NOTICE: As of June 15, this community will have a new web address: compass.cancerfighter.com. You will no longer be able to access the site at CancerCompass.com For more information, please read the full blog post.

 
Loading...

dstef69's Recent CancerCompass Activity

  • dstef69 has replied to a post on the message board

    Actually here in Atlanta my oncologist prescribed FOLFOX but dr.Siefker said that G-FLP was/is a better treatment.As we speak foundation one is doing the genomic test and if the results are good I’ll start immunotherapy.Otherwise I guess I’ll start another chemo treatment at MD Anderson.My next appointment is January 24 but if the test results are done I’ll fly to MDAderson next week.If You want you can text me your...

    January 07 at 8:19 PM view post
    • dstef69 has replied to a post on the message board

      Same here IIIB Histologic Grade: G2: Moderately-differentiated Primary Tumor: pT3b Regional Lymph Nodes: pNX

      January 04 at 6:24 PM view post
      • dstef69 has replied to a post on the message board

        HI Fiona, I’m Daniel, I was diagnosed with urachal cancer Dec 2018. Jan 13 ’19 I had laparoscopic surgery in Atlanta (7x6x5.5cm tumor,partial bladder, urachus and umbilicus removed, no lymph nodes found). 6 weeks after the surgery I started kemo,6 cycles of GEM FLP(dexamethasone,leucovorin,5FU,cisplatin and Gemstar/gembcitabine)at MD Anderson which I finished middle of June ‘19 . Same li...

        January 02 at 5:22 PM view post
        • dstef69 has replied to a post on the message board

          Hi Michael, thank you for the reply. I'm glad that you're doing well! I'll be in Houston on the 29th for blod collection (8.00am), hearing test (9:00am) and follow up with Lidia (11:00am). After that hopefully I will be admitted in the hospital for the 5th chemo so please stop by if you have some time. I'll try to post my room#, or you can ask the admission to find out. The tinnitus doesn't bother me that much, but ...

          May 19, 2019 view post
          • dstef69 has replied to a post on the message board

            Hi Michael,I did reply to your message before but I dont know what hapened,maybe the message didn't go through(I did reply in private,maybe thats why) Anyway,Im in the hospital for the 4th chemo sesion,and everything it's ok(a litlle nausea on the last 2 days of the cycle but they give me meds for that).The cisplatin is a litlle hard on my ears,couple days ago I had a hearing test and seems like i have tinnitus and a...

            May 10, 2019 view post
            • dstef69 has replied to a post on the message board

              Hi Christina,yes, I’m in US, I live in Georgia but I’m doing the chemo treatments in Houston at MD Anderson, I finished two treatments and I’m getting ready to go back there on April 14 for the third treatment.My doctor is Arlene Radtke Siefker, she is one of the best in this rare cancer so don’t hesitate to call her and ask her anything you wanna know. Her phone number is 713-745-7575. Let me know if you have an...

              April 05, 2019 view post
              • dstef69 has replied to a post on the message board

                Hi Michael I hope you’re doing well,sorry for the delay I was busy with my work and I didn’t check the blog in a while. I started the chemo regimen G-flip four weeks ago and I’m getting ready to start the second treatment. I’m flying in Monday morning and hopefully I can start sometime Monday night or Tuesday morning depending on the hospital bed’s availability. The first treatment went well I did feel a little ...

                March 23, 2019 view post
                • dstef69 has replied to a post on the message board

                  Thank you very much for the info,I really appreciate it! The insurance is still reviewing my case,hopefully I’ll have a answer tomorrow before the appointment with Dr.Siefker. I’m focused on my treatment right now but I want to get it done and get back to my life. I’ll take your advice and make sure that I will do everything what Dr Siefker says!Like you mentioned traveling might be a problem but I’ll figure it out!...

                  February 27, 2019 view post
                  • dstef69 has replied to a post on the message board

                    Hi Michael,Lidia and Dr.Siefker said hi! What a wonderful team!They are the best in the businnes!I'm in Houston waiting for the insurance aproval to start chemo,similar treatment like yours,G-Flip,5 to 6 times.I'll do what you did (5 days here and 16 days home) but I'm little worried about the flight.BTW how did you manage it?It was hard?If you have any suggestions,tips or advice please let me know. Thank You!

                    February 27, 2019 view post
                    • dstef69 has replied to a post on the message board

                      Michael,this is Daniel again, I joust find your old posts about the chemo so don't worry about replying,Thanks.

                      February 23, 2019 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About dstef69

                      Patient
                      Bladder Cancer
                      Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.