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mark56's Recent CancerCompass Activity

  • mark56 has created a new message board discussion

    Tonsil cancer neck disection 3 years ago During rads I got a sore on my tounge I suppose where the lazer was hitting it anyway That same sore is back and of coarse My head is blowing it way out of reality .I see my RO next week for my checkup Just wonder how long we cook for 

    May 11, 2018 view discussion
    • mark56 has created a new message board discussion

      Hi Im 3 years post rad for tonsil cancerNeck disection  While being radiated I got a sore on my tounge they gave me  the lozenges for yeast infection  and that seemed to help. 3 years later Same spot is giving me greif .So my ? is this after 3 years are we still cooking I see my RO next week for my checkup and will bring it to his attention but in the meantime Ive already in my head blown this sore way...

      May 11, 2018 view discussion
      • mark56 has created a new message board discussion

        I am 6 months out of radiation G-tube removed last week lost about 40 lbs still 216ish My mouth is giving me a hard time I got lymphedema of the tongue on the side that was radiated and it keeps me from wearing my bottom dentures as my swollen tongue rubs raw when I have them in Im doing ok getting some energy back SLOW LY  was on Steroids for 2 weeks .Boy I wish I could take them forever what a lift they gave m...

        August 14, 2016 view discussion
        • mark56 has created a new message board discussion

          Got a new present this morning .I woke up and underneath my tongue is swollen and sore  Im  4 months posr rads started my speech therepy yesterday so I diont know if these are related but Its something new .Anyone else have as much fun as I am . kust kidding .Im very happy with my progress Im just wondering who else is having this problem Thanks Mark

          June 25, 2016 view discussion
          • mark56 has replied to a post on the message board

            thanks Susan my next task is speach therepy but im thinking that gotta be easier than Radiation lol

            June 21, 2016 view post
            • mark56 has replied to a post on the message board

              thanks Bob  glad to hear your getting good news and I always stay out of the sun im allergic to the sun i break out in big welts so I wear UV clothes and hats hats hats lol

              June 21, 2016 view post
              • mark56 has created a new message board discussion

                Got my PET results back and my Dr said he is very very happy told me he did nt think I needed to be scaned again until next year even though most of the time he ask for another in 4-5 month .im 4 moth post rads still got that relentless sore throat but im eating anyway Meat is a major problem but before my transplant i was vegatarian so I can manage veggies pretty easy My lymphedema hurts like the dickens .thrush is...

                June 21, 2016 view discussion
                • mark56 has replied to a post on the message board

                  HI and im sorry your here , I had TORS last NOV. and it was really a breeze I was in the Hospital for 3 days actually I went home late on the 3rd day .I was eating soft food before I left the hospital they removed 1 tonsil TORS and I also had a mod.radical.neck disection .I was fully recovered by mid January But then I started radiation and thats a whole other story . BE well

                  May 19, 2016 view post
                  • mark56 has created a new message board discussion

                    After surgery and rads I have developed an awesome turkey neck .It drives me crazy and Im still waitinf for my beard to come back to hide this thing  lol .anyone else got this .It prolly not as bad as I think it is but Im wondering if this is what we all get after.All and all I can not complain to much Im just 3 months out and Im starting to feel like my old self again .Still got my tube only because everything ...

                    May 19, 2016 view discussion
                    • mark56 has created a new message board discussion

                      During Rad's I begain to lose my hearing and unfortunatly now my hearing is after testing almost 50 % lose to the right side .Has anyone experiancied anything like this ?

                      April 22, 2016 view discussion
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                      About mark56

                      Patient
                      Head and Neck Cancer

                      just got my Diagnosis SCC possible tonsils 60 yrs old recent T/P liver

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