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Hi Jads55 2014 this is Jads55 2018??I just thought I would send you this advise be patient take all the advise and help you can .. but most importantly be thankful for what you have a loving family who by supporting you have allowed you to see your grandsons turn 5, your son and daughter turn 30 .. to walk my daughter down the aisle and welcome our new son in law..to celebrate 5 more anniversaries of been married to my beautiful wife.. to appreciate what a great brother and sister I have.It was the hardest thing I have ever done .. and it i still have issues from it but I can handle it..may you enjoy the rest of your life !!
Hey thank you for that I am getting food down.. Well some and on high protein/carb supplements as well to keep weight up .. 7 radios to go 1 chemo so hopefully even though it gets tougher every day and some new side effect hits me I can get through then start to recuperate.. What I have to watch is my mood swings been a bit grumpy especially with the nurses etc lately.. And they are so lovely!
Thanks Susan, I do appreciate your feedback.. Just finished week so 10 more treatments and 1 lot of chemo to go!! I saw the dietician today I have lost 6 kg this week so she has put me on to a high supplement regime as I don't won't to be fed through my nose( as I chose not to get a PEG) yeah I am trying but it is only those that have done it that really know so thanks to all who give me support! Weekend off yeh!! Cheers from Queensland

On Oct 22, 2014 2:58 PM Dlynn1210 wrote:

On Oct 22, 2014 6:36 AM jads55 wrote:

Hi all I am new to this but my daughter says it will be good to share my thoughts..Well the truth is I am finding it very hard..I am in my 5th week of a & week course of radiation everyday and chemo every 21 days..Everytime i think i have been lucky and missed out on aside effect,I get it ! :) Loss of taste is hard,fatigue,the pain in my throat and the mucus causing me too gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also "" target="_blank" rel="nofollow">http://gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also "" target="_blank" rel="nofollow">http://gag.Also " target="_blank" rel="nofollow">gag.Also " target="_blank" rel="nofollow">gag.Also " 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rel="nofollow">gag.Also i look at the lump on my neck and it has gone down a bit but it is still quite large and with just under 3 weeks to go I am really hoping it is working..The good news is my family support is amazing and I am so blessed..I just wish I did'nt get so down sometimes..Going to talk to the psychologist at the hospital on friday I am sure that will help..Anyway I hope others in a similar position are doing well..cheers

Hi Jads -

There are many of us here who had tonsil cancer (squamous cell carcinoma) and many had lymph node involvement.  The treatment for tonsil cancer is one of the toughest for cancer but also one of the most successful.  The treatment is always radiation and often includes Cisplatin chemo.  One thing I would like to point out - they generally flush out through a pic line after your chemo treatment.  This is vitally important to protect your kidneys.   

The most important thing to keep in mind is that our type of cancer is cureable - unlike other types of cancer that are only palatable or have a low cure rate.  Whenever I began to feel a little sorry for myself (as pop pop says, we all go through a pity party even if for a very short time), I would go to the brain cancer section and read some of their postings.  I remember one in particular who wrote how difficult it was to watch her child (her daughter) - watch her child die. Her final post remains with me today - "Our angel now has his wings".  Her six year old grandson had died from pediatric brain cancer.  An oncology nurse said after I received my first all clear post treatment scan "Now you know why we kicked your butt all those months"!  Yes I do - and it was worth every miserable moment of it because I am seven years clear of cancer and living my life to the fullest.

Once you finish chemo, that is as bad as it will get from chemo side effects but as pop pop relayed, you will continue to cook for several weeks (6-8 generally) after your last radiation treatment.  There is light at the end of the tunnel - something many do not have after being diagnosed with other types of cancer - and one day you will realize that the bad days are behind you.  Look for improvements from month to month though rather than day to day or even week to week.  One day you will be cancer free - and that is something to thank God for.  I say quite often that if one has to be diagnosed with cancer, tonsil cancer is the cancer of choice.

I just had my check up two weeks ago.  Per my oncologist they no longer do neck disections because they found that they weren't making a difference but create problems later on.  I don't know if this is true of all cancer hospitals but is of CTCA.  I do know that those who have had neck disections who post on CC have experienced negative side effects post treatment after neck disections.  I did not have one so cannot share personal experience. 

Diana 

Thank you for the positive reply .. You don't know how much it helped ..it has been tough but as you say I am well down the road and look forward to its conclusion. It has been tough on my wife too so she was happy to read your posts.. So even though I feel as I wake up this morning like a truck has run over me??I am going to have some food ,get changed and go to radiation.. My brother and sister have flown over from New Zealand to Australia to "look after me" this week so I have so much to be thankful for..al the best to you

On Oct 22, 2014 2:25 PM PopPop wrote:

Jads55,

I am sorry to read that you are going thru this and having a bit of a rough road in the process. Yes, the treatment is rough, we get hit pretty hard with the Radiation and in your case Chemo.

The loss of taste is a biggy, but try to take in as many calories and nutrition as possible now, your body tries to recover daily, so that is the fatigue factor. We need to drink alot of fluids to flush our bodies, at least 8 glasses of water is the normal, but I found that hard to do at times.

Did you have any Surgery done yet? will there be a neck disection in the future for you with the Lymphnode involved? My surgery was prior to my treatments, each Team of Doctors attacks this differently, but strive for the same results.

You are in the thick of it now and nearing the light at the end of the tunnel with your treatments. Unfortunately, we "Cook" for several weeks afterwards, so you feel the full effects of the treatments then. We slowly start to feel better anywhere between week 4 and week 8. Listen to your body, when you are tired, take a nap. You can do this, many here have, so can you.

Oh, by the way, you are not the only one that has ever gotten down during treatments, many have at one time or another held a "Pity Party" for ourselves, myself included. It is how long of a pity party we hold that is the concern. Get into "Fight" mode and beat this.

My Best to You and Everyone Here

Hi pop pop thanks for prompt reply ..by the way I live in Queensland Australia and I am a new pop to twin boys 1 year old a couple of weeks ago..yes I am going to try to be positive .. I woke up this morning after a bad night and saw the messages for me and thanked God.its my head that is the problem at the moment ..the rest will get better with time.thanks for now ??

Hi all I am new to this but my daughter says it will be good to share my thoughts..Well the truth is I am finding it very hard..I am in my 5th week of a & week course of radiation everyday and chemo every 21 days..Everytime i think i have been lucky and missed out on aside effect,I get it ! :) Loss of taste is hard,fatigue,the pain in my throat and the mucus causing me too gag.Also i look at the lump on my neck and it has gone down a bit but it is still quite large and with just under 3 weeks to go I am really hoping it is working..The good news is my family support is amazing and I am so blessed..I just wish I did'nt get so down sometimes..Going to talk to the psychologist at the hospital on friday I am sure that will help..Anyway I hope others in a similar position are doing well..cheers

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About jads55

Patient
Tonsils Cancer, Lymphoma
Emotional Support, Prevention Tips, Side Effects

Hi I am a 55 year old male in good shape for my age so this diagnosis was abig shock.At the moment into week 5 of radio/chemo and its getting tough

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