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markvmueller's Recent CancerCompass Activity

  • MarkVMueller has replied to a post on the message board

    Hi Mos1502 How are you doing? May I ask if the new regimen has been positive? Mark

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    • MarkVMueller has replied to a post on the message board

      Hi ksnow Sorry to hear about your progosis - don't give up. Going back in this thread you should find a wealth of information, I for instance did just write some days ago about my chemo treatment these last 6 month. The thing is that there a probably very few doctors worldwide which can actually claim to have any know-how about urachal cancer (maybe apart from Dr. Dr. Seifert Radke at MD Anderson). In the end you ...

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      • MarkVMueller has replied to a post on the message board

        Hi Vivian Every patient is of course different and with this rare cancer there is just no way without extensive clinical trials etc. that a "standard" cure/treatment as such can be found (this in essence is also what Dr. Seifert-Radkte closes her new report with. It is my understanding from my oncologists, that me having now undergone a chemo regimen it would depend on the timespan for metas to grow again as to...

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        • MarkVMueller has replied to a post on the message board

          Hi Tiggi Sorry to hear about your father. Do not despair, nothing is not curable at the same time it is better to be realistic about possible options. I have been fighting this cancer since 4 years now, it has also metastased into my spine and lungs, not kidney but pancreas. (Just read my past messages and you will get a good overview of my story and treatments). Radiation on the spine is generally possible, bu...

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          • MarkVMueller has replied to a post on the message board

            Hello Fellows After 6 cycles of chemo it was finally the showdown last week with a contrast CT and evaluation with my oncologist. No new metas and all other previous metas are getting smaller!  Great news, I know that I have not yet won the war but certainly winning mayor battles. I am stopping the chemo and will now continue with a maintenance theraphy consisting of avastin and xgeva, both of which I shou...

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            • MarkVMueller has replied to a post on the message board

              Hello Fellow Travellers & Hi BetsyM Promised you an update, and here it is, fortunately not bad news and if I go with my optimism, actually good news. Had a "normal contrast" CT done of my upper and lower torso, and because of some breathing issues after physical strain and a suspected possible lung-embolism (geeeez!) I had another CT optimized for great lung detail done today just on the lung. I am happ...

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              • MarkVMueller has replied to a post on the message board

                I am currently in the 3rd cycle of the following regimen: taxol/paraplatin and bevacizumab (avastin)     No control CT yet (will have one in one week) but some metas on my skin (head) and on top of collar bone and in upper arm muscle seem to be smaller...so hopefully this regimen works. Very lttle side effects my general state despite many metas (lung, liver, pancreas, muscles, spine etc.) is very go...

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                • MarkVMueller has replied to a post on the message board

                  Hi Vivian If you go back in this thread you will come to more posts of mine and more detailed infos. I also started a thread with some more infos here: http://www.cancercompass.com/message-board/message/all,53264,0.htm You can of course also mail me and I'll be happy to provide you with any info I can. Take care, Mark

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                  • MarkVMueller has replied to a post on the message board

                    Hello Fellows Been quiet for a while. Lots has happened since, I will have a CT mid month to clarify my state by which time I will inform in more details about how I have been and what next. I am on the third cycle of taxol/paraplatin and bevacizumab (avastin) with fairly low side effects the first few days after getting the regimen. I otherwise feel real good, despite metas I had appearing these past months in spi...

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                    • MarkVMueller has replied to a post on the message board

                      All the best with your operation mos, thinking of you!

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                      About markvmueller

                      Patient
                      Other Cancer, Bladder Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Radiation, Surgery

                      47 year old male from Switzerland. Urachal Adenocarcinoma, diagnosed 2008.

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