mike1220's Recent CancerCompass Activity

  • mike1220 has replied to a post on the message board

    I waited 8 months beore I had mine flushed, and it worked well. I haven't had treatment in over a year, but I still have cancer, so the port stays. I have renal cell carcinoma metastisized to my lungs. I was being treated with Opdivo infusions. The cancer is still there, although no longer growing. It may or may not grow again, but the port needs to stay just in case. The port doesn't bother me, so I don't mind it be...

    May 09 at 4:25 PM view post
    • mike1220 has replied to a post on the message board

      Unless you are 100% positive that the port won't be used again, leave it in and have it flushed about every two months. If your doctor says it's ok to remove it, it's a minor procedure you should have performed by the same doctor that installed it, if possible.

      May 09 at 3:28 PM view post
      • mike1220 has replied to a post on the message board

        I passed out at home due to a shortage of blood. After arriving at the emergency room, multiple tests were done to find the cause of the leak. One of these tests was a CT scan which showed nodules in both lungs. One of the nodules was biopsied and turns out I had metastatic kidney cancer. This was October 2014. I had a cancerous kidney removed in August, 2007, which was found during an angiogram to find out why I was...

        May 09 at 3:24 PM view post
        • mike1220 has replied to a post on the message board

          Hi Dan? These messages can be confusing. I lost my kidney in 2007 due to RCC. I was diagnosed in Oct 2014 with mets to lungs. I am doing very well still. My CT scans show a stability in the mets and I am now on CT scans every 6 months and bloodwork every 3 months where it was every 3 months for CT scan and every week for bloodwork. Don't get discouraged by anything! Keep a positive attitude and good things will happ...

          January 27 at 3:37 AM view post
          • mike1220 has replied to a post on the message board

            I had my right kidney removed in August, 2007. It was done laparoscopically and the surgery took 50 minutes. I was in the hospital 5 days, then rested for 2 weeks and I was back to normal. Make sure you get CAT SCANS as part of your folow-up treatment. I got chest x-rays and it didn't find the metastesis(7 years later) to my lungs