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edsana's Recent CancerCompass Activity

  • edsana has replied to a post on the message board

    Had my 4th "new birthday" on November10th and four year labs on the 11th. All lab results were good/normal. I have one minor lingering GVHD issue which is dry eyes. My eye doctor gave me a prescription for "serum" eyedrops which are made out of the plasma in my blood. They extracted 12 vials of blood and several hours later the eyedrops were ready to be pick-up. Cost $300. The drops are not red, but clear like plasma...

    January 27 at 5:11 PM view post
    • edsana has replied to a post on the message board

      I'm cured. I was diagnosed three years ago, had chemo, and stem cell transplant. I had my three year check-up in November and all was good. I don't have to see the doctor for a year. I'm not on any drugs. Very fortunate. Take care, Ed

      February 14, 2019 view post
      • edsana has replied to a post on the message board

        Update - I had my third "new birthday" and three year post transplant labs last week. All labs (blood, pulminary, etc.) were good. I don't have to go back for followup labs for a year. I'm very fortunate. Ed

        November 21, 2018 view post
        • edsana has replied to a post on the message board

          Hey Mike, I had CMML/AMML. Glad that you are doing better and things have stabilized. Hang in there. Ed

          November 11, 2018 view post
          • edsana has replied to a post on the message board

            Hi Meg, Good to hear from you. Wow 200 CMML patients is alot. Are there people from outside the US? I'm sorry to hear that a BMT hasn't worked for some of these people. I still think of Sue Ellen Rainey frim Australia who passed  away over two years ago at 50 from AMML. Her transplant didn't work. Even ithough we have the same label CMML/AMML it appears each case is a ilittle different. I'm an example that there...

            August 23, 2018 view post
            • edsana has replied to a post on the message board

              Hey Bob, Good to hear from you. I was diagnosed six weeks shy of 65th birthday, had transplant at 65, and I'm now 68. How are you doing? Ed

              August 23, 2018 view post
              • edsana has replied to a post on the message board

                I haven't been on the site in awhile. Update - I had blood labs last week as a follow-up to a little gvhd earlier in the year, elevated enzyme levels in liver. I was given Ursodiol for several months and then taken off when my enzymes were back to normal. Three labs later and enzyme levels are still normal. I am two years nine months post transplant (3 year new birthday Nov, 10) and off all medication. Still have dry...

                August 23, 2018 view post
                • edsana has replied to a post on the message board

                  Hey Kim,  How are you doing? How are your sister's T cells treating you? I had another lab last Monday and my liver enzymes are almost back to normal. Still taking ursodiol. Ed

                  March 30, 2018 view post
                  • edsana has replied to a post on the message board

                    Bob, I learned something new today. I had never heard of this mutatiion or that it could be treated by gleevec. Thanks for the information. Ed

                    March 16, 2018 view post
                    • edsana has replied to a post on the message board

                      Chris701, I'm confused. Were you diagnosed with CML (Chronic Myeloid Leukemia) or CMML (Chronic MyeloMonocytic Leukemia)? From what I understand they are not the same thing - (CML affects the myeloid cells in the blood and bone marrow, while CMMLaffects a specific myeloid cell called a monocyte, which helps to fight infections.) Also from what I understand CML is treatable by Gleevec. CMML is not treatable...

                      March 16, 2018 view post
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