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faye123's Recent CancerCompass Activity

  • Faye123 has replied to a post on the message board

    My heart hurts for you and all who walk our path.  My wonderful husband was diagnosed in June 2013 and passed from this horible disease November 30, 2014.  Brian was my soulmate and I miss him so terribly.  We never had children so I cannot take comfort there.  I love my in-law family dearly, but I find it so difficult to be with them.   It brings back what I am missing with a sharp pain...

    July 09, 2015 view post
    • Faye123 has replied to a post on the message board

      I am so sorry for your loss.  My Dear Husband lost his 18 month battle with EC on 11/30.  Losing my husband has been devestating.  Even though I knew it was coming it is still so difficult.  I do not understand God's purpose and goodness knows we've had many prayerful converstions about it, but my faith keeps me strong even in the pain.  I am praying for God's grace for you and your family.

      December 10, 2014 view post
      • Faye123 has replied to a post on the message board

        Brian is being seen at UCIrvine in California. He has had all of the Chemo he can have and, so far, is not willing to endure more Chemo. He had such a difficult time with Chemo that he doesn't want to spend his remaining days feeling crappy.

        October 29, 2014 view post
        • Faye123 has replied to a post on the message board

          My husband is stage 4 EC. He had no symptoms at diagnosis and he was youn (49) and healthy, so they hit him hard with Chemo and Radiation. It didn't work and the cancer spread. He did not tolerate Chemo Radiation well and has many lasting side effects. He also participated in the antiPDL1 trial, but again the cancer grew. He does not want to do more chemo and his Oncologyst is recommending that he take the Herce...

          October 17, 2014 view post
          • Faye123 has replied to a post on the message board

            Thank you for some well timed encouragement. We will get results from Tumor sequencing this week. We don't know yet if Brian's tumor is positive for PDL1. He has had one scan (at 6 weeks) and is due for the second scan at the end of this month. The first one was not encouraging, but we are trying not to overreact to that and hang in there for the second one. If it isn't better though, he will be kicked out of th...

            August 10, 2014 view post
            • Faye123 has replied to a post on the message board

              Be sure o call the doctor with every new side effect. There are many options available to help ease some of his discomfort, but you have to be assertive and let them know that he needs something. Unfortunatly my husband had a hard time too and it didn't get much better befor it was time for another round. This is a rough road that your on and so hard to be the caregiver and feel hopeless to help. When my husband ...

              June 24, 2014 view post
              • Faye123 has replied to a post on the message board

                My husband was stage 3b diagnosed June 2013. He had 28 radiation treatments, 3 rounds of Cisplatin Chemo coupled with 5FU and then 3 more with Zeloda instead of the 5FU when he had severe reaction. He had just about every side effect- severe neasea, horrible mouth sores, constipation, bowel impact ion, diareah and constant battles with blood cell counts. He was hospitalized 10 days during treatment and 3 times aft...

                June 24, 2014 view post
                • Faye123 has created a new message board discussion

                  Hubby just received is second dose yesterday for Esophogus cancer. Looking for others who are in the trial to share experience.

                  June 21, 2014 view discussion
                  • Faye123 has created a new message board discussion

                    My husband is struggling to find a way to life with his stage 3 diagnosis and have any joy. He told me he just doesn't look forward to anything. We tried therapy early on, but I didn't feel like the therapyst was experienced in dealing with someone facing terminal illness. I've asked friends, his oncologist, my health plan and my Employee Assistance provider for referrals, but nobody seems to know how to identify ...

                    June 21, 2014 view discussion
                    • Faye123 has replied to a post on the message board

                      My husband doesn't have any trouble swallowing. His tumor is at the junction of his stomach and the only time he considered a feeding tube was during horrible radiation. You should ask about clinical trials,if your Dad can't tolerate more Chemo or radiation. My husband also is not a surgical candidate. It is frustrating to see that the vast majority of 5 year survivors of this cancer have had surgery. There ar...

                      May 22, 2014 view post
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                      About faye123

                      Caregiver
                      Esophageal Cancer
                      Alternative Treatments, Cancer Nutrition, Cancer Treatments, Chemotherapy, Conventional Treatments, Emotional Support, Radiation, Side Effects, Spiritual Support

                      My wonderful husband of 22 years was diagnosed with Stage 3 EC in June 2013. This man is my whole world and I cannot imagine any joy in a life without him. That means we have to fight, pray and repeat as often as is necessary. We are only beginning our journey into Cancerland. Until today it has been all about the diagnosis. Today he had a Port put in and on Monday begins Chemo followed closely and Consecutively with radiation as soon as possible.
                      Surgery is not an option for him. Ready or not...her we go.

                      Well, the initial treatment was horrible and the results disapointing. After some initial disappointment and grief we've picked ourselfs up, dusted off and gone for a second opinion. Hubby will start an AstraZenica anti PDL1 clinical trial soon.

                      Update 12/9/14- My Dear Husband Brian lost his battle with EC on 11/30/14. It was a difficult journey and I am so grateful that he is at peace, but broken hearted over my loss.

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