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janey6's Recent CancerCompass Activity

  • Janey6 has replied to a post on the message board

    Hi Lisa, It sounds like you and hubby have been through a lot already. The positive lymph nodes on top of pancreas may be the reason they want to remove head of pancreas. That’s the problem my husband had. Tumor was around major blood vessels...he wasn’t candidate for Whipple as he had metastasis all over. After the Whipple, it’s a big surgery, chemo is suspended to allow healing...I think that may still be the pro...

    May 09 at 10:22 PM view post
    • Janey6 has replied to a post on the message board

      Just be careful of swallowing problems as time goes by. My hubby had several aspiration pneumonias after 5 yrs NED. Fibrosis seems to keep forming. He had to get tube after 5 yrs. RT, a gift that keeps on giving. HPV+ cancer is less aggressive. Most cancer centers are using less intensive RT because the side effects are worse than chemo.....and they continue forever.

      April 11 at 10:54 PM view post
      • Janey6 has replied to a post on the message board

        Hello Barn, I hope you’re feeling better. Of course the decision to continue treatment is yours to make. The side effects of chemo can usually be managed with good medical care. My husband found that Zofran helped greatly with nausea. I’m sure your family and friends would like to have you in their lives for as long as possible. Best wishes to you. Janey

        March 14 at 2:53 PM view post
        • Janey6 has replied to a post on the message board

          Wow! So many post radiation patients with feeding tubes. My husband also. He was HPV +. Has anyone heard or seen studies that offer treatment of Head and Neck cancer with less radiation? I've heard that MD Anderson is offering something that may reduce awful side effects of radiation. Of course it is for certain pts, I'm not sure what the criteria is. I've also read that University of Pa does a robotic surgery to rem...

          March 07 at 4:51 PM view post
          • Janey6 has replied to a post on the message board

            Very very funny. I’m telling my husband that.

            February 14 at 5:13 PM view post
            • Janey6 has replied to a post on the message board

              My husband can’t eat or drink at all now. Seven years ago he had 70 Grey IMRT for SCC of tonsil. He was fine until 8 mos ago. Fibrosis built up in his throat over the years. He now had a PEG tube. RT, the “gift” that keeps on giving. Many post Head and Neck cancer patients are saddled with this outcome. ..........We’ve been told that the focus of Tx is to de-intensify the RT now. Too bad my hubby missed that boat. It...

              December 13 at 11:29 PM view post
              • Janey6 has commented on a news story

                My husband has gone through hell. HPV squamous cell cancer of tonsil. Radiation killed cancer and also his ability to swallow. Tube feedings for the rest of his life. Wish he could have had vaccine.

                November 01 at 3:10 PM view news story
                • Janey6 has replied to a post on the message board

                  I hope the “circulating” cancer cells can be irradiated by chemo. Pancreatic tumor is NEGATIVE. Lucky you. You needed that Bx. Best wishes to you.

                  October 25 at 10:16 PM view post
                  • Janey6 has replied to a post on the message board

                    Edward, So sorry to hear of your painful eating experience. My husband used a liquid called Lidocaine. It’s transparent liquid that reduces sensation of mucous membranes. You’ll need a Rx from your MD or nurse. You paint the painful area with QTip before eating....it helps a bit. Best to you......cold foods? Janey

                    October 25 at 12:44 AM view post
                    • Janey6 has replied to a post on the message board

                      Hello Neddy, My husband was in similar straights. Very thin. MD said malnourished. He had to have the PEG inserted and is gaining wt slowly. He uses Osmolite 1.5 Cal. It comes in higher concentrations 2.5 Cal. Before the PEG insertion, he was weak lethargic and looked awful. Muscle wasting due to malnourishment. His dietician from hospital has him on 2 cans of Osmolite 3 times and day and one can before bed. He uses...

                      October 25 at 12:36 AM view post
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