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inittogether's Recent CancerCompass Activity

  • inittogether has replied to a post on the message board

    Soooooooo good to hear about the improvement!!! How do these warriors keep finding more fighting strength!!!! Amazing people. Glad you are able to get more yelp before returning home. Also gives you a chance to rest up a little mire too!! Thanks for the update! Hope always.....Kathy

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    • inittogether has replied to a post on the message board

      Oh Karyn......."the umbrella of brain cancer".......a very good description of the many unexplained things we deal with. No explanations needed for the I love you's.........how precious those are!!!!! Hanging in there with you! Hope always.........Kathy

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      • inittogether has replied to a post on the message board

        Oh Shoot!  Should have read the thread first!!  It'll happen...I know it will!! Hope always...Kathy

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        • inittogether has replied to a post on the message board

          HOORAY!!!!!  Wow...what a journey.  Glad to hear your gasoline bill will be cut in half!!  Way to Fight....Tom!!!!!  Karyn...sending buckets of strength, patience, caffeine & HUGS to you!!!!!  Hope you'll catch up on some much needed sleep & have a little down time. Hope always.......Kathy

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          • inittogether has replied to a post on the message board

            Dear Sally, Oh GBM....a monster until the very end.  I can only imagine the toll that took on you & it was very wise to protect your sons.  If only we could have protected you & Randy. You rest now.....be gentle with yourself as you return to those that love & need you.  I can't imagine there is any of you left, but God's amazing grace will restore you in time.  Get & take any&nb...

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            • inittogether has replied to a post on the message board

              Oh Ellen....what a relief!!!  We know.....KNOW....about those focal seizures.  I am so glad they are at bay.....shhhhhh...don't want to jinx you!  This will also help with your fatigue level.  Those focal seizures wear Keith out. Enjoy the peace! Hope always...............Kathy

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              • inittogether has replied to a post on the message board

                CONGRATS TOM & KARYN!!!!!  Actually this is not congrats for 11 year survival....it's congrats for 11 year survival AND YOU ARE STILL SANE!!!  LOL   Well..I know sane is a relative term in GBM world! And how do you last for 7 years??  As my dear friend puts it, 1FIFOTO......1 foot in front of the other! ((((((((((((((((BIG CYBER HUG)))))))))))))))) Hope always........Kathy

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                • inittogether has replied to a post on the message board

                  Sounds like you live at MY house!!  Mobility is a huge problem for us for a variety of reasons including dex but here is how I keep the falls under control................... Keith has the phobia/fear of having to go into a facility so I remind him daily........"A Broken Bone Means A Nursing Home"!!!!! He too is a big guy...6'1" & 255 lbs & growing so I can barely handle him as it is but if he get...

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                  • inittogether has created a new message board discussion

                    Hello from the Brain Tumor Board......a dear friend just diagnosed with PC....don't have a lot of info but wondering if green smoothies would be some way of getting nutrition.  Thought maybe some of you warriors could tell me if this would work gastrointestinally speaking.  Tumor not operable at present...located directly on top of the celiac bundle so chemo first attempting to shrink it with surgery a pos...

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                    • inittogether has created a new message board discussion

                      Our 6/13 MRI was STABLE!!!!!  That's the 2nd one in a row that was deemed stable!!  We feel like we're cured!!!  :) Other bright spot...... in light of the stable MRI & with the docs blessings & maxed out on trip insurance......WE WENT TO MEXICO!!!!  We just got back Monday after a 5 day trip that went very smoothly!!!  We went back to our favorite resort & they treated us like r...

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                      About inittogether

                      Caregiver
                      Brain Cancer

                      My 54 yr old lhusband was diagnosed with a GBM on the right motor strip in June 2010, surgery July 2010, followed by 6 weeks Temodar & radiation. Started Temodar cycles 10/27. The tumor was small, they caught it early. Our local docs said it was inoperable but UCLA Ronald Regan Medical Center said differently, thank God! Update MRI 12/27/10 showed recurrence & substantial swelling with complete loss of left side use. Started Avastin that day. MRI 2/7/11 showed SUBSTANTIAL REDUCTION in swelling & the new growth!! Use of left side returned for the most part! Continued with Avastin every 2 weeks & Temodar dosing of 5/23. MRI 5/2/11 STABLE!! Continuing Temodar 5/23 & Avastin every 2 weeks. Stopped Temodar 10/11 & continue with Avastin every 2 weeks.
                      MRI 6/13/11 - STABLE!!
                      MRI 7/25/11 - STABLE!!
                      MRI 9/6/11 - STABLE!!
                      MRI 10/17/11 - STABLE!!
                      MRI 4/16/12 - STABLE!
                      5/29/12 - STABLE!
                      7/9/12 - STABLE!
                      HOPE ALWAYS!!!!

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