Loading...

johnnyo's Recent CancerCompass Activity

  • JohnnyO has replied to a post on the message board

    Not a lot to go on here, but I'm assuming headn/neck treatment here.  Have they scanned the parathyroid glands, and if not, they should.

    January 29, 2019 view post
    • JohnnyO has replied to a post on the message board

      Hi Mike - 6 years post-treatment here.  My advice would be to not push yourself too much.  I was feeling great and decided to go back to lifting weights.  After a week, I felt like it set my energy recovery back for a month or more! Eat, eat, and eat, all the calories you can.  Protein shakes, fats and good carbs (skip the sugar and junk).  Google diets for people trying to gain weight.&nbs...

      September 03, 2018 view post
      • JohnnyO has replied to a post on the message board

        Hi there - I had surgery first, including removal of both tonsils, a part of the base of my tongue (the primary), and a neck dissection to remove a bunch of lymph nodes (not just the infected ones).That was followed by radiation, which was supposedly a lower dose than I would have received if I had not had the surgeries first, and that is why I decided to go that route (my second opinion facility suggested only radi...

        July 20, 2018 view post
        • JohnnyO has replied to a post on the message board

          I've never tried, but I agree that insurance should cover it.  I any other organ/body part were damaged by the radiation, your insurance would cover it.  Teeth are generally not subject to coverage because they are so susceptible to decay with improper maintenance, but this is not a maintenance issue. If I end up with teeth issues due to radiation, I would push my doctor and the insurance companies for cov...

          October 25, 2017 view post
          • JohnnyO has replied to a post on the message board

            Surgery without a biopsy?  Talk to someone else.  Sounds like the cart before the horse to me.

            October 25, 2017 view post
            • JohnnyO has replied to a post on the message board

              Are your kids in college? FWIW, as I was reading I came to the same conclusion as the internist:  anxiety.  And either as a cause or an effect of your anxiety, it sounds like you might be sleeping in an awkward position that is aggravating your neck/ear/jaw/carotid, etc... It's certainly not a typical cancer presentation, and the anxiety makes more sense to me given your symptoms (some coming and going). ...

              October 25, 2017 view post
              • JohnnyO has replied to a post on the message board

                While I don't doubt your fear, I think you will be better served by a mental health professional than an ENT.  THree weeks ago you were diagnosed with ulceratvie colitis which you thought was cancer.  With repsect to the bumps on your tongue,  the docs told you that you have strep throat and you refuse to believe them, again, thinking that you have cancer.  Your ulcerative colitis is indicative of...

                September 28, 2017 view post
                • JohnnyO has replied to a post on the message board

                  I'm so glad you decided to start using the tube with the Ensure.  I tried to comment for you to do that after you first posted, but the website had some sort of technical issue that wouldn't allow posting. Nothing is as important as energy for getting through this treatment.  While I didn't have a feeding tube, I forced myself to eat far beyond the point of feeling satiated.  Use the feeding tube, and...

                  September 28, 2017 view post
                  • JohnnyO has replied to a post on the message board

                    Hey,  Before I started treamtment I was told that after treatment I should try to avoid dental treatments such as extractions and caps, hence the prescription for fluoride toothpaste to prevent cavities.  So I'm glad to know you had success with two crowns. But, yes, under the circumstances, if the swelling is not down in a few days, at least go back to the dentist.  Let us know what happens.

                    September 26, 2017 view post
                    • JohnnyO has replied to a post on the message board

                      Hey George - 10 years ago is a relatively long time, so I would discourage anyone newly diagnosed to assign too much weight to your experience.  In my experience ( 5 years out), the docs were, of course, primarily interested in getting rid of the cancer, but also were very focused on quality of life afterwards.  So they did a very targeted radiation and, I assume, a "targeted" neck dissection, avoiding thi...

                      September 20, 2017 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About johnnyo

                      johnnyo has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.