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merel's Recent CancerCompass Activity

  • Merel has replied to a post on the message board

    Hi! I know this was posted so many years ago, but I couldn’t really find out how jane is doing now and what experimental drug she was on at the time? Does anyone have any information about dr. petrylak? Or the drug jane was on seceral years ago? It sounds very promising and I would be really greatful for any information anyone might have! Positivity for everyone here, Merel

    June 25, 2018 view post
    • Merel has replied to a post on the message board

      Thank you for your help!! I be sure to make sure I gettested before embarking any treatment with immunotherapy! Ill have a appointment with one of the immunotherapy doctors at my hospital in the next few weeks to discuss my options. Ill let you all know what we decide to do. All the best for all of you, keep faith xx Merel

      April 06, 2018 view post
      • Merel has replied to a post on the message board

        Hi all, Some of you might know me from a few years ago, my names Merel, I’m from Holland, I got diagnosed with urachal cancer back in 2015 when I was 24. I was treated with radiotherapy and surgery. They removed the dome of my bladder along with part of my intestines and lots of lymph nodes. This was successful at the time and I’ve been clean until august 2017. In my routine ct scan they found new growths on my per...

        March 28, 2018 view post
        • Merel has replied to a post on the message board

          Gosh I am so sorry to hear this. I know I have been absent for quite a while now on here, and I will try to read up on all of you! For now I just wanted to say I have been thinking of all of you and ofcourse your husband. Reading this news makes me so sad and I can imagine how terrible you must be feeling. Hang in there ,keep your head up and stay strong. Will try and read all the previous pages asap! I'm doing...

          September 21, 2015 view post
          • Merel has replied to a post on the message board

            Hi there, yes, i'm now also very curious to know to why they choosing to radiate, when I asked they said it's to kill the cancer cells to make sure they are dead when there is spill during the removal of the tumor. They said they are still not sure if they will radiate, it all depends on what type of cells they find from the tissue they took from my bladder. Problem with radiation they see is that I still rea...

            April 02, 2015 view post
            • julesgreenb

              julesgreenb How are you doing Merel?
              Julia

              July 14, 2015
          • Merel has replied to a post on the message board

            Wow, I don't know anything about this show, but I find it very disturbing to hear you say out of 22 UA stage 4 , 22 die. Even though it such a horrible disease we all are still here and for all it matters I want to stay positive and have faith and hope. Anyway, aside from that, Vivian, thank you for your reply. I'm now back home again after the laparascopy surgery. Thank god, they could not see any seeding in my...

            April 01, 2015 view post
            • Merel has replied to a post on the message board

              Hi Phil and julia, Thank you for another doctor!! Ill deffinetely look in to it! I think you guys misunderstood, they are not doing the actual surgery monday, so there not removing the tumor or the that part of my bladder.. This is what they call a laprascopie? Not sure what the english word for it would be. It means they will make 2 holes in my stomach and go in there with a camera, they do this so they c...

              March 28, 2015 view post
              • Merel has replied to a post on the message board

                Hi all, Thank you so much for finding out some other doctors! I'm going to try and contact them some how. Or ask my doctor to do so. Luckily for me they scheduled the first operation where rhey look in my stomach upcoming monday already. Vivian, thank you so much for sharing, you're story about your husband was pretty much the only thing that gave me that little spark of hope again. They really made it s...

                March 28, 2015 view post
                • Merel has replied to a post on the message board

                  Hi phil and julia, Thank you for your quick reply. Ill send you a private message julia, maybe you can tell me some more about the radiation therapy.. This hospital is quick ' famous' or known here in holland and some european countries. It is a specialized cancer hospital and my urologist/oncologist said that they see about 2 patients with this type of cancer a year or so. So not entirely sure how famalia...

                  March 25, 2015 view post
                  • Merel has replied to a post on the message board

                    Hi all, Sorry I havent posted anything on here anymore but i have been reading along constantly but most of the time i just don't know what to say.. All these treatments and doctors in he states are all so unknown for me, but i do want you all to know that your in my thoughts ans prayers. If it is ok I would like to post e quick update and have some questions.. Maybe someone can tell me more.. I had more t...

                    March 25, 2015 view post
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