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emariec's Recent CancerCompass Activity

  • EMarieC has replied to a post on the message board

    Dalt, have sent private e-mail two or three times with no response. Maybe I am doing something wrong. Am very eager to learn the VitaminC/selenium protocol for ET. Thanks for your help.

    January 16, 2016 view post
    • EMarieC has replied to a post on the message board

      I have Essential Thrombocythemia with the Jak 2 mutation. I am having great difficulty with my while count & infection fighting cells. My dr. Is considering switching me from Hydrea to a new drug that is supposed to block the Jak 2 mutation. Hoping perhaps Vitamin C & selenium might help. Have started taking these but have no clue as to proper amount. Can you help? EC

      January 10, 2016 view post
      • EMarieC has replied to a post on the message board

        I think it must vary by people. I wouldn't say this if she hadn't already had it done. I have had two by different doctors & they were horrible! The MOST EXCRUCIATING PAIN I have ever experienced. My dr. Wants to do one again (it's been 7 years) but I keep putting her off . I have told her I cannot go through that pain again. So she said she would check on what she could do to keep it from being so painful. I hope al...

        January 07, 2016 view post
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        About emariec

        Patient

        I am a 64 year old female with essential thrombocythemia with Jak2 mutation. Have been diagnosed for 8 years. Taking Hydrea to keep platelets down but dosage constantly adjusted due to extremely low white count. Looking for a way to improve my immune system.

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