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masoni's Recent CancerCompass Activity

  • MasonI has changed their profile photo
    • MasonI has replied to a post on the message board

      Never said there were wrong religions. I said that each of us follow the religion we belive in our hearts to be true. It doesnt make any other religion to be less true. And yes, We are all in a serch for god or peace. Our own search. We may choose to be guided, or to find our own path. About the rabbi. Our opinions on him are of what he has said and done. Each has the choice to follow him, to follow another proph...

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      • MasonI has replied to a post on the message board

        We are all born into this world with free will and choice. There are many religions that have been bestowed upon us. It is our choice to follow which religion we belive to be true. We should also not force religion on others (since that went so well in the middle ages and currently.) Our lives are gifts from god, however, when that gift includes the torment of severe pain, Choosing to die when you want should be up t...

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        • MasonI has replied to a post on the message board

          Personally, I agree with euthanasia. As long as the person getting euthanised has had a long time to think about it. I have Discussed this with my mom, and I told her. If, I am unable to experience joy, kill me.

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          • MasonI has replied to a post on the message board

            I agree with vwxyz. I was diagnosed with grade 3 glioma in june 2012(I was 22). It came back as a grade 4 relatively quickly. The best support I have recieved is from family and friends. Do be informed of the bad stuff, but Keep your mind focused on the good. I learned to live every day with hope, love and adventure. I dropped out of highschool, and now I have found a reason to study again, to get into the trades,...

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            • MasonI has replied to a post on the message board

              For me, the maintenance doses of temodal decreased my appetite. I was on it for the full year. Unfortunatly though, I did not have withdrawal from the decadron. When I was taking it for 2 weeks before my first surgery, I did have massive heartburn. Then once I was out of hospital, I stopped decadron completely. I was on 4mg 4 times a day doses.

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              • MasonI has replied to a post on the message board

                You're welcome. I'm always happy to help.

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                • MasonI has replied to a post on the message board

                  Hello! When I went through radiation and temodal, I was sleeping at least 12 hours and I barely ate. When I was on the maintenance doses, I did sleep foor while as well. I only have one lasting side effect from the radiation, and that is that my head isn't healing as quick or as well comparing my first surgey before radiation in 2012, to my second on March 4th 2014. I have no other lasting side effects from the temod...

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                  • MasonI has replied to a post on the message board

                    I found a list of anti-convulsants. Take a look through it and have him ask his doctor about them https://www.seizuretracker.com/STH/Seizure-Medications.php

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                    • MasonI has replied to a post on the message board

                      I have GBM in my right temporal lobe as well, but not to the extent of your boyfriend. Im on Keppra co-Levetiractem 1500mg twice/day. I did have to up the dose twice since January because of growth. Have him talk to his doctor about possibly increasing the dose. I wiegh 370 lbs, and I'm pretty sure that makes the anticonvulsants weaker.

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                      About masoni

                      Patient
                      Brain Cancer
                      Cancer Nutrition, Chemotherapy, Diagnostic Imaging, Surgery

                      I was diagnosed when I was 22. I had a Grand Mal seizure on June 9, 2012. Underwent surgery, then Temodal + radiation. And Temodal for a year. At the end of the temodal, the tumor started growing, and was put on CCNU. 3 months later, that didn't work, so I was put on Etoposide and scheduled for surgery on March 4th 2014. After the surgery, I found out that the tumor grew even more, and faster. My oncologist put me on Tamoxifen as well. Waiting on the next MRI in June. My journey with cancer, has taught me to live life, not just be alive. To share my life with family and friends.

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