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kak123's Recent CancerCompass Activity

  • kak123 has replied to a post on the message board

    I am weary and feel like we are being lied to. We have been going through this for just over a year, I can't imagine 16 years. My husband has inoperable base of tongue cancer with mets to nodes. He finished his radiation and chemo june of 2018. his first pet scan showed a mass in the lung so a biopsy showed nothing significant and to wait and watch. his 2nd pet showed lung mass was gone but he has a new one near his ...

    January 29 at 8:21 PM view post
    • kak123 has replied to a post on the message board

      It sounds like your Dad would benefit from a G tube for nutrition. The radiation and chemo will make it more difficult for him to take food by mouth. Hope he does well with his treatments.

      January 24 at 9:38 PM view post
      • kak123 has replied to a post on the message board

        Just checking back to see how you are doing. I hope you have found some/any coping mechanisms. I'm at a point also that there are days that I don't think I can go one. My doctor has put me on antidepressants, valium and I attend a support group - still not enough. But we push on because we must. The person we loved most in the world do longer exists so we go on for them.

        January 03 at 1:36 AM view post
        • kak123 has created a new message board discussion

          My husband finished treatment for inoperable base of tongue cancer in June '18. First Pet scan showed mass in lung and BX was inconclusive. Anyway Pet scan done last week showed lung mass has resolved, thank God but his tongue cancer has returned. He is now scheduled for a MRI. Has anyone else had treatment for a recurrent inoperable base of tongue cancer? Thanks for any input

          December 12 at 8:26 PM view discussion
          • kak123 has replied to a post on the message board

            I have been off the board for awhile.....needed a break. My husbands BX showed inflammatory cells only - not cancer but I dont believe it as his labs say something else. He will have another Pet/CT the first week of Dec. The good news is that he is starting to eat!!!!! We have not used the gtube in 2 weeks. He has had swallow therapy and was afraid to start eating. I told him one day that I would not use the tube aga...

            November 17 at 10:09 PM view post
            • kak123 has replied to a post on the message board

              Seems like most kidney cancers are found incidentely. My husbands was originally seen on a CT 7 years ago - we were not told - he was in the hospital for another issue. Last November 2017 he had another CT of abdomen again for something else and the kidney mass was 5.5cm. His R kidney was removed. He stayed 1 night in the hospital and they did not do it robotically. He has done fine with the one kideny - it is the re...

              October 16 at 7:32 PM view post
              • kak123 has created a new message board discussion

                Has anyone had experience with an Oncologist handing out 3 pamphlets with different types of chemotherapy treatment and asking the patient to read the info and choose the therapy that seems most appealing?

                October 15 at 11:30 PM view discussion
                • kak123 has replied to a post on the message board

                  i am sure you have read some caregivers posts and have realized what a difficult role it is. We wear many different hats during this process sometimes almost too much to bear. Even knowing that it helps for just a few minutes before we are thrown back into the role. We all feel your pain, loss and frustration. I know you have heard that you need to take care of yourself but that is easier said than done. I have been ...

                  October 12 at 4:22 AM view post
                  • kak123 has created a new message board discussion

                    Does anyone have experience with a lung biopsy that missed the cancer?  My husband just finished treatment for base of tongue cancer. Pet scan prior to treatment showed a nodule in R lung. Pet scan after treatment showed nodule now a mass. Biopsy showed inflammation only. Dr is still suspicious and will repeat Pet scan in Dec. His WBC is 2.4 and ferritin levels over 1000, that has to mean something. ...

                    October 10 at 4:07 AM view discussion
                    • kak123 has replied to a post on the message board

                      What a wonderful support site this is. I appreciate all responses to my husbands very complex issues. There are so many Drs. involved and additionally the remaining kidney is not functioning well so treatment choices are limited. Thank you for the support

                      October 04 at 6:23 PM view post
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                      About kak123

                      Caregiver
                      Head and Neck Cancer, Kidney Cancer, Lung Cancer, Esophageal Cancer
                      After Treatment, Cancer Treatments

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