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johnnyp's Recent CancerCompass Activity

  • JohnnyP has replied to a post on the message board

    dumbcritic: Author information 1a Department of Medical Oncology , School of Medicine, Altinbas University , Istanbul , Turkey.2b ChemoThermia Oncology Center , Istanbul , Turkey.

    April 11 at 2:59 PM view post
    • JohnnyP has replied to a post on the message board

      In case anyone has not seen it, a case study from Dr. Slocum's clinic in Istanbul of stage 4 breast cancer treatment: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5589510/

      March 31 at 10:14 AM view post
      • JohnnyP has replied to a post on the message board

        Daniel: I see the University of Basel has patented the combination: https://patents.google.com/patent/EP2663298A1

        March 31 at 9:45 AM view post
        • JohnnyP has replied to a post on the message board

          J: Yes, Shirley was very upset.  She didn't understand how she could be "doing so much better" yet the cancer is growing.  That didn't make sense to her. Yes, carbs are non-essential, but she insists this or that fruit or vegetable has "nutrients".  To her credit, she does understand she must be very low carb.  She tries to stay under 20g/day, about double what I would like.  The strict ket...

          March 30 at 10:25 AM view post
          • JohnnyP has replied to a post on the message board

            Progression.  That's the word.  So, pending approval from insurance, she's going to start on another pill, abemaciclib. http://www.ascopost.com/issues/may-25-2017/abemaciclib-active-in-metastatic-breast-cancer/ We also asked about getting Metformin, and were very surprised when she wrote the prescription and fulfilled it from their internal pharmacy.  It's a very low dose, 250mg twice a day.  Bo...

            March 27 at 12:33 PM view post
            • JohnnyP has replied to a post on the message board

              J: Shirley's CA15-3 marker continues to rise, was 52 last month, now is 55.  High normal is 25. Searching shows that marker is related to mucin 1, or MUC1. Found a paper on its inibition: "Inhibition of the MUC1-C oncoprotein is synergistic with cytotoxic agents in the treatment of breast cancer cells" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3571994/ FWIW, I sent it to our oncologist and her research ...

              March 25 at 9:45 PM view post
              • JohnnyP has replied to a post on the message board

                I told her we sould think about metformin.  I'm pre-diabetic.  My PCP may write a prescription for me... If not, I could ask my cousin in Yuma to cross the border.  I have heard it's available without a prescription. Until then we have ordered Berberine.  And she has agreed to take the nanocurcumin I bought, against the wishes of her oncologist.  When we asked her about it, she read the lab...

                March 18 at 12:05 AM view post
                • JohnnyP has replied to a post on the message board

                  J: We just spoke by phone with Shirley's radiation oncologist, who had ordered the PET scan. He said no new tumors, but the SUV went up in the lymph nodes, but they are smaller. He offered no explanation for that, saying he wasn't sure what to make of it. I asked about the tumors in the bones.  He said the area he treated is stable, the ones in the ribs are painful but not to worry about because they are not...

                  March 15 at 7:21 PM view post
                  • JohnnyP has replied to a post on the message board

                    I found an online viewer: https://www.dicomlibrary.com/ I see activity, but don't have the images from her first two PET scans to compare, so I don't know if it's better or worse. We'll have to wait for the report and the consult.

                    March 10 at 8:24 PM view post
                    • JohnnyP has replied to a post on the message board

                      Does anyone know how to view PET scan images? I posted the question on a google group: https://groups.google.com/forum/#!topic/comp.protocols.dicom/CCM7XYPjy5Q

                      March 10 at 7:08 PM view post
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