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julesgreenb's Recent CancerCompass Activity

  • julesgreenb has replied to a post on the message board

    Hi Vivian, He really is a fighter. Is that chemo for asbestos caused cancer? Is it helping his lungs? I totally empathize. I'm using a walker because the cancer in my back is causing me a lot of pain. I'm going to do some radiation starting end of October to hopefully alleviate some of the pain. But doing radiation means taking a break from chemo and my lungs and liver are worsening and need the chemo. It's such b...

    October 16, 2016 view post
    • vtoole

      vtoole Hi Julia...looks like you might have sent a private email back to me, but it says Error- File Removed.

      October 22, 2016
  • julesgreenb has replied to a post on the message board

    Sorry I was asking Bonnie.

    October 11, 2016 view post
    • julesgreenb has replied to a post on the message board

      What was your experience with Cabo/nivo? That's not what you meant by immunotherapy right? Did it work for a while? What about side effects? Julia

      October 11, 2016 view post
      • julesgreenb has replied to a post on the message board

        Hi Bonnie, Would you mind sharing what treatments your father has done over the years, especially those that you believe worked the best for him? I'm at 2 1/2 years and 6 1/2 sounds great to me right now. Thanks! Julia

        October 10, 2016 view post
        • bnelson

          bnelson HIPEC surgery was the best thing my dad did. you want to have it done at the best hospital with the best surgeon. He did avasitin and xeloda for 3.5 years. Before HIPEC surgery did cisplatin xeloda. Didn't work. platinum resistant. Before avasitin & xeloda he did irenotecan only 2 tx. hated it. 09/15 started erbitux. Didn't work. He got into a clinical trial in Bethesda, MD 02/16 he was on Nivo/Cabo. didn't work.

          October 11, 2016
      • julesgreenb has replied to a post on the message board

        Hi Reggie, His treatment sounds right. Many of us started with that one (FOLFOX or 5 FU)and found it effective. I'm doing a totally different chemo now but that's because over two and a half years in treatment those aren't working for me any more. Glad he is tolerating it well. That part varies. Regarding diet, I was vegetarian for 25 years prior to my cancer diagnosis and it was my oncology naturopath who told me ...

        October 03, 2016 view post
        • julesgreenb has replied to a post on the message board

          We are here for you Christobelle. :-) Julia

          August 22, 2016 view post
          • julesgreenb has replied to a post on the message board

            Do you know which chemo your boyfriend will be getting? They are all different. Most of us have gone through chemo, many of us more than one. As the docs will tell you everyone is different so no two people will have exactly the same reaction. Plus the dose is a factor. I usually end up having a lot of side effects after the first round then my oncologist lowers the dose a bit which helps a lot. Other people find the...

            August 22, 2016 view post
            • julesgreenb has replied to a post on the message board

              Hi all, After eight rounds of FOLFIRI it has stopped working and my tumours are once again growing and spreading. My oncologist is suggesting we try the next in line for colon cancer since my tumours have responded relatively well to the first two, FOLFOX and FOLFIRI. Cetuximab is not chemo per se but a targetted antibody, but it hasn't been found to be effective if the KRAS gene has mutated, so my tissue is c...

              August 06, 2016 view post
              • julesgreenb has replied to a post on the message board

                Hello Greygay, I hear where you are coming from. I too am not Christian, don't believe in hell, have spoken to my home nurse about the new doc assisted dying law here in Ontario, have attended a full day workshop on end of life options and issues, and spent a year in the care of an naturopathic oncologist in which I took many of the suppliments you listed including injecting myself with iscador. That said, i mu...

                July 20, 2016 view post
                • julesgreenb has replied to a post on the message board

                  Hi Vivian, Your journey continues to amaze me. I don't know if I could go through everything your husband has and be as well as he seems to be. How does he tolerate it? I always suffer so much, although in Februrary radiation completely cured months of excrutiating pain caused by enlarged abdominal nodes pressing on nerves in my back and squeezing my ureter closed. I also had to have a nephrostomy on my left kidney....

                  July 16, 2016 view post
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                  About julesgreenb

                  Patient
                  Bladder Cancer, Colon Cancer, Other Cancer
                  Cancer Treatments, Clinical Trials and Research, Side Effects, Support, Surgery

                  I have metastasized urachal cancer. I was diagnosed in early 2014 and during that year had chemo, radiation and surgery. Since then I've done alternative treatments, a phase one clinical trial that didn't work for me and two more chemos, one worked temporarily, the other in prgress as of fall 2016. I've had a lot of pain and discomfort from this cancer.

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