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hkprentice's Recent CancerCompass Activity

  • hkprentice has replied to a post on the message board

    Buster - I’m really sorry and will stay positive and keep praying for you. I can’t imagine how frightening it must be and am hoping your Dr can suggest another treatment very soon! Have you asked about Optune? Is it an option for you? Keith I’m also sorry to hear that they found pre melanoma and hoping they take care of that quickly without too many side effects for your ear or hearing. Goodness we could all...

    June 10 at 7:37 PM view post
    • hkprentice has replied to a post on the message board

      Hi everyone! I’m hoping you all are well and think of you and pray for you regularly. KB, I’m sorry to learn Mikes Tumor progressed and was positive for GBM. But it is very good to know he is doing well and they already have treatment options to present. I’m curious about the Optune prescription and how frequently he would do that? I met a lovely women in Cincinnati who has GBM and been using Optune for a long...

      June 09 at 6:27 PM view post
      • hkprentice has replied to a post on the message board

        You all have been on my mind lately and in my prayers! I am praying everyone is doing as well as possible and staying positive. There are a lot of tough moments but there are many good moments too and I hope we can all cherish those and find gratitude in something each day. I appreciate hearing what you are experiencing and what your doctors suggestions are for managing new symptoms. Every case is different but...

        March 24 at 3:44 PM view post
        • hkprentice has replied to a post on the message board

          Friends how are you all doing and holding up?  I hope everyone is hanging in there and doing the best they can to stay positive and still seeking options for better outcomes. I have not posted in a long while since we were on the pre-treatment roller coaster for the past two weeks (lots more Dr. visits, getting logistics in place and remote housing in OH).   I wanted to share some interesting alterna...

          March 13 at 1:48 AM view post
          • hkprentice has replied to a post on the message board

            Thanks Keith and I hope you are doing great these days. Our insurance approved the proton delivered radiation so we are going for it. The effects on the tumor should be no different than it would be with photon delivered but we hope maybe less effects to his normal brain tissue this way. Last week he did his simulation and planning so I expect he will start treatment in about 2 weeks. He is still feeling ...

            February 24 at 4:03 PM view post
            • hkprentice has changed their profile photo
              February 17 at 9:28 PM
              • hkprentice has replied to a post on the message board

                Thanks for the reply friends! I hope you are all feeling well! Last Thursday Kevin had a consult at the University of Cincinnati to explore doing proton delivered radiation instead of photon. I’m curious if anyone here did that? We are waiting to see if our insurance covers it. If they deny approval the center will challenge them with appeal. I’m gathering published data that supports this modality for low grade...

                February 16 at 2:53 PM view post
                • hkprentice has changed their profile photo
                  February 13 at 12:36 AM
                  • hkprentice has replied to a post on the message board

                    Hi Keith and all, My 52 yr old husband KP has confirmed Dx this month with inoperable diffuse stage II wild type astroctyoma involving the right anterior and medial temporal lobe, inculding medulla, hippocampus and temporal operculum.  We live in Indiana.  His history was he had vauge sypmtoms for 6+ months that were being evaluated by GP as panic attack.  For a couple months they went away altogether...

                    February 10 at 7:40 PM view post
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                    About hkprentice

                    Caregiver
                    Brain Cancer
                    Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Genetics, Side Effects, Supplements

                    Husband diagnosed with diffuse astrocytoma grade II wild type. Mother of 3. Clinical Research Manager. Living in the Midwest, Indiana.

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