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imprezagm4's Message Board Messages

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Thanks you guys', it's great to connect with others going through brain cancer.

It seems as if there are quite a few GBM warriors here. Any oligodendrogliomas hiding in the shadows? :)

Exactly 2 weeks into treatment, no hair loss yet... Isn't it supposed to be happening right about now... I mean I'm not complaining or anything ;)

Oddly enough my fiance is a thyroid cancer survivor, she was diagnosed when she was 16 and it recurred 2 years later. Now she is 24 and feeling good, just had a clean scan too :)

Take care everyone! Remember what really matters!

Kyle

Thank you everyone for the warm welcome! I too wish it could be in better circumstances for us all indeed. A few NW folks huh... I hear Idaho is beautiful, and I love the state of Washington. I love the Northwest if you can't tell. Haha.

A big inspiration and encouragement aside from my family/friends/Church is a man named Matt Chandler. Some of you may have heard of him, he is a pastor at The Village Church in Texas. He suffers from the same type of tumor as myself but was diagnosed a year ago. He has posted quite a few "health update" videos which have been incredibly helpful in preparing me, almost as if having someone walk ahead of me in the process. His faith and outlook are amazing.

If anyone is interested

http://fm.thevillagechurch.net/blog/pastors/?cat=8

Begins with the most recent.

Thank you everybody!

Kyle

 

Hello!

My name is Kyle, 23 years old, and I was diagnosed with a Stage 3 Oligodendroglioma on July 28th right here in Bend, Oregon. My fiance and I had our wedding date set at August 15th but had to be pushed back, and now it is just a week away!!! 10/10/10

It presented itself with a seizure while my fiance and I were watching a movie. I remember almost nothing of the evening of the 27th through early September. The only thing I recall was waking up briefly in the ambulance, pretty scary.

I had a great surgery on July 29th by Dr. Yundt of NW brain and spine. It was an awake craniotomy done with the assistance of Dr. Bell and Dr. Lisa Parker. A great team who reported a complete ressection. The tumor was a little larger than a tennis ball and the interesting thing is that it was initially reported to be a stage 2 because of heavy calcification (an indicator of a very slow growing tumor). Pathology was sent to Johns Hopkins who reported back as stage 3 with 1p 19q deletion. Good news I hear :)

I flew down to UCSF with my mother for a second opinion on treatment and decided on 6 weeks of radiation with temodar each day. Following the 6 weeks we will begin the standard one year temodar treatment.

Just finished week 2 of radiation, sleeping more than usual but otherwise doing well and in good spirits. Still getting out there, fishing, hiking etc. Going back to school in the winter. Just started work part time again. God is good.

I am very blessed to have such amazing doctors on board, a beautiful soon-to-be, and trust in the Lord.

Kyle

 

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About imprezagm4

Brain Cancer

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