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livingthroughit's Recent CancerCompass Activity

  • livingthroughit has replied to a post on the message board

    Hi Mandyrose, I am a caregiver to my husband. We feel your frustration. We were told 'cancer free" only to get a nevrmind after 8 months. Then, a retreatment/maintenance/spreading! We are freay for my husband to start a clinical trial. I hope we get on the "kinder" treatment. Hang in tere! There is really no other choice. I'll pray for you. BTW- He went undiagnosed for 2 years as the clock ticked on!!

    November 14, 2015 view post
    • livingthroughit has replied to a post on the message board

      Yes. I have not been on for quite a while. After the initial treament I spoke of here, he was ok for about 8 months. The cancer came back and also appeared on the liver. He was retreated, then on maintenance for 7 1/2 more months. well, the manitenance drug stopped working. we are getting ready to go on a trial.

      November 14, 2015 view post
      • livingthroughit has replied to a post on the message board

        My husband had the 35 radiation treatments with 7 chemotherapys. He was treated for tonsil and tongue cancer. Sad to tell you, the treatment was brutal. You are at the point where the radiation is accumulating and he will feel pretty bad even afterwards. Hang in there!

        May 21, 2014 view post
        • livingthroughit has replied to a post on the message board

          Patty, Did your husband work with a speech therapist right after treatment ended? My husband goes weekly and she gave him a ton of exercises to reduce the scar tissue. Paula

          May 21, 2014 view post
          • livingthroughit has replied to a post on the message board

            I'm the caregiver to my husband who has stage 3 HPV tonsil, back of tongue and one lymph node affected cancer. He is being treated with cituximab and radiation for 6 weeks doubling-up with 2 radiation treatments on Fridays. We are halfway through it tomorrow! He tried not to take the meds much the first two weeks, started regularly mid-week 2 and week three he has no choice! It's true that the treatments are cummulat...

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            About livingthroughit

            Caregiver
            Head and Neck Cancer
            After Treatment, Cancer Nutrition, Diet, Recipes, Side Effects

            We're getting ready to go on a trial. First treatment failed, retreated then recurred 8 mos. later...round 3 of the battle.

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