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lcerrone's Recent CancerCompass Activity

  • lcerrone has replied to a post on the message board

    yes!! Ugh

    May 15 at 1:10 PM view post
    • lcerrone has replied to a post on the message board

      So I had my MRI amd whole body scan after 4 mci dose.  Both clear.  So all tests were clear with the exception of the US which a very small solid nodule.  So now we just wait and have another US and blood drawn in June

      May 14 at 9:44 PM view post
      • lcerrone has replied to a post on the message board

        I never heard of a PET with low iodine diet and thyrogen.  I am now on the low iodine diet and will be getting thyrogen on the 29th and 30th, then the 4 mci pill..for a diagnostic scan and the RAI  WBS on the 3rd.   Since she is my new endo I'm thinking that she is basically starting over with my case. What is your tg now and what treatments are you doing.  Are you on lenvima or watch and wai...

        April 20 at 6:36 PM view post
        • lcerrone has replied to a post on the message board

          Apparently she wants to cross all "t's" and dot all "i's".  She said the PETs only scan the jaw area of the head The labs came back about the same level so Im going for an MRI.  Her nurse naviagator said the dr thinks it is the neck (at least I think thats what she said)  I don't even know if a US will detect anything because of all the scar tissue from 3 surgeries and EBR!!  I have been dealing w...

          April 19 at 4:31 PM view post
          • lcerrone has replied to a post on the message board

            i am making an appt for an US.  Also my tg is now at 20.6 and dr requested blood drawn from a different lab rather than labcorp.  If its still at 20 they want a Brian MRI

            April 18 at 9:09 PM view post
            • lcerrone has replied to a post on the message board

              Just told my the nuclear medicine it will find and kill!

              April 16 at 12:00 PM view post
              • lcerrone has replied to a post on the message board

                Yes I am having !131 at 4 mci Pappillary with follicular variant.  Don't know if it was solid or not.  My last endo kept talking about Lenvima at a 5 tg because he kept telling me it was near the aorta.  .  That is not evident on this PET.  The PET does show soft tissue in the right thyroid bed, no associated hypermetabolism with a SUV 0f 1.8.  Uptake not diagnostic of malignancy. ...

                April 15 at 2:18 PM view post
                • lcerrone has created a new message board discussion

                  Had RAI in April of 2018 with uptake. Uptake showed uptake in the thyroid bed and left lower lung. In Aug my tg was still at 11.9.  Just had a PET which was clear, however my tg is now at 20!!  I am now on the LID diet and will have a RAI with 4 mcis..  I am at my wits end.  Been dealing with this for 6 1/2 yrs and have never had a 0 tg.  Any thoughts on this.  

                  April 14 at 11:39 PM view discussion
                  • lcerrone has replied to a post on the message board

                    My endo is from Jersey Shore Medical in Neptune, NJ.  I wish that UPenn or Sloans would have something in NJ.  Sloan does but all the thyrod cancer specialist are in New York and its a little hard getting there.

                    November 06 at 2:22 PM view post
                    • lcerrone has replied to a post on the message board

                      Yes I had it this past April.  I'm just wondering why in Aug it was at 11.9 and in Nov 2017 it was 11.8.  It didn't do anything!!! I guess I was hoping it would go down and I wouldn't be so stressed all the time.  And I am very upset with my endo..he has never called with my WBS results I got the results from my portal.  My husband called his office in July and the girl said well no news is good n...

                      November 05 at 11:06 PM view post
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