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marymc's Recent CancerCompass Activity

  • marymc has created a new message board discussion

    I posted a few months back that after my husband felt a small lump in his neck, his ENT ordered a contrast MRI that was deemed "clean". However, at the next follow-up he said, "The MRI was clean, but if you really want to be 'sure' I can do a needle biopsy right now."  My husband agreed. For many reasons he immediately regretted this, but what do you say to your doctor after being a...

    October 12, 2015 view discussion
    • marymc has created a new message board discussion

      Hello Everyone - here I am again with questions.  To summarize, my husband is 3.5 years out of treatment (35 rounds daily radiation/3 rounds cisplatin) and is feeling worse every month.  He wakes up looking and feeling "bad".  He describes this as his head, neck, and ears are full of fluid.  He is often warm to the touch in the morning and throughout the day until he/...

      October 12, 2015 view discussion
      • marymc has replied to a post on the message board

        If my husband started this journey over again, he would have gone to a cancer center so that he could have a "team" of doctors.  While we LOVE his radiation and medical ongologists, we've "struck out" with ENTs - he's on his 3rd.  There have been many times that we're not sure if results/reports have been shared, etc. My husband did not have a PEG and did fine with calories, nutrition, but we did have a ho...

        August 21, 2015 view post
        • marymc has replied to a post on the message board

          My husband (stage IV tonsil, lymph) had a simple philosophy when going through treatment . . . he put ALL of his efforts and energy into recovery.  He had a positive mindset that actually rubbed off on others receiving chemo . . . "cancer, meet your match!"  He now reflects - it's amazing what one can do when focused on only one thing.  Be selfish, Mike, focus on your treatment and...

          August 21, 2015 view post
          • marymc has replied to a post on the message board

            I double what Kelly wrote.  All of our lives stink at one time or another, and I don't think that you brought this on yourself.  I hope that you talk everything out with family, friends, colleagues, and here. Your lifeisworth the fight!  Mary

            August 18, 2015 view post
            • marymc has replied to a post on the message board

              Thank you, Bugsy and Atoms, for the information that you shared. My husband is scoped at every visit (whether ENT or oncologist) and given the physical-finger exam of his throat, so we're on the same page there.  We hadn't heard about Cisplatin causing hearing issues, and my husband has experienced hearing loss. At his next appointment we'll find out why contrast MRIs are ordered rather than ...

              August 16, 2015 view post
              • marymc has created a new message board discussion

                After reading replies/opinions to my last post (asking for opinions), I have a new question. During treatment my husband saw: - medical oncologist for chemo (3 Cisplatin sessions) - radiation oncologist for daily radiology (35 sessions) - ENT for check-up and possible surgery Because of the size of the affected lymph nodes (very large), my husband did not have surgery.  It was going to be used as a "la...

                August 16, 2015 view discussion
                • marymc has replied to a post on the message board

                  I thank you very much for sharing your opinions.  Unfortunately, I don't think that I effectively described my concern.  My husband takes turns seeing his radiation oncologist and ENT every 3 months, sometimes more often.  His last PET was 10/2013.  We have 100% faith in my husband's radiation oncologist.  He likes the detail shown in soft tissue with the contrast MRI.&n...

                  August 16, 2015 view post
                  • marymc has created a new message board discussion

                    My husband is 3.5 years NED (stage IV throat/lymph nodes). He often feels lumps and bumps in his throat/neck, but finds out at the ENT appointments (physical exam and scope) that they are by-products of the radiation (35 sessions) to the area. In June he felt something "different". His ENT ordered a contrast MRI.  The results showed "nothing remarkable" and the MRI was deemed clean....

                    August 15, 2015 view discussion
                    • marymc has created a new message board discussion

                      To anyone beginning treatment, I read and always agree with/remember all of the symptoms/emotions that go along with beginning/ending treatment.  I'd like to add one more piece of advice that literally saved my husband.  He didn't have a PEG - refused.  Towards the end of treatment it became difficult for him to keep hydrated.  Our medical oncologist wrote a script for Home Health Care to del...

                      July 09, 2015 view discussion
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                      About marymc

                      Caregiver
                      Head and Neck Cancer, Throat Cancer
                      Support

                      My husband was diagnosed with stage IV, T2N2, non-hpv head and neck cancer in January, 2012. He had concurrent radiation (35 treatments) and chemotherapy (Cisplatin) through March. His first post-treatment PET in May was clean. It is now July, 2015, and he continues to show no evidence of disease; however, he just doesn't feel well - produces little saliva and his throat continues to burn. He often feels as though his head is full of fluid.

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