Loading...

dorne's Recent CancerCompass Activity

  • dorne has created a new message board discussion

     I am now in my secound bout with this disease. Have just finished 8 rounds of chemo described to me as only being pallative care. Dr.s at Mayo Clinic Rochester Mn. said surgery was not an option as as it has metastisized and is in my bones, majorly in my spine. Radiation is out of the question because of the damage done to my lungs trying to get rid of it the first time. I now have only 15%-20% use of my lungs ...

    November 08, 2015 view discussion
    • dorne has replied to a post on the message board

      thanks Punky for your kind words and you should never put "only" in front of caregiver.   I am trying and you are right I should be allowed to feel "out loud" not hidden in my room away from people. At least one  woman said something new this past weekend.Most people say I am coping well and how good it is I am getting back to"normal". But she spoke the truth she gave me a heartfelt hug and said" You poor ...

      view post
      • dorne has replied to a post on the message board

        this isn't a reply as much as a new post but I didn't know how to do that. I started reading at the beginning, the ppost venting about how angry they were and why no one wants to talk about that. I have been so angry I have wanted to just scream and never stop. Amazingly I never went thru the "why me" phase because I would never wish this on someone else instead of me.  won't bore everyone with the minutia of my...

        view post
        • dorne has replied to a post on the message board

          The Thymus gland is important when youger as it gives anti-bodies to the blood (very simple explanation) To my knowledge there are two main cancer of the Thymus, Thymoma- this cancer seems to present it self as a cancer with mulitple tumors over a longer period of time. The tummors are slow growing and often Dr.s just watch them and do not remove until necasssary.    Thymic Carcinoma- this cancer is muc...

          view post
          • dorne has replied to a post on the message board

            it can take awhile to qualify for disability. I was lucky .I have total disabilty so can not work at all and I do miss it. work is a reminder that you are NOT your cancer. Also do you depend on work for insurance? Having private insurance or medicare/medicaid can make a difference in where you get treated. More and more specialists are decling new patients because of the re-imbursment and the red tape you shou...

            view post
            • dorne has replied to a post on the message board

              well it seems as though Cancer Compass is no tthe place to be if you have Thymic as I have not had anyone respond. I wish everyone the best but will continue to search

              view post
              • dorne has created a new message board discussion

                trying all discussion areas as there is not one even close for Thymic Carcinoma  teh "eveil twin" of Thymoma

                view discussion
                • dorne has created a new message board discussion

                  I have passed the average tme when recurrence uasually occurs and I am still healthy, well not healthy but alive lol. but I do spend more time wondering what it is going to be like when it comes back? Some have said it is even more aggressive. is that even possible? Will I have time to finish things I need to do? Is it very painful? what can I do to make it easier for my caregivers and teh end? Everyone thinks it ...

                  view discussion
                    • dorne has commented on a news story

                      I guess I am weak. I do take medications for pain control. My prognosis is not even a question and I have already surpassed my Dr.s (ex Dr.s) expectations. Just as many of the others that commented on this some days are worse than others so how much I rely on my Rxs varies.My primary care physician is actually suprised that I am still hanging in on such low doses! For me I want to be able to enjoy my grandsons, my g...

                      view news story
                      Loading...
                      Load more activity
                      Loading more activity

                      About dorne

                      Patient
                      Lung Cancer, Other Cancer
                      After Treatment, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Emotional Support, Insurance, Radiation, Side Effects, Surgery

                      I have Thymic Carcinoma I am 52 and have three grandsons that I live for!! can't imagine not being around to see them grow.I joined this site out of a frustration of the lack of information and what there is or what each Dr says just contradicts what I was already told.Does anyone here use the Mayo Clinic? I am hoping to ask some questions about others treatment and side effects I am spending way to much time worrying about the when and where of the recurrence but with THYMIC CARCINOMA that is not an easy search. but when we find each other it is love and support and compare and learn and eventually tears

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.