Loading...

hksal's Message Board Messages

Loading...
Showing 1 - 10 of 3

Page 1 of 1

Rick, you can do it! I am three years out from my initial GBM ressection surgery. Keep a positive attitude, eat well. Keep your body strong so it can withstand the treatments that are going to save you. Find reasons to laugh and be interested in life. You've got this. xx

Hey Dude, 

Glad to hear you're in New York. I had surgery with Dr. Jeffrey Bruce at Columbia 2 years ago, and he is the best. They have a whole brain tumor team there who can work with you on diagnosis and treatment. Definitely make an appointment to see him. The neuro oncologist there is Dr. Andrew Lassman, and he is top notch as well. I had surgery there as well as the 6 weeks of RT + Temodar and I'm on my second year of monthly temotar now. Go see them and get it checked out. 

Hi JodiC,

My heart is with you and your family. I was diagnosed with grade 4 GBM when I was 25 in September 2015. I am now in my second year of monthly temodar, while living and working in Hong Kong! I had surgery and first 6 weeks of treatment at Columbia University in NYC with Dr. Jeffrey Bruce. He is amazing. I also had a consult with Dr. Linda Liau, who is similarly amazing, and uncoincidentally, Dr. Bruce and Dr. Liau are good friends and consult each other on cases often. I was offered a job in Hong Kong just before finding out about my diagnosis, and had to stick with my plans. Like many others, I too experienced paralysis on my left side post-surgery. It took a lot of PT and hard work, but I'm finally back to my old self. I'm able to play in a tennis league after work and do other normal 20s things. When moving, Dr. Bruce recommended some doctors here who could help continue my treatment plan. So far, so good. I love my doctor here, and my scans have remained stable since surgery. I haven't done anything crazy dietary or otherwise, although I have found it useful to keep busy. My mom was with me throughout surgery, treatment etc. and she still comes to visit me in Hong Kong every 4-5 months. Something that really helped me and still does, is doing jigsaw puzzles. It might seem silly, but keeping your hands, and simultaneously your mind, busy is really important. My mom and I did many puzzles while watching--mostly listening to--How I met your mother. So while it was not a comfotable time for me, I do cherish and remember it fondly. 

I am thinking of you and your daughter, and sending all of my good vibes your way. Please reach out to me with any questions etc. 

xxx

Showing 1 - 10 of 3

Page 1 of 1

Loading...

About hksal

hksal has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

We care about your feedback. Let us know how we can improve your CancerCompass experience.