old man, married, 3 sons, 21,16,15.
                      12/8/13- dx with brain tumor thought to be Grade 2 Astrocytoma.

                      1/8/14-Full resection of small chicken egg sized tumor from right parietal lobe @ John's Hopkins

                      1/23/14-Pathology results indicate Grade 3 astrocytoma. I'm negative for IDH1 protein, MGMT Unmethylated, and I do not have the 1p19p codeletion.

                      2/13/14-Imrt 5 field radiation 5 day/week and daily temador begin.

                      4/1/14-6 weeks of radiation and Temador finish.

                      4/24/14-first MRI in 105 days...ALL CLEAR!

                      4/28/14- first monthly cycle of Temador @ 320mg

                      6/1/14- half marathon 1:55:30

                      6/2/14- second monthly cycle of Temador @410 mg, which sucked!

                      6/24/14- Another clean MRI!

                      7/4/14- third monthly cycle of temador @400 mg, managed better this month than last.

                      8/2,3- PMC weekend! Rode hard for 145 miles before a violent tire blowout and crash, but no serious injuries to report. Raised over 7800$ for adult brain tumor research :)

                      8/8/14- finished 4th monthly cycle of Temador.

                      10/11/14-Hartford half marathon run in 1:50:37

                      10/12/14 - starting 6th and final cycle of Temador.

                      10/30/14 - another clear MRI, informed my original pathlogy report had false negative test for IDH1 muatation. I do have the mutation, which is a good thing.

                      11/5/15 - Another clear MRI, coming up on 2 years of survivorship!

                      3/16 MRI's continue to look good.

                      4/7/16 Start thru hike of appalachian trail!

                      7/12 After 1498 miles hiked, I've gotten what I needed from this adventure. I'm going home to heal up the body.

                      7/28/16-Clear MRI :)

                      11/8/16-Clear MRI

                      12/8/18- 5 years of survivorship!

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