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lcerrone's Recent CancerCompass Activity

  • lcerrone has replied to a post on the message board

    i am making an appt for an US.  Also my tg is now at 20.6 and dr requested blood drawn from a different lab rather than labcorp.  If its still at 20 they want a Brian MRI

    Yesterday at 9:09 PM view post
    • lcerrone has replied to a post on the message board

      Just told my the nuclear medicine it will find and kill!

      Tuesday at 12:00 PM view post
      • lcerrone has replied to a post on the message board

        Yes I am having !131 at 4 mci Pappillary with follicular variant.  Don't know if it was solid or not.  My last endo kept talking about Lenvima at a 5 tg because he kept telling me it was near the aorta.  .  That is not evident on this PET.  The PET does show soft tissue in the right thyroid bed, no associated hypermetabolism with a SUV 0f 1.8.  Uptake not diagnostic of malignancy. ...

        April 15 at 2:18 PM view post
        • lcerrone has created a new message board discussion

          Had RAI in April of 2018 with uptake. Uptake showed uptake in the thyroid bed and left lower lung. In Aug my tg was still at 11.9.  Just had a PET which was clear, however my tg is now at 20!!  I am now on the LID diet and will have a RAI with 4 mcis..  I am at my wits end.  Been dealing with this for 6 1/2 yrs and have never had a 0 tg.  Any thoughts on this.  

          April 14 at 11:39 PM view discussion
          • lcerrone has replied to a post on the message board

            My endo is from Jersey Shore Medical in Neptune, NJ.  I wish that UPenn or Sloans would have something in NJ.  Sloan does but all the thyrod cancer specialist are in New York and its a little hard getting there.

            November 06 at 2:22 PM view post
            • lcerrone has replied to a post on the message board

              Yes I had it this past April.  I'm just wondering why in Aug it was at 11.9 and in Nov 2017 it was 11.8.  It didn't do anything!!! I guess I was hoping it would go down and I wouldn't be so stressed all the time.  And I am very upset with my endo..he has never called with my WBS results I got the results from my portal.  My husband called his office in July and the girl said well no news is good n...

              November 05 at 11:06 PM view post
              • lcerrone has replied to a post on the message board

                My endo is from Jersey Shore Medical in Neptune, NJ.  I wish that UPenn or Sloans would have something in NJ.  Sloan does but all the thyrod cancer specialist are in New York and its a little hard getting there.

                November 05 at 11:01 PM view post
                • lcerrone has replied to a post on the message board

                  I will try to explain my history without writing a book!! 1.   TT in Sept/Oct 2012..my tg was still in the 300/400s. 2.   RAI 107 in Jan 2013..levels were going down. 3.   Had CT of neck and chest found mass in      paratracheal..was referred to Sloan Kettering.  Consultation with Dr. Fish, had another CT which basically showed the same.  Also reviewed my Path...

                  November 05 at 2:53 PM view post
                  • lcerrone has created a new message board discussion

                    Hi I'm looking for an endo/thyroid cancer expert in Central Jersey or approximate vicinity Thank you

                    November 04 at 6:28 PM view discussion
                    • lcerrone has created a new message board discussion

                      I had RAI in April 2018.  In November 2017 my tg level was 11.8 however in July my level was 11.9. (stimulated tg before RAI was 25.7) Does this seem right that possibly my next labs will be going down??  

                      November 04 at 6:15 PM view discussion
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