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jdaaf's Recent CancerCompass Activity

  • Jdaaf has replied to a post on the message board

    I was DX 2004 GBM left frontal lobe had surgery started celebex 800 mg per day through six weeks of radiation. Six months in to treatment the Doc put temadar on the table he called it the double barrel while still taking celebrex.  the temadar five days on and 28 off after about two months the small crescent area in the tumor bed started to disappear until it was gone. My MRIs have been clear ever since, so...

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    • Jdaaf has replied to a post on the message board

      In March of 2004 I had surgery left frontal lobe GBM tumor fully removed went on a clical trial celebrex 6 wks radiation continued celebrex for the first 6 months with mris every 2 months there was a cresent shaped area in the bed that the tumor was removed from. I was told that it could be scarring or cancer cells while on celebrex the crecent did not change or shrink in November My NO recommended temadar 5/26&...

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      • Jdaaf has replied to a post on the message board

        I hope your getting treatment at a hospital with a brain tumor unit and have a nuero oncolagist and If your doctor can't be reached quickly or does not get back to you in a timely manner about the dose then I would find another HP with a Brain Tumor Unit they have NOs that specialize in brain tumors and return phone call quickly. I went to Mass General in Boston they have a brain tumor unit. I had surgery ...

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        • Jdaaf has replied to a post on the message board

          I'm still fatigued from radiation treatment 8yrs ago or it could just be the kids : )

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          • Jdaaf has replied to a post on the message board

            I was dx GBM IV left frontal lobe at MGH Boaston March 2004 they said the standard of treatment would not work, you would live 12 to 18 months.  After surgery complete removal, they put me on clinical trail celebrex 800 mg per day on and though radiation.  After the first six  months MRIs every 2 months with no change the FDA appoved temodar and they gave that to me for 2yrs along with the ce...

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            • Jdaaf has created a new message board discussion

              Just wanted to say Hi, I'm still here, I didn't kick the bucket yet !  Back in March 2004 I was dx with a GBM in my left frontal lobe, it was removed cleanly. "Thanks Dr Medlock"  I went on to my N.O. Dr Plotkin who put me on a clinical trial using Celebrex 800 mg daily along with radiation 6 wks after 6 months Temedar was added to the mix 5 day on 28 off for 2yrs had improving MRIs until they&nbs...

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              • Jdaaf has created a new message board discussion

                what is a meffililiated tumor ?

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                • Jdaaf has replied to a post on the message board

                  ok since I plan on being around for at least another 20 or 30 years have you got some stats on that? john

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                  • Jdaaf has replied to a post on the message board

                    that's great your 6yrs out congrats John

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                    • Jdaaf has replied to a post on the message board

                      the docs did surgery removed entire tumor left frontal lobe but the docs said that the standard treatment at the time 2004 would not work on a GBM (grow back) they gave me six different clinical trials to choose from but it was all jiberish to me I asked my NO witch I should choose he said Celebrex, no side effects its a anti inflamator med if you think of the tumor as an inflamation that was how it was goi...

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                      About jdaaf

                      Patient
                      Brain Cancer
                      Acupuncture, Support

                      My name is John I'm a 6yr survivor as of March 23, 2010

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