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herrmajo's Recent CancerCompass Activity

  • herrmajo has replied to a post on the message board

    the love of my life was diagnosed with GBM in 2010 and yes this fine today, this that and the other don't work tomorrow was very real for us. It's a nasty, nasty cancer. It's a miserable journey. I wish you the best. Connect with someone in your community that can help your Mom and Dad take care of the basics. They get angry, yes they do, but I think it comes from the realazation that things are not as they used to b...

    May 02 at 6:38 AM view post
    • herrmajo has replied to a post on the message board

      I'm so sorry your on this journey. Doctors nor anyone else can tell you one way or another what is the best choice, because no one really knows with the nasty GBM. Every treatment out there is really a crap shoot as some respond to treatment and others don't. We did not have a good experience, the side affects and risks are very real. I guess you need to weigh one way or another if those risks are worth it, but we de...

      May 03, 2015 view post
      • herrmajo has replied to a post on the message board

        I'm so sorry for the path your mother is going down and your family. GBM is a nasty thing no matter what the age. Picking at the sheets and talking to people passed are sure signs that time is winding down. At 87 your Mother has seen lots of lots of things that we can never imagine. No matter the cause, letting go is never easy. Prayers are with you and your family to get through this horrible time in your life.

        September 13, 2014 view post
        • herrmajo has replied to a post on the message board

          no leaking just not being able to hold it long enough to get to the bathroom when the urge came.

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          • herrmajo has replied to a post on the message board

            Kevin passed almost 3 yrs. ago from GBM and one comment that sticks in my head that came from a so called friend told me you sure didn't look sad at the funeral. Well just before the service the priest came out to talk to me, he had been watching in the background, and told me he was so proud of me that I was able to smile about stories that people had of Kevin instead of being a total mess and whaling through the wh...

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            • herrmajo has replied to a post on the message board

              one other thing for the meds most pharmacies will do bubble packs, makes it super easy to keep everything on track and they don't charge extra for it.

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              • herrmajo has replied to a post on the message board

                one other thing for the meds most pharmacies will do bubble packs, makes it super easy to keep everything on track and they don't charge extra for it.

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                • herrmajo has replied to a post on the message board

                  that is one regret that I have with Kevin's passing almost 3 years ago from GBM. when time winded down his brother and a good friend came and respected my want to be with him alone for his last breath, but a cousin of his insisted in being there with me and at this point in time there was no want or time to argue. You did the RIGHT thing for YOU, no regrets! Eventually family will come around. Best wishes to you in ...

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                  • herrmajo has created a new message board discussion

                    Just a few words of advice from my experience with the nasty crap called cancer. Doesn't really matter what kind, have experienced many different ones with loved ones. When you get that horrific news please do what you need to do as end of life directives for your medical team. I am thankful that we did all of that because without it I fear that for at least the love of my life I would have had them do anything to ke...

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                    • herrmajo has created a new message board discussion

                      Sometimes I get upset when eveyone says you NEED a neouro oncologist and to be at a major univeristy to get the best care. I am in a small community where the travel was not possible. But we did have wonderful doctors who were networked with the top doctors and conferenced with those doctors to make sure the best treatments and available clinical trials were available and to see if what their thoughts were of treatme...

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                      About herrmajo

                      Caregiver
                      Brain Cancer
                      Cancer Treatments

                      I am a caregiver for my fiance' who at 48 was diagnosed with glioblastoma multiforme-stage IV in July 2010 He was doing wonderfully, doctors were suprised and totally happy that he was doing so good and then everything went south. Lost control of his left side, now in hospital waiting to be admitted to a skilled nursing facility.ent through all the standard treatments, kept his original tumor in check,but less than 2 months another huge nasty bugger showed up, which has taken away not only his mind but his body. I miss him so much!!!!!!! He's here still, but not really.
                      Kevin lost his battle on May 17,2011. I'm sure he is in a happy place now,but he sure will be missed by many.

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