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jujubean's Recent CancerCompass Activity

  • JuJuBean has created a new message board discussion

    Getting the dialysis perm cath out today. My access is doing well. It's only been 8 months minus one day since my last shower. I'm really gonna' miss the luxurious sink baths LOL! Luck and love, JuJu                                                       &n...

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    • JuJuBean has replied to a post on the message board

      Same here. Itch all over, rash only on my torso.Will continue since I've had to space out the Velcade to accommodate my fragile body LOL. I'd would consider the rash very extensive on my torso. It drives me crazy, but my #s are terrible without taking anything.I use baby diaper rash cream which seems to help Or Beaudreau Butte Cream. Someone told me the other day their significant other used good ole Vicks Vapor Rub....

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      • JuJuBean has replied to a post on the message board

        My sister passed away in1957.There are still times when something very ordinary happens and I want to tell her. I believe it is the way God let's us know that they are still among us. At this time it gives me a warm feeling. Luck and Love, JuJu 

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        • JuJuBean has replied to a post on the message board

          Thanks Linda! Got the cast off today.  My arm feels really weird. .the ortho said it would be a month at least. It looks like a mummy arm LOL but it doesn't hurt and he  said I could drive. Luck and Love, JuJu BTW Haven't heard from the directors of the message board. Oh Well

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          • JuJuBean has created a new message board discussion

            Since my last post I;ve had a broken ankle,Gall bladder removal and am hoping to get the cast off a broken wrist on Monday. This from a Kappa Light Chain MM patient. All of the bone tests have been negative...absolutely no pain. Well saw the Oncon on Wednesday and he bellieve that my fragile body is sufficiently healed to rev up my chemo...I've been on Revilimid mosst of the time, taking it twice a week after dialys...

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            • JuJuBean has replied to a post on the message board

              You evidently have no idea what a renal diet consists of. And for that you should be eternally gratefull. I choose not to debate this issue, as I find it non producctive and mostly self serving. As in my earlier reply, This is really my sign off on this thread. Luck and Love, JuJu

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              • JuJuBean has replied to a post on the message board

                Different strokes for different folks...this is more evident for medical. It sounds as though this thread is beginning to become a forum of the Proper Treatmeant for "Me" AND BECOMING A LITTLE CONFRONTATIONAL'MY REGIME IS BETTER THAN YOUR S". I prefer the upholding of what the individual is confronting and am so thankful for the many wonderful and caring friends I've made on this forum. Therefore I am checking out of...

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                • JuJuBean has replied to a post on the message board

                  I enjoyed your share. It is wonderful that you have the where with all to follow this holistic approach. I agree completely with your mind over matter. My MM has almost taken a back seat in the past few months. Since leaving hospital in Dec (where I began dialysis) i've been dealing with a very restricted renal diet, a fractured ankle, May 4 had emergency gall bladder surgery, dealt with fistula placement with angio...

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                  • JuJuBean has replied to a post on the message board

                    Great to hear your news. Keep that good karma pouring in.  I've been trying for the self empowering thing but that damn broken ankle has turned me into a screamin' mimi. If the Ortho takes the cast off April 30 (next Monday) I'm home free. If I have to crawl on my belly like a snake. Keep us informed. You can't know how wonderful it makes us feel to hear the success stories. Luck and Love, JuJu

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                    • JuJuBean has replied to a post on the message board

                      Update: Will start Rev Tues and thurs after dialysis, Velcade every other week with Dex. You'll never believe this, but my Kappa Light Chains went from  83 to 17 on that sporadic dose of Rev. God works in myesterious ways. Amen. Luck and Love, JuJu                  

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                      About jujubean

                      Patient
                      Multiple Myeloma
                      Cancer Treatments

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