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lamac72's Message Board Messages

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On Apr 25, 2018 1:02 AM Renaelb wrote:

I am about a month out from having surgery. They were able to remove 90%. Because of the deletions I had assumed we would start pcv chemo, but my neuro wants to wait until we see growth on the mri. I have consults with the radiation oncologist and medical oncologists in the next week or two. Curious if anyone can offer their two cents of things to think about or questions to ask,etc? Thank you!

I had a grade 2 oligodendroglima with Co-deletions. My surgery said he took out 95-98% of tumor 14 hour surgery!

I had radition for 6 weeks after I healed from the surgery. That was 7 years ago.

I recently had a small growth come back this year and it was removed only 6 hour surgery. I am now on Temdor for 6-12 months. Isn't too bad only 5 days of pills per month and no hair loss!

Good luck and postitive thiniking goes a long ways in my opinion!!

Hello,

I was diagnosed in 2011 after going to the doctor to tell them something was wrong with me. My left foot and hand moved without me moving them, and I sneezed 50-100 times a day but wasn't sick. Long story short finally demanded to have MRI and was diagnosed with a golfball sized Oligodendroglima grade 2 in the right side of brain, having issues with my left size. I have surgery in December of 2011 and the doctor said he got 95-98% of it.. I later did 6 weeks of radiation and did really good expect the hair loss. I didn't feel sick or overly tired. I also have to 2 deletions. It has now been 7 years and have MRI's yearly. My MRI in January of this year showed a small growth. They went in and removed the whole growth in February of this year. I am now starting to go on Temdor it's a chemo pill you take 5 days a month to hopefully any remaining cells.  I am now seeing a Neruo Onocolgoist. He is very happy my tumor seems to grow very slowing. I will be also having some DNA testing done. Since he thinks there are other cancer drugs out there for other cancers that with my DNA could work too. I am also 46 years old which people keep telling me is We have age on our side! My only advice is to try and keep a positivie attitude it helps alot and have a great support system. Good luck to you. Laura

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