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jagerwin's Recent CancerCompass Activity

  • jagerwin has replied to a post on the message board

    Congrats CM, You sound great here. Way to go. Actually interesting to read you are so hungry as I had little appetite by this time in the treatment. Again, good for you. I am sorry you have to have that surgery and I hope the antibiotics do the trick. Yes, the mucus thing is pretty annoying. Hope you have a great thanksgiving. John

    November 23, 2014 view post
    • jagerwin has replied to a post on the message board

      Cheyenne, Glad you are getting along now. Congrats. We were recently discussing Prevident on another thread. You should leave it on/in for at least 30 min before rinsing or eating/drinking. many of us still use it, and I now leave it in overnight. I found Spry sugar free gum to be very handy, b/c I had some serious dry mouth a few weeks after the treatments began. I was chewing so many/day I ordered a bottle of 50...

      November 02, 2014 view post
      • jagerwin has replied to a post on the message board

        Jess, It is so frustrating.  That can make the swallowing even harder b/c you begin to tense up even before you begin.  I have had two dilations. they help, but that help was temporary for me. Still, having several months of easier swallowing then got me to feeling more confident; and, less angry/anxious. Which then helped (since we're talking about eating, I'll call it a postive feedback loop). Also, I r...

        October 30, 2014 view post
        • jagerwin has replied to a post on the message board

          On the left side of this page you should see options to "Add a friend" and "private reply". At the bottom you can "search for others". Indeed, you've found a great site for support. I hope you few side effects. John

          October 23, 2014 view post
          • jagerwin has replied to a post on the message board

            You can buy Boost/Ensure at pharmacies. They do contain some sugar, some think a bit much considering what we're trying to do. You can read the labels and decide. Those you can drink and it's useful to use your throat like that, during the treatments. As you note, that will help with atrophy. Drinking water helps. Soup, etc. I used a medical formula from a medical supply company with my PEG. You can get insurance cov...

            October 23, 2014 view post
            • jagerwin has replied to a post on the message board

              For various reasons, I could not eat soon after the treatments began (neglected to mention I had a stage 4a tonsil/right lymph nodes). I finally got a feeding tube midway. I regret that I waited so long. It saved my life. As I result, I didn't want to have it removed (began eating most of my food by month 10 but kept using the tube off an on into month 16). It seems to be a controversial topic so all I can say is, it...

              October 23, 2014 view post
              • jagerwin has replied to a post on the message board

                Wow, you have a lot going on, and really sorry to read of it. Any one of these is bad enough.  So, I'll reiterate what has been noted already: you need a "total" doctor. someone who will help review and manage the various medications you might take. Watch out for interactions and side affects. I'll just mention that I also used my pharmacists all the time, as a "backup" (Or sometimes, primary source). They're so...

                October 23, 2014 view post
                • jagerwin has replied to a post on the message board

                  A very delayed response (the alert for the last one came in with a batch for another thread I was folllowing.... ). Just to say, 1) yes, this Board has been great for getting "the rest of the story"!  I go to our local support group as often as I can in great part to help the new patients. The doctors seem either overwhelmed or ........ 2) I think it's worth pointing out that similar to you Jeff, I too did NOT...

                  October 21, 2014 view post
                  • jagerwin has replied to a post on the message board

                    Catica, Indeed, congrats on finishing. I suggest trying various ways. As they way, we all react differently. Unfortunately for me, nothing helped much. I tried these and Magic Mouthwash and got little relief. Others did much better. So try each see. I did try with salt. I kind of liked the feeling of salt although again it didn't seem to do much for my mucous. If you end up trying MM, check the formula; apparently t...

                    October 17, 2014 view post
                    • jagerwin has replied to a post on the message board

                      Sorry to read your news. But you have found a great support site. I had a few similar reactions to yours.  And I did like the others. I used the headphones/music. I worked with the techs. They had to bail me out (unlock the mask and let me get up) on the 3rd session but I was able to go back and finish it. I found that on about the 5th session I stopped having those panic attacks. I was given Ativan although I d...

                      October 17, 2014 view post
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                      About jagerwin

                      Survivor
                      Squamous Cell Cancer, Tonsils Cancer
                      After Treatment, Cancer Nutrition, Diet, Emotional Support, Massage Therapy, Side Effects

                      I was diagnosed with a left tonsillar squamous cell carcinonoma, Stage 4a, with some spreading to my right lymph nodes. I received 35 radiation treatments, and 3 Cysplatin chemo treatments; no surgery. This was in Feb/Mar of 2009. I am a bird biologist. I have worked in State Govt as one for 24 years. I used to skydive a lot. I used to play acoustic guitar a lot, and am re-learning to to that. I garden a lot, for birds and butterflies. I love Bouvier des Flandres dogs, although ours was just diagnosed with a Mast cell tumor.

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