Loading...

mark5004's Recent CancerCompass Activity

  • mark5004 has replied to a post on the message board

    Kevin, We are very compassionate to real victims.  The remark about stopping smoking makes me suspect you are trolling us. In either case, Good luck

    November 29, 2018 view post
    • mark5004 has replied to a post on the message board

      I posted this four years ago. I am well and happy. Six years in remission from the primary cancer. Five years in remission from leukemia, my distant cancer. My optimism is off the charts. I wish and pray that this is what becomes of all of us. Mark

      view post
      • mark5004 has created a new message board discussion

        Thanks for putting up with all my belly aching and complaining. My heart goes out to those that now need to face disease under the Un-affordable Healthcare Act. Fight hard. Mark

        view discussion
        • mark5004 has replied to a post on the message board

          The folks at Inova Tomotherapy in Merrifield Virginia set up the the beams so that my hairline is symetric.  Where your hairline ends up has everything to do with the location of the neoplasms.  My neck never needs shaved.

          view post
          • mark5004 has replied to a post on the message board

            Blood transfusions are a wonderful relief to the ravages of chemo.

            view post
            • mark5004 has replied to a post on the message board

              Your doctor is a clown. Take deliberate action now for the removal and find a skilled surgeon who will deliver excellent margins. Make sure the tumor is screened for all versions of HPV. Mark

              view post
              • mark5004 has replied to a post on the message board

                Caroline, Good luck to you! I am still alive and happy with my new life. So much has changed in four and a half years. After the mucus stage, comes the challenges of the loss of function from the lower saliva glands. This is countered by twelve to fourteen bottles of water per day initially. At three years some function returned and it seems to get a little better each year. Mark

                view post
                • mark5004 has replied to a post on the message board

                  I hope you are well and the knot is just nothing. I am on 137 mg and your message makes me wonder if my thyroid produces hormone still. I had just assumed it would be non functional by now. It did take years to work up to 137mg. What is the traditional dose assuming no thyroid function? Mark

                  view post
                  • mark5004 has replied to a post on the message board

                    I suspect this is just healing activity from pollen irritation. I never identified "uptake values" on any of my PET exams. I usually see the words "minor uptake over background" or "insignificant uptake".  Frankly all of these words just strike fear in us, and more often than not, result in another round of tests, worrying and then nothing. Do not live in fear.  God bless you! Mark

                    view post
                    • mark5004 has replied to a post on the message board

                      Mary,   I use this and am now 4 and a half years out of treatment.  The product is good it is just that it takes a while for saliva production to get better.  My saliva production took about three years before I started to feel better about it.  Evoxac is good for 90 minutes to two hours. The best way that I get relief is to have a cold or alergy.  This spring I feel completely normal bec...

                      view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About mark5004

                      Patient
                      Head and Neck Cancer, Leukemia
                      Cancer Treatments, Clinical Trials and Research

                      I have survived Cancer for a while now. In 2008 I was diagnosed with Stage four SCC of the tonsil. It spread to my Lymph nodes. Post radiation and Chemo therapy I was diagnosed with Hairy Cell Leukemia in 2009. I believe I am in remission from both cancers. I have two beautiful children who have grown ages 13 and 16. Cancer changed my life. This experience is like no other and for all of its challenge, it develops stronger character and spiritual identity. We have precious new life, remarkable.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.