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hkprentice's Recent CancerCompass Activity

  • hkprentice has replied to a post on the message board

    You all have been on my mind lately and in my prayers! I am praying everyone is doing as well as possible and staying positive. There are a lot of tough moments but there are many good moments too and I hope we can all cherish those and find gratitude in something each day. I appreciate hearing what you are experiencing and what your doctors suggestions are for managing new symptoms. Every case is different but...

    March 24 at 3:44 PM view post
    • hkprentice has replied to a post on the message board

      Friends how are you all doing and holding up?  I hope everyone is hanging in there and doing the best they can to stay positive and still seeking options for better outcomes. I have not posted in a long while since we were on the pre-treatment roller coaster for the past two weeks (lots more Dr. visits, getting logistics in place and remote housing in OH).   I wanted to share some interesting alterna...

      March 13 at 1:48 AM view post
      • hkprentice has replied to a post on the message board

        Thanks Keith and I hope you are doing great these days. Our insurance approved the proton delivered radiation so we are going for it. The effects on the tumor should be no different than it would be with photon delivered but we hope maybe less effects to his normal brain tissue this way. Last week he did his simulation and planning so I expect he will start treatment in about 2 weeks. He is still feeling ...

        February 24 at 4:03 PM view post
        • hkprentice has changed their profile photo
          February 17 at 9:28 PM
          • hkprentice has replied to a post on the message board

            Thanks for the reply friends! I hope you are all feeling well! Last Thursday Kevin had a consult at the University of Cincinnati to explore doing proton delivered radiation instead of photon. I’m curious if anyone here did that? We are waiting to see if our insurance covers it. If they deny approval the center will challenge them with appeal. I’m gathering published data that supports this modality for low grade...

            February 16 at 2:53 PM view post
            • hkprentice has changed their profile photo
              February 13 at 12:36 AM
              • hkprentice has replied to a post on the message board

                Hi Keith and all, My 52 yr old husband KP has confirmed Dx this month with inoperable diffuse stage II wild type astroctyoma involving the right anterior and medial temporal lobe, inculding medulla, hippocampus and temporal operculum.  We live in Indiana.  His history was he had vauge sypmtoms for 6+ months that were being evaluated by GP as panic attack.  For a couple months they went away altogether...

                February 10 at 7:40 PM view post
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                About hkprentice

                Caregiver
                Brain Cancer
                Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Genetics, Side Effects, Supplements

                Husband diagnosed with diffuse astrocytoma grade II wild type. Mother of 3. Clinical Research Manager. Living in the Midwest, Indiana.

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