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longliveliver's Recent CancerCompass Activity

  • longliveliver has replied to a post on the message board

    I had Whipple surgery in August of 2017.  I had a verticle incision from just below my sternum to just above my navel. After the incision healed, I seldom experienced much pain or tenderness, and I attribute a lot of that to the skill of my surgeon, but one thing I must absolutely avoid is becoming constipated.  The resulting abdominal pain can be hair-raising.  I never take conventional laxatives.&nb...

    June 20 at 9:13 PM view post
    • longliveliver has replied to a post on the message board

      I understand how grateful you must be that your mother did not have intense pain and died on her own terms.  The decision about whether or not to seek treatment is entirely up to the individual, of course, and both choices require courage.  I chose treatment—Whipple then chemo. That was almost three years ago and I have been very lucky.  I had a topflight surgeon and follow-up at a topflight ho...

      May 17 at 3:56 AM view post
      • longliveliver has replied to a post on the message board

        Hi, Lorraine, Although it must be hard and sometimes frustrating to know how to help your mother during this difficult transition, you are doing an admirable job of taking care of her. About itching, pain medications can cause itchiness, and there's no way around that.  I found that a product called Sarna helped, and you might try that.  On the other hand, moisturizers and lotions usually make my skin wor...

        May 09 at 6:13 PM view post
        • longliveliver has replied to a post on the message board

          Absolutely get a second opinion.  An unintentional loss of sixty pounds in two years is not a common result of menopause—in fact, I have never heard of such a thing.  If you need treatment you should get it asap.  See someone else, a doctor who is not in the same practice.

          February 07 at 6:26 PM view post
          • longliveliver has replied to a post on the message board

            I have not had any complications following Whipple surgery, but I think March is too long to wait to see your oncologist. I would advise you to get a second opinion about your treatment plan.  It is essential that you see a doctor who has done many Whipple surgeries and that you have any further treatment related to Whipple surgery done at a hospital where they have had a lot of experience caring for Whipple pat...

            February 07 at 6:20 PM view post
            • longliveliver has replied to a post on the message board

              I had a modified Whipple surgery (incision, not laparoscopy) 2 and a half years ago.  The tumor was on the head of my pancreas.  I did not have chemo prior to surgery and for only about 3 months following.  Changed oncologists and my current oncologist ran batteries of tests for everything he could think of and no remaining cancer was found anywhere in my body, so he stopped chemo.  I did not have...

              January 24 at 11:27 PM view post
              • longliveliver has replied to a post on the message board

                Before you have any further treatment it is vital to find out exactly how much cancer, if any, you have left in your body.  I was having communication problems with the oncologist I saw following a successful Whipple in August of 2016.  When I changed to a different oncologist, he said he didn't want to continue putting poison in my body if I didn't have cancer and stopped all chemo until completion of four...

                January 17 at 9:41 PM view post
                • longliveliver has replied to a post on the message board

                  I am two years, four months post Whipple, and two years post chemo.  My Whipple story is different from others I have read, and I have not experienced the dreadful ordeal many have described.  My surgery was not across my abdomen, but from just below my sterum down to just above my navel, a long vertical incision, and this may have helped my recovery.  My scar is a pale, thin line now, almost invisibl...

                  December 21 at 6:21 AM view post
                  • longliveliver has replied to a post on the message board

                    Perks cause constipation (you may already know that) and my go-to is stewed prunes.  (Don't laugh, they work much better than laxatives.)  I buy organic dried prunes, put about a dozen in a small pan and add water to 1/2 inch above prunes, bring to a simmer, cover and cook on low about 15 minutes (watch to be sure they don't scorch), let cool with the lid on, then transfer to a bowl and store in the refrige...

                    December 21 at 4:36 AM view post
                    • longliveliver has replied to a post on the message board

                      Have you had a PET scan? They are often done in coordination with CT scans. You are concerned that you may have pancreatic cancer, but the problem might be something else. Have you seen an internist for a complete work-up?  I am a pancreatic surviver (just knocked on wood—as I always do, even when I just think that), and I had none of the symptoms you describe.  My only symptom was was a change in bo...

                      December 21 at 4:17 AM view post
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                      About longliveliver

                      Patient
                      Pancreatic Cancer
                      Diet

                      I am a Whipple procedure surviver.

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