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justblonde's Recent CancerCompass Activity

  • justblonde has replied to a post on the message board

    Glitzy, I will be praying for you and your family. Julie

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    • justblonde has replied to a post on the message board

      South Carolina-Mom stage IV GBM

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      • justblonde has replied to a post on the message board

        Hi Peggy, Thank you for sharing your story. My Mom has GBM, I am trying to find out what to expect and try to keep my Dad informed. It is so hard to have no idea of what we can expect. My Dad was saying this same thing to me today. I told him the things I had read on here and that I would continue to read. I will be praying for you, your family, and all the others on CC these stories are very sad and difficult to...

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        • justblonde has created a new message board discussion

          My Mom is again having very bad bone pain in her arms and legs. My dad called Dr. today was told again they had never heard of any patient having bone pain caused byAvastin. My Mom says her arms and legs hurt so bad cry. My Dad has to help her get out of the bed and also dress. This is not constant rather comes and goes. May last half a day and then stop for a day then return.

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          • justblonde has created a new message board discussion

            When on Avastin why would treatment change from every two weeks to every three? MRI report says there is shrinkage but also periventricular deep white matter changes consistent with chronic microangiopathy. The Dr won't say anything negative in front of my mother, which I'm thankful for but it leaves alot of unanswered questions.

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            • justblonde has replied to a post on the message board

              Thanks so much for the info. we will ask the dr about the calcium on her next visit. Praying for you.

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              • justblonde has replied to a post on the message board

                Praying for you too and Thanks.  

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                • justblonde has replied to a post on the message board

                  My moms Dr is just an oncologist. Can you explain caution with the Avastin? My mom was using both temodar and avastin together until her 5 day cycle made her sick and she could not continue after only 3 days.

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                  • justblonde has created a new message board discussion

                    My mom had to stop the temodar after 3 pills because she was so sick. Her dr is now only giving her Avastin every other week. She is scheduled for MRI Aug 13th. The Dr has told us that they will not do anymore surgery when the regrowth starts (If it hasn't already). What will happen when the tumor starts to grow again. We were told it had to be removed because of seizures and brain swelling. Will this not happen when...

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                    • justblonde has created a new message board discussion

                      My Mom has been has alot of pain. She started Temodar 250mg for 5 days but was very sick. Today the Dr. said to take Avastin every two weeks and he will decided again in two weeks if she should try to take temodar again. She can't even raise her arms up to put clothes on. Her arms, shoulders, and legs all hurt with bone pain. Dr. says this is not from the Temodar. Has anyone else had this problem?

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                      About justblonde

                      Caregiver
                      Brain Cancer
                      After Treatment, Cancer Treatments, Chemotherapy, Side Effects, Support

                      My mom has GBM-4 in the right temporal lobe. She fell during the night 2/27/2013 was admitted to the hospital after MRI the next day. Had craniotomy, resection, and diagnosis 3/5/2013. What a shock had no symptoms before fall (probably seizure. 4/1/2013 started radiation. She will be starting Temodar 42 days 4/9/2013 and Avastin once every other week for 1 year.
                      My dad will take care of her. My parents are both only 66yrs old. I go to the dr. appt with them and try to take notes. We have no idea what to expect. Dr said they want to focus on positive only. We do too but need to be prepared. My mom was able to complete the 42 days of Temodar and the 6 wks of radiation too.

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