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jesimesi's Recent CancerCompass Activity

  • jesimesi has created a new message board discussion

    My PCP ran tests after we found the mass on my liver. My 5 HIAA was normal, but my Chromogranin A was elevated. 2x the less than value. I've had carcinoid syndrome symptoms for years. Test results were back Nov 19. Anyway he has sent me a referral to the GI doc, but he can't see me until February! I've talked to the staff and nurses multiple times, but they won't see me any sooner! I live in the U.S. and have insura...

    December 07, 2015 view discussion
    • jesimesi has created a new message board discussion

      I'm having a lot of abdominal pain. The stuff I usually take is no longer helping. I am taking dicyclomine, gasx, mylanta, and Tylenol. I also take a probiotic and Zofran for nausea. I cannot take levsin because it makes me unable to urinate. Normally a combination of these things help, but not lately as my symptoms become stronger and more frequent. I tried some peppermint/ginger tea. It seemed to help for a little ...

      October 22, 2015 view discussion
      • jesimesi has replied to a post on the message board

        We have a plan! I called and talked to someone at Ochsner's today. We are going to stop all testing here to prevent insurance from denying future claims. After Nov 1st (when my insurance kicks in) we will go to Ochsner's for further evaluation/diagnosis/treatment. Someone from there is supposed to call me tomorrow to discuss details. I feel better having a sort of plan in place. It's just 2 weeks. I can do this.

        October 07, 2015 view post
        • jesimesi has replied to a post on the message board

          I would love to, but I have no insurance. It starts November 1st.

          October 06, 2015 view post
          • jesimesi has created a new message board discussion

            Background: For the last 14+ years I've had "spells". Always after eating. Dizziness, nausea, flushing, diarrhea, fainting, vomiting (sometimes), and followed up with lots of urinating (as in a bladder full every 5 minutes for an hour). They did not occur often enough to be a huge hindrance until 5 years ago. I lost a lot of weight really fast. Everything I ate either went through me or came back up. I saw a neurolo...

            October 06, 2015 view discussion
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