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dstef69's Recent CancerCompass Activity

  • dstef69 has replied to a post on the message board

    Hi Michael, thank you for the reply. I'm glad that you're doing well! I'll be in Houston on the 29th for blod collection (8.00am), hearing test (9:00am) and follow up with Lidia (11:00am). After that hopefully I will be admitted in the hospital for the 5th chemo so please stop by if you have some time. I'll try to post my room#, or you can ask the admission to find out. The tinnitus doesn't bother me that much, but ...

    May 19 at 3:41 PM view post
    • dstef69 has replied to a post on the message board

      Hi Michael,I did reply to your message before but I dont know what hapened,maybe the message didn't go through(I did reply in private,maybe thats why) Anyway,Im in the hospital for the 4th chemo sesion,and everything it's ok(a litlle nausea on the last 2 days of the cycle but they give me meds for that).The cisplatin is a litlle hard on my ears,couple days ago I had a hearing test and seems like i have tinnitus and a...

      May 10 at 5:30 PM view post
      • dstef69 has replied to a post on the message board

        Hi Christina,yes, I’m in US, I live in Georgia but I’m doing the chemo treatments in Houston at MD Anderson, I finished two treatments and I’m getting ready to go back there on April 14 for the third treatment.My doctor is Arlene Radtke Siefker, she is one of the best in this rare cancer so don’t hesitate to call her and ask her anything you wanna know. Her phone number is 713-745-7575. Let me know if you have an...

        April 05 at 6:24 PM view post
        • dstef69 has replied to a post on the message board

          Hi Michael I hope you’re doing well,sorry for the delay I was busy with my work and I didn’t check the blog in a while. I started the chemo regimen G-flip four weeks ago and I’m getting ready to start the second treatment. I’m flying in Monday morning and hopefully I can start sometime Monday night or Tuesday morning depending on the hospital bed’s availability. The first treatment went well I did feel a little ...

          March 23 at 2:08 PM view post
          • dstef69 has replied to a post on the message board

            Thank you very much for the info,I really appreciate it! The insurance is still reviewing my case,hopefully I’ll have a answer tomorrow before the appointment with Dr.Siefker. I’m focused on my treatment right now but I want to get it done and get back to my life. I’ll take your advice and make sure that I will do everything what Dr Siefker says!Like you mentioned traveling might be a problem but I’ll figure it out!...

            February 27 at 4:38 PM view post
            • dstef69 has replied to a post on the message board

              Hi Michael,Lidia and Dr.Siefker said hi! What a wonderful team!They are the best in the businnes!I'm in Houston waiting for the insurance aproval to start chemo,similar treatment like yours,G-Flip,5 to 6 times.I'll do what you did (5 days here and 16 days home) but I'm little worried about the flight.BTW how did you manage it?It was hard?If you have any suggestions,tips or advice please let me know. Thank You!

              February 27 at 1:49 AM view post
              • dstef69 has replied to a post on the message board

                Michael,this is Daniel again, I joust find your old posts about the chemo so don't worry about replying,Thanks.

                February 23 at 2:25 AM view post
                • dstef69 has replied to a post on the message board

                  Michael,this is great news! I'm so glad that you are ok.Did you do any PET scans at MD Anderson? My oncologist requested one for me here  but the insurance(Aetna) denied,we did an apeal but I'm afraid the insurance is not going to aprove it.How many rounds of chemo did you take?Did you feel sick after? Do you follow any diet? Sorry but I have so many questions,there are so many things that I want to know,maybe o...

                  February 23 at 2:11 AM view post
                  • dstef69 has replied to a post on the message board

                    Thank you Vivian,I'll send her your  regards monday,I hope your husband is doing fine! Daniel

                    February 22 at 7:06 PM view post
                    • dstef69 has replied to a post on the message board

                      Hi Michael,my name is Daniel and I'm from Buford GA.I read your storry and I want to know how are you felling and also I want to tell you my storry.The whole thing started in Dec 2018 when I was diagnosted with gross hematuria.My family Dr referred me to Dr Scott Miller(great urolog)who ordered a ct scan.They found a complex mass 4x4x6 cm along the course of urachal tract contacting the top of the bladder.After a cys...

                      February 22 at 6:24 PM view post
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                      About dstef69

                      Patient
                      Bladder Cancer
                      Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet

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