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kristi669's Recent CancerCompass Activity

  • kristi669 has replied to a post on the message board

    Chris, how long was it after your first surgery that your tumor came back?

    June 09, 2016 view post
    • kristi669 has replied to a post on the message board

      Thank you so much for replying.  I hope all goes well tomorrow.  I will keep you posted

      June 08, 2016 view post
      • kristi669 has changed their profile photo
        June 04, 2016
        • kristi669 has replied to a post on the message board

          I was told the Temodar does not work as well anymore.  IDK.  I just got a call from johns Hopkins and I will be going for my 3rd opinion this Thursday

          June 03, 2016 view post
          • kristi669 has replied to a post on the message board

            I know this post is 3 years old, but hoping you are still on herfe.  Could you tell me how you were taking the PCV chemo>  They want me to start this and I am so scared of the side effects.  Thanks

            June 03, 2016 view post
            • kristi669 has replied to a post on the message board

              yes, I do have the codeletion also

              June 03, 2016 view post
              • kristi669 has created a new message board discussion

                I was diagnosed in December 2015 with an Oligodendroglioma Grade 2.  I had suregery March 16th and pathology came back non cancerous.  i have the IDH1 deletions.  I went to an oncilogist and he wants me to start (PCV) chemo and radiation.  I wanted a second opinion, in my mind if I did not have cancer why do the chemo and radiation, so i went to Johns Hopkins in Baltimore and they recommended the ...

                June 02, 2016 view discussion
                • kristi669 has replied to a post on the message board

                  I'm new to all of this and was just wondering what kind of chemo did your wife have?  It was just recommended to me that I have chemo (PCV) and radiation after I had an oligo grade 2 removed back in March.  My pathology came back non cancerous but theoncologist said that it was a slow growing cancer.  I also have the IDH1 mutations.  My post op MRi showed a possibility of some of the tumor remaini...

                  June 02, 2016 view post
                  • kristi669 has replied to a post on the message board

                    Thank you for answering though.  This is what has me really confused as to whether or not I should do the chemo and radiation.  My surgeon told me after my surgery to just do chemo and no radiation, said I was too young for radiation.  Then I went to John Hopkins for a second opinion and the swurgeon there told me that chemo and radiation are the standard treatment...ugh...so confusing.  I'm still...

                    June 02, 2016 view post
                    • kristi669 has replied to a post on the message board

                      Thank you for your response.  Do you know if it is true that ALL oligos are a form of cancer?  I was told this and not sure what to believe since my pathology came back as non-cancerous

                      June 01, 2016 view post
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                      About kristi669

                      Cancer Treatments, Chemotherapy

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