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kpeasley's Recent CancerCompass Activity

  • kpeasley has replied to a post on the message board

    Thanks everyone for your replies. That was one of the things I wanted to ask about is the flying. Does the altitude pressure affect the GBM in any way? I have heard contradictory stories. I know my husband had a baseball size tumor with edema and sever swelling and we flew overseas and several additional flights, plus traveled to the highest point in Colorado 14,000 feet without even knowing he had it. Our Oncol...

    April 30, 2015 view post
    • kpeasley has created a new message board discussion

      Good morning to everyone, We continue our battle with my husbands GBM and I am trying to plan on our next stage. I found that we have the Dentric Cell Vaccine in Pamplona Spain and we can travel back and forth and do it with no problem. Also spoke with Duke and it is feasable to go there also. This of course all depending on how and when his new tumor comes up and if we will still qualify. Assuming we will, which pa...

      April 29, 2015 view discussion
      • kpeasley has replied to a post on the message board

        Hi! No he hasn't had it resected. He had so many complications after the initial surgery in October that I doubt that a resection is even on the drawing board right now. Do they often require a resection when they see the necrosis? Thanks for your input. Kelli

        March 25, 2015 view post
        • kpeasley has created a new message board discussion

          Good Morning everyone, A quick question. My husband had his first MRI after radiation (7 weeks later) and they told us that they cannot make out the scan completely because of possible "radiation necrosis". There is literally a vacant spot on his scan where they were doing the radiation. It is all confusing because this means they cannot see if the tumor has grown or not. Most likely they will do another s...

          March 25, 2015 view discussion
          • kpeasley has commented on a news story

            Does anyone know if this treatment will be available soon for more clinical trials? GBM patients are living on short time frames, so if something is coming up we need to act quickly to get these tumors under control and hopefully gone. My husband has GBM and we are ready to fight it but we need get answers asap. 

            March 21, 2015 view news story
            • kpeasley has commented on a news story

              Does anyone know if this treatment will be available soon for more clinical trials? GBM patients are living on short time frames, so if something is coming up we need to act quickly to get these tumors under control and hopefully gone. My husband has GBM and we are ready to fight it but need get answer asap. 

              March 21, 2015 view news story
              • kpeasley has created a new message board discussion

                My husband started this month the 5 day on massive amounts of temodar and 3 weeks off. Going in on Tuesday for the MRI result. My question is, if the tumor is growing back, is Avastin the next step? I question this for various reasons. I have read in several places saying that Avastin should be used as the last alternative, that it can excempt you from any furthur experimental testings etc. Then, I hear other people ...

                March 15, 2015 view discussion
                • kpeasley has replied to a post on the message board

                  Thanks for all this great info group. Especially found the information about the bactrim causing low blood platelet. My husband is on the 5 day course of Temerol in potent amounts and has been extremely tired and weak this last week but he has been off the Temerol for 2 weeks now. He is taking depakote and pantoprazole and also the bactrim also. I immediately called our Oncologist and left him a message about the pos...

                  March 08, 2015 view post
                  • kpeasley has changed their profile photo
                    January 21, 2015
                    • kpeasley has replied to a post on the message board

                      Thanks for your reply Melanie! I see too that your husband is young, like mine. Just turned 50 3 weeks prior to diagnose.  I didn't realize that the Beva doesnt come as a pill form like the temerol. I guess that will mean daily trips to the hospital. Is that what you had to do while he was on it? You mentioned in a prior post that your doctors don't recommend a second surgery. What about the gamma knife? Was t...

                      January 12, 2015 view post
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