Loading...

easternangel's Message Board Messages

Loading...
Showing 1 - 10 of 95

Page 1 of 10

On Mar 15, 2015 11:36 PM sgtguns wrote:

 I know what you mean.  I spent 12 hours today going through anything i could get my eyes on.  Going through the Radioligy reports from the hospital and trying to self diagnois myself.  Dr mentioned adenocarcinona at the consult and i see that the radioligist suggests neroendocrine (NET) in the report due to high lipase levels.   I am lost. Have to go to work tomorrow and then to see the dr for the biopsy with endoscope tuesday.  I know people are going to be asking questions tomorrow that i don't have answers for.  This is also going to be hard do deal with.  Thanks for your reply.

ihave that too adacarcinoma....I did go on the internet and it scared me so bad...a lotof those statistics are old and notice they never hear good stories only bad...when i first walked into the hosoital meeting with oncologisy i was sick to my stomach....adn it wasnt all like alll those things i had read so please dont read there ...a woman who i have befriended on here said to my i know this sounds weird but you will feeel better afetr you get through the meeting and be told things that i didnt even hear or read on those blogs...i felt like a great sense of relief..honestly....i know you willl be nervous but thry and keep in mind what you have read here..they have come a long way with this cancer compared to years ago....Good Luck and God Bless!

On Mar 11, 2015 10:31 AM Kjohnchas wrote:

Hi Diane

last few days seem to be differant.for "" target="_blank" rel="nofollow">http://differant.for " target="_blank" rel="nofollow">differant.for few days he had trouble going to bathroom,i gave him everything to help and it finally did.but "" target="_blank" rel="nofollow">http://did.but " target="_blank" rel="nofollow">did.but hardly eating now or drinking.he "" target="_blank" rel="nofollow">http://drinking.he " target="_blank" rel="nofollow">drinking.he usually has a couple glasses of wine at night and doesnt even want that.now "" target="_blank" rel="nofollow">http://that.now " target="_blank" rel="nofollow">that.now he has a pain in his lower back on the opposite side he had pain before.and "" target="_blank" rel="nofollow">http://before.and " target="_blank" rel="nofollow">before.and is sleeping more.

we were suppose to go to ctca this week ,but they called and moved everything till next week so they could change his kidney stent while we were there.now "" target="_blank" rel="nofollow">http://there.now " target="_blank" rel="nofollow">there.now i wish we had just kept it for this week.just "" target="_blank" rel="nofollow">http://week.just " target="_blank" rel="nofollow">week.just worried i guess.

florida sounds wonderful right now

GOD BLESS kathy

Hi Kathy hope all is going better or you :)

hugs Angel

On Mar 15, 2015 2:26 PM sgtguns wrote:

Thanks for both of your replys.  I am so scared and don't really know what to think.  I m besides myself right now.  I have a great wife of 34 years.  It hurts me so to think that i will be putting her through all this.  I will def keep checking any post updates and researching this site.  God Bless

Brian

You are welcome ..just take one day at a time it will get easier to wrap your head around it...dont read all that stuff on google etc it is just there to scare you ..will keep you poosted too :)

God Bless

RE: ramblings...

by easternangel - March 15, 2015

On Mar 15, 2015 6:13 AM carshe wrote:

Oh they figure hers had grown as well from her initial scan from June to when she started her chemo in August hence what it was only millimeters but in reality probably more? So still prayin for ya! Xxoo

It sounds like mine for sure...Faith is what he have ......hooldng on with you :)

RE: ramblings...

by easternangel - March 15, 2015

On Mar 15, 2015 6:10 AM carshe wrote:

I haven't heard boo since she left. I am so hoping the weather has been good for her. She was very tired when I saw her the weekend of the 28th. She slept most of the time but she seems to b maintaining her weight. She gets the results of her latest scan on Thursday or Friday. Right before her chemo. I am of course so worried. But I need to have faith. And you need t as well. Bonnie's first scan showed minimal shrinkage . Like millimeters . The 2 nd was better. Make sure you get your fluids in! Happy to hear from u! Xoxo sheryl

Hi Carshe i hope so the weather will makea big difference!! :) glad she is keeping her wieught on too.i have been losing a bit..I sure will with the fluids..Praying hoping believeing ....we have the Power!!!

HuGS Angel

RE: ramblings...

by easternangel - March 15, 2015

On Mar 04, 2015 1:32 AM carshe wrote:

 I spent the weekend with my sister. The docs took her off the Oxaliplatin component of Folfirinox .. She goes for a 3rd CT Scan this Friday and will get the results in two weeks as she leaves for Punta Cana next Tues and is gone for a week. I am struggling with her "skipping chemos". She missed one week in October to go to PEI. where they moved it up one week. She then missed her one before Christmas because she had an obstruction so it was a full two week miss... She had one chemo and then she thought she was having seizures, and though Princess Margaret was not too concerned, they skipped another one to do an MRI of the brain which came back clear. I think that's when they took her off her Oxaliplatin. She then had two chemos and now is skipping another full one to go to Punta Cana. The nurse told her not to worry about it. They are all pleased with her progress (incl Palliative Care Docs) and though she is skinny as heck. ( she used to wear a size 22 and is now a 10) she does look good, but she is very tired. She does eat relatively well. Her toes and hands are still tingling and so she still has some trouble with dexterity and walking. When she started chemo last August, she literally had elephant feet. Her ankles swell some now but minimally. Most of her back pain now is related to bowels and she does take medication for that. After her first scan in October where the tumour did show minute shrinkage, she was told she went from a 4-6 month prognosis to a 1-2 year. Her 2nd scan showed shrinkage in both the liver mets and her pancreas tumour was now breaking up some.  GUess I am just having some scanxiety happening....and needed to vent. Anyway..praying for everyone here and will continue to hope that they come out with a cure or at least another "buy her some more time" treatment soon...xo me 

