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janey6's Recent CancerCompass Activity

  • Janey6 has replied to a post on the message board

    How sad that is! You know your hubby better than MD! Those docs want to control everything. He may have felt you would keep info from his patient, your hubby. Their first duty is to patient. But they should also be aware of sensitivities....this person clearly wasn’t. You know, Hope is a beautiful gift. If has propelled people way beyond limits predicted by docs. He’s so lucky to have you. It’s a terrible disease. M...

    June 27 at 6:36 PM view post
    • Janey6 has replied to a post on the message board

      My husband used Viscous Lidocaine before eating. Also lasts a short time but enough for him to have dinner. You’ll need a Rx. It’s almost tasteless clear liquid. Kind of thick and we used a long Qtip to apply. It’s a tough situation.......try as many suggestions as you can stand. This worked for my sweetheart. Janey

      June 21 at 3:46 PM view post
      • Janey6 has replied to a post on the message board

        I’m happy to hear your mom has someone to advocate for her. And care for her in a loving way. It means so much to have an accomplice in the fight against this badass disease. My husband got some relief from his ascites when they “tapped” his abdomen. Once they got out 6 liters of fluid. It’s a comfort measure and the fluid does come back but he had less pressure on diaphragm and respiratory status improved. He also w...

        June 20 at 3:50 PM view post
        • Janey6 has replied to a post on the message board

          Hi Lisa, It sounds like you and hubby have been through a lot already. The positive lymph nodes on top of pancreas may be the reason they want to remove head of pancreas. That’s the problem my husband had. Tumor was around major blood vessels...he wasn’t candidate for Whipple as he had metastasis all over. After the Whipple, it’s a big surgery, chemo is suspended to allow healing...I think that may still be the pro...

          May 09 at 10:22 PM view post
          • Janey6 has replied to a post on the message board

            Just be careful of swallowing problems as time goes by. My hubby had several aspiration pneumonias after 5 yrs NED. Fibrosis seems to keep forming. He had to get tube after 5 yrs. RT, a gift that keeps on giving. HPV+ cancer is less aggressive. Most cancer centers are using less intensive RT because the side effects are worse than chemo.....and they continue forever.

            April 11 at 10:54 PM view post
            • Janey6 has replied to a post on the message board

              Hello Barn, I hope you’re feeling better. Of course the decision to continue treatment is yours to make. The side effects of chemo can usually be managed with good medical care. My husband found that Zofran helped greatly with nausea. I’m sure your family and friends would like to have you in their lives for as long as possible. Best wishes to you. Janey

              March 14 at 2:53 PM view post
              • Janey6 has replied to a post on the message board

                Wow! So many post radiation patients with feeding tubes. My husband also. He was HPV +. Has anyone heard or seen studies that offer treatment of Head and Neck cancer with less radiation? I've heard that MD Anderson is offering something that may reduce awful side effects of radiation. Of course it is for certain pts, I'm not sure what the criteria is. I've also read that University of Pa does a robotic surgery to rem...

                March 07 at 4:51 PM view post
                • Janey6 has replied to a post on the message board

                  Very very funny. I’m telling my husband that.

                  February 14 at 5:13 PM view post
                  • Janey6 has replied to a post on the message board

                    My husband can’t eat or drink at all now. Seven years ago he had 70 Grey IMRT for SCC of tonsil. He was fine until 8 mos ago. Fibrosis built up in his throat over the years. He now had a PEG tube. RT, the “gift” that keeps on giving. Many post Head and Neck cancer patients are saddled with this outcome. ..........We’ve been told that the focus of Tx is to de-intensify the RT now. Too bad my hubby missed that boat. It...

                    December 13 at 11:29 PM view post
                    • Janey6 has commented on a news story

                      My husband has gone through hell. HPV squamous cell cancer of tonsil. Radiation killed cancer and also his ability to swallow. Tube feedings for the rest of his life. Wish he could have had vaccine.

                      November 01 at 3:10 PM view news story
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