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kat228's Message Board Messages

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Hi, My husband was also diagnosed with stage 4 pancreatic cancer on February 28, 2013. He has been on Folfirinox for 19 sessions and Folfuri for 11 sessions. The CT scans in December 2013 and May 2014 are clear and PET scan in February 2014 is clear. This has been a great treatment. Also, he got Neulasta every 2 weeks. Nothing short of a miracle. Good luck to your father. Kat228

On Mar 18, 2014 4:41 PM dhdebbie wrote:

Today we found out that he needs to have a sent put in his bile duct.  Last week's bloodwork indicated that his liver enzymes are higher than they were and they don't want to wait until he becomes jaundiced.  He is not happy about needing this because he has this done on Monday and his next chemo on Wednesday.  He did have a CT scan this past Friday, but we don't know the results of this new scan yet.  Hoping that things have not changed and the situation is not worse than it was initially.  We are both so nervous of having the type of cancer that is so aggressive that nothing helps.  As I said, we were told his cancer was operable; that the tumor was 1 cm on the head of his pancreas and his MRCP and biopsy did not indicate that it had spread anywhere else.  The doctors recommended two months of chemo before they attempted to do surgery.  His CA19-9 was 1092.  I understand that this number varies from person to person.  Can someone explain this to me?  Thanks.

Hi, The Ca 19-9 normal range is 0-37.  Your husband's cancer sounds like it can be cured with the Folfirinox. My husband had stage 4 pancreatic cancer one year ago today when he started chemo. He now has no signs of cancer on both the CT and PET scans. His Ca 19-9 originally was 5400 and now it is 29. Hang in there. Keep fighting. Be positive. Continue the chemo. It works. Best wishes for you and your husband.

On Feb 04, 2014 3:51 PM TOMA76 wrote:

Katt

        Thanks for the response. I hope he is still doing well.

Had 2 questions.  1 Is he still doing chemo??2 Where else did he have spots and are the still there??  Just asking cause I like to hear from anybody that is doing well with this terrible disease. Hoping everyone on here is getting better.

                              Tom

Tom, My husband received chemo last on Jan 29th. No other spots are identified on CT scan. We will find out Monday, Feb 10. the verdict. Kat228

On Feb 04, 2014 3:51 PM TOMA76 wrote:

Katt

        Thanks for the response. I hope he is still doing well.

Had 2 questions.  1 Is he still doing chemo??2 Where else did he have spots and are the still there??  Just asking cause I like to hear from anybody that is doing well with this terrible disease. Hoping everyone on here is getting better.

                              Tom

Mike had a Pet Scan today. Will let you know the results from Monday Feb 10. 2014. Hope all is well. Best regards, Kat228

Tom, My husband's Ca19-9 dropped steadily and the CT scan  showed no shrinkage in the first 3 months. His platelets dropped and sometimes could not get chemo. Also his white cells dropped and they gave him Neulasta, which helped alot. The Dr still did Fulfirinox at 75,000 platelets, which is the protocol. He is doing well now. Hang in there. Kat228

Hello, Sorry to hear about your dx. My husband has been on Fulfirinox for 9 months. It did get easier for him and now after the last CT scan, no tumor was defined in his panceas. He had stage 4 PC. Hang in there. You can do it. Don't give up. Best regards, Kat228

 I found through lots of research that eating kale helps increase your platelet count. My husband's platelets were on the borderline for chemo, so he tried eating kale in a smoothie or salad everyday and his platelets went up. Its worth a try!

Hi Maxx, So happy for you and your wife. Stability is great news. I appreciate all the information. What is her Ca 19-9 rising to? Best regards, you both are in my prayers always. Kat

Bryan, Stable is good news. The pet scan would be the best test to see if it is scar tissue. Keep up the fight and think positive. You are an inspiration to us all. Praying for the best results. Kat

God Bless You. Hang in there. My husband has been on Folfirinox for 13 treatments. His Ca 19 has gone from 5453 to 44. He now has no pain or nausea. He just finished his 13th this Wednesday and had the usual fatigue and diarrhea, but today is back to normal. Best regards. Kat228

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