Hi Stan and all...i hae missed coming on but was not well....i am so scared as usual...my top marker is quite high but he  doesnt have anything to  compare it with,he said it is worriesome but hopeful :) but i am awrexk.itwill take 10 days forresults.alsomy tumor grew but he also has no scan yes beause i have not had one since nov and ny chemo started in jan,,,,please kkep me in your prayers as i do you....so i have had 4 chemos now and i dont know if thats enough to say its reallly gettting bad or not.i go for tuesday to see him..at least he said he is hopeful still..i also have some bloodclots so am now injecting my self with fragmin...does anyone else have this??? I Pray you are all doing goood...we must Believe...Hugs for you all

Angel :)I so hope your sister will have a great time...how is she doing now?

HuGS

On Mar 14, 2015 7:48 PM sgtguns wrote:

Hi all new to this group.  I was recently told that i probably have PC with possible liver mets.  I go for biopsy on Tuesday.  Scared and nervous.  I need all the inspriation and Hope I can find.  Hoping to get some of that here.

Brian

Hi Bryan..i too have that,,,,i started chemo on january 4th ,,,,,we are all here to inspire eachother and get us through this trying and difficult time :) feel free to ask any ???? :)

Angel

On Mar 01, 2015 11:56 PM StanToronto wrote:


Hi Angel!

With all that has been transpring, I hope that you are at least physically more comfortable.

Been all through that. From experience, depending upon the type of scan, I've heard of mets being found all over the place, when other scans reveal absolutely nothing!!

As for liver mets, it is not at all unusual for them to totally disappear with Folfirinox; and for the primary tumour to shrink to the point of offering totally curative resectability.

Thinking of you and praying for you always!

Hi Stan and all...i hae missed coming on but was not well....i am so scared as usual...my top marker is quite high but he  doesnt have anything to  compare it with,he said it is worriesome but hopeful :) but i am a wrexk.it will take 10 days for results.also my tumor grew but he also has no scan yes beause i have not had one since nov and ny chemo started in jan,,,,please kkep me in your prayers as i do you....so i have had 4 chemos now and i dont know if thats enough to say its reallly gettting bad or not.i go for tuesday to see him..at least he said he is hopeful still..i also have some bloodclots so am now injecting my self with fragmin...does anyone else have this??? I Pray you are all doing goood...we must Believe...Hugs for you all

Angel :)

On Mar 05, 2015 2:11 AM easternangel wrote:

On Mar 04, 2015 5:01 AM pancanfighter wrote:

Hi angel! I've been thinking about you and logged on to specifically check n you! I'm sorry to hear about the mets ! But don't you dare quit fighting! You can never ever give up. Just keep doing what you are doing . I am hoping that the oncologist had some hopeful words for you today. Please let us know because we're rootin ' for ya!! Take care

Thank you so much ...that is so kind of you ..i try to get on when im feeeling goood or okay as i can be..My mets cant be compared because thats the first one with the mets on it to my lungs but they are definitely from the pancreas and not a seprerate new cancer so i was relieved at that...the primary nurse and my oncologist said i am doing better then when i first went there!!! my overall looks and appearance as well so that really made me smile.I keep praying it willl get smallller as time goes on as i Pray for all on this website that has helped me beyond...You are always on my lists and i cant thank you all enough who i have been in contact with on here...we will do it we will do it !!!!! Hugs to you all..Angel...ps i had my 4th chemo today and so far just congested feels like im underwater lol

pss.....my lung mets are 0.3 - 0.4 i forgot to metion that!!!

On Mar 04, 2015 5:01 AM pancanfighter wrote:

Hi angel! I've been thinking about you and logged on to specifically check n you! I'm sorry to hear about the mets ! But don't you dare quit fighting! You can never ever give up. Just keep doing what you are doing . I am hoping that the oncologist had some hopeful words for you today. Please let us know because we're rootin ' for ya!! Take care

Thank you so much ...that is so kind of you ..i try to get on when im feeeling goood or okay as i can be..My mets cant be compared because thats the first one with the mets on it to my lungs but they are definitely from the pancreas and not a seprerate new cancer so i was relieved at that...the primary nurse and my oncologist said i am doing better then when i first went there!!! my overall looks and appearance as well so that really made me smile.I keep praying it willl get smallller as time goes on as i Pray for all on this website that has helped me beyond...You are always on my lists and i cant thank you all enough who i have been in contact with on here...we will do it we will do it !!!!! Hugs to you all..Angel...ps i had my 4th chemo today and so far just congested feels like im underwater lol

Showing 1 - 10 of 95

Page 1 of 10

Loading...

About easternangel

Patient
Pancreatic Cancer
Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Chemotherapy

Toronto , Ontario..Canada
..A DaUgHtEr.. a mOtHeR..a SiStEr..a Widow... an AuNt.. a gReAt aUnT..a NiEcE .. a CoUsIn .. & A fRiEnD~Thats all a part of me ,that's who i am <3

We care about your feedback. Let us know how we can improve your CancerCompass experience.