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jdlinder's Recent CancerCompass Activity

  • jdlinder has created a new message board discussion

    I been trying to get the chemo avastin from my hospital but they are telling me its $5000 but my insurance company is telling me it is approved. What do I do? 

    April 09, 2015 view discussion
    • jdlinder has replied to a post on the message board

      Yes in small doses also with interferon and leukine. I will be starting this regimen in oct. Already done folfirinox and abraxane/gemzar. My doctor had me on these chemos for only 4months at a time so I won't get resistant to any of them.

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      • jdlinder has created a new message board discussion

         Ifosfamide, Mesna, Doxil and abraxane? 

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        • jdlinder has created a new message board discussion

          Hi everyone, Quick question...I am now on Gemzar/Abraxane, Interferon, and Leukine. My liver panel was fine last week but this week they went up and I am not sure why. My AST is 81, ALT 144 and Alk Phos.-162. What would cause a sudden increase in my levels in one week? Anyone else have this problem? Would love to hear your input! Thanks so much! Jodi 

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          • jdlinder has created a new message board discussion

            Hello I've been on gemzar/abraxane for the last 2 months and my ca19 was down to 9.6. My doctor by accident took my ca19 the next week, only a week apart from each other and it jumped to 17.6. Should I be concerned??

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            • jdlinder has replied to a post on the message board

              Hello my sister also has pancreatic cancer she is 42. She is 7months with this disease and going GREAT!!We live in ft lauderdale and we actually work with two Doctors Dr Israel wiznitzer at university of miami in plantation and Dr Ben Chue in Seattle. Both are amazing!!  google Dr Ben Chue. We first started with Dr Roche lima at university of miami but felt Dr Chue was more of a fighter. Good luck with your brot...

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              • jdlinder has created a new message board discussion

                Has anybody ever tried this with gemzar/abraxane?

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                • jdlinder has replied to a post on the message board

                  Dr Ben Chue in Seattle

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                  • jdlinder has created a new message board discussion

                    So, my last ca19-9 levels were normal 33.Yay!!! But I still have a 2×2.9cm tumor on my pancreas and 2 spots on my liver. I have been on folfirinox for 5 months and folfiri for the last 2 months due to neuopathy. I am getting a Splenic Arterial Embolization done next month for my enlarged spleen and to keep my platelets up during my next months of chemo. Any thoughts on what else I can do to decrease the tumor s...

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                    • jdlinder has created a new message board discussion

                      Do you stay with your oncologist who has statistics of 1 to 2 years? I was on folfirinox for 9 treatments and the last 4 with folfiri because of neuropathy. After the 12th chemo, My scan showed 2 small liver lesions left(from multiple)and a 2cm tumor on my pancreas(started at 3.3 cm). I asked my doctor if we can add Interferon or switch the chemo to GAX so I don't get resistant to Folfiri. He said he doesn't do that,...

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