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gr0619064's Message Board Messages

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Jim

Thank you so much for this information and the time it took you to find it. This was most helpful and I will bring it to the attention of my ENT when I get to my appointment

Gary

Thanks Susan-it has been a while since we spoke. Yes it is an infection. taking strong anibiotics. making another appointment with my ENT to try and find the root cause.

Gary

Thanks for the info Jim-but all indications is that it has nothing to do with my teeth-but who knows?

Gary

Hi All

It has been a few years since i have posted here. I am five years out. Three months ago I woke up with a 104.5 fever and a slollen right side of my face only(three times its size. I was admitted to the infectious disease ward in my hospital because they could not find anything wrong. Five days later an ENT came to see me and told me I had a blocked sliva gland. well yesterday it happened again on the left side of my face. I am wondering if anyone has heard of this happening. I feel that this is some wierd effect of past radiation.

Thanks 

Gary

Hi Karen

Coffee started helping my taste buds-thank God. Chicken was the worst even 4years out-sometimes the texture just does't bode well. Taste buds do retirn but even now somedays they just revert back-but it REALLY does get better and everyone is a little different.

Gary

Hi Sadsister1

I am 4 years out and my radiologist told me that they keep watching the lungs-from past experience if cancer does come back that is the first place it will reemerge

Gary

Hi Imwavin

I had it on my right side. Even though I see my radiologist every six months -they sent me to a cardiologist. It seems that Cisplatin also damages the heart and it isa a circulatory issue. It idi go away for me but the cold weather makes me feel it. I am almost 4 years out. It all does get better over time

Gary

Hi Karen

I totally agree with Bugsy-I forgot about the Lipton soups -I also ate a lot of Ramen soups too for the soft noodles. Ice cream too but it tasted like metal. 

I did get a prescpition for tramadol(synthetic marijuana) for appetite but it didn't work

I did go on antidepresseants which helped a great deal

Gary

Hi Karen

My dr would not take feeding tube out until at least three months after treatment and I was able to eat somewhat again. I ate lots of scrambled eggs cooked in butter. it does get better but he has to be strong mentally to get through it. I am 3 1/2 yrs out can eat almost anything but real spicy foods which I miss. Meat proteins will be one of the last things he will be able to eat. dry mouth does get better although will never be 100%.

Gary

RE: Partners of HPV+ cancer

by gr0619064 - November 09, 2015

On Nov 06, 2015 1:52 PM Roselvr wrote:

It's been years since I've been here. I had to step away from cancer. In 06 I lost my beloved dad to AML Leukemia as well as my father in law 6 weeks later from brain cancer that his Dr missed. Losing my dad helped me to make sure I would not lose my hub to HPV+ tonsil cancer. What freaked me out was when a beloved member here was 5 years clean for cancer; he tested positive for lung cancer. He was being treated by Hopkins, they could not help him. He left the board, a member & I used to google for his obituary. Scared the heck out of me when he passed away. It still brings tears to my eyes. That was the reality for my hub. His cancer could have also come back.

My hub was done treatment Dec 24, 2009; was a long year after chemo & rads; he then lost his job, times were really tough. He had times where he had super blisters on his hands from Lupus and a lip sore that was in his nose & mouth, the last time was about a year ago when he didn't sleep or eat right.

The reason I am posting is that I saw the gyno a few weeks ago. I'm in the process of my 2nd round of biopsies; my HPV test has shown small amounts of HPV. All it says is that it's positive, but not which strain. My Dr thinks my body is fighting HPV 16 since that's what my hubs tonsil cancer was.

I'm not sure what the chances are for HPV causing cancer. I'm on the National Cancer Institute's web site,HPV and cancerit says 50% or less; but my opinion is they do not know.

Female spouses, make sure you go to the gyno to be tested.

Hi Roselvr

I had HPV BOT stage 4b-Diagnosed almost 4 yrs ago. I have been with my wife for 45 years --she flipped out when it was dicovered what caused my cancer. We went right to her OBGYN and had her tested. Her DR told her he has been tseting for STD every yeard she goes for a check up as part of routine exam--she tseted negative. She was shore that I was running around. My onocolgist told her that I could have had this virus fro 40 to 50 years. I am 65. almost 805 of us have it especially men. It lied dormant for that long. Your body usually fights it off but certain things make it develop. I was under extreme stress back then and it just appeared out of nowhere. It was one thing that we never knew about back in late 60's and 70's.

good luck

gary

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About gr0619064

Patient
Head and Neck Cancer, Oral Cancer, Salivary Gland Cancer, Squamous Cell Cancer, Tongue Cancer
Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Radiation, Side Effects, Support

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