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hkprentice's Recent CancerCompass Activity

  • hkprentice has replied to a post on the message board

    Happy New Year everyone! I agree with all of Susannah’s comments! xo Kevin has been doing great on Avastin. Today he’s having his 3rd treatment. Between that and all the steroid side effect clearing away I would say he’s doing as well as he was right before his 2nd biopsy in Nov. Even though he had confirmed progression on scan in Dec he has not had significant clinical decline. I have noticed a slight impair...

    January 07 at 5:35 PM view post
    • hkprentice has replied to a post on the message board

      Where did the time go? Haven’t posted in so long but you all have been on my mind! Wondering how everyone is doing with treatments and if anything new being considered. Since last post Kevin has had progression confirmed on 2 scans. He is not working now. They repeated his biopsy and did biopsy of new focal lesion but pathology is unchanged so no clinical trial option. Started Avastin off label yesterday.

      December 11 at 7:45 PM view post
      • hkprentice has replied to a post on the message board

        Buster - I’m really sorry and will stay positive and keep praying for you. I can’t imagine how frightening it must be and am hoping your Dr can suggest another treatment very soon! Have you asked about Optune? Is it an option for you? Keith I’m also sorry to hear that they found pre melanoma and hoping they take care of that quickly without too many side effects for your ear or hearing. Goodness we could all...

        June 10 at 7:37 PM view post
        • hkprentice has replied to a post on the message board

          Hi everyone! I’m hoping you all are well and think of you and pray for you regularly. KB, I’m sorry to learn Mikes Tumor progressed and was positive for GBM. But it is very good to know he is doing well and they already have treatment options to present. I’m curious about the Optune prescription and how frequently he would do that? I met a lovely women in Cincinnati who has GBM and been using Optune for a long...

          June 09 at 6:27 PM view post
          • hkprentice has replied to a post on the message board

            You all have been on my mind lately and in my prayers! I am praying everyone is doing as well as possible and staying positive. There are a lot of tough moments but there are many good moments too and I hope we can all cherish those and find gratitude in something each day. I appreciate hearing what you are experiencing and what your doctors suggestions are for managing new symptoms. Every case is different but...

            March 24, 2019 view post
            • hkprentice has replied to a post on the message board

              Friends how are you all doing and holding up?  I hope everyone is hanging in there and doing the best they can to stay positive and still seeking options for better outcomes. I have not posted in a long while since we were on the pre-treatment roller coaster for the past two weeks (lots more Dr. visits, getting logistics in place and remote housing in OH).   I wanted to share some interesting alterna...

              March 13, 2019 view post
              • hkprentice has replied to a post on the message board

                Thanks Keith and I hope you are doing great these days. Our insurance approved the proton delivered radiation so we are going for it. The effects on the tumor should be no different than it would be with photon delivered but we hope maybe less effects to his normal brain tissue this way. Last week he did his simulation and planning so I expect he will start treatment in about 2 weeks. He is still feeling ...

                February 24, 2019 view post
                • hkprentice has changed their profile photo
                  February 17, 2019
                  • hkprentice has replied to a post on the message board

                    Thanks for the reply friends! I hope you are all feeling well! Last Thursday Kevin had a consult at the University of Cincinnati to explore doing proton delivered radiation instead of photon. I’m curious if anyone here did that? We are waiting to see if our insurance covers it. If they deny approval the center will challenge them with appeal. I’m gathering published data that supports this modality for low grade...

                    February 16, 2019 view post
                    • hkprentice has changed their profile photo
                      February 13, 2019
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                      About hkprentice

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Genetics, Side Effects, Supplements

                      Husband diagnosed with diffuse astrocytoma grade II wild type. Mother of 3. Clinical Research Manager. Living in the Midwest, Indiana.

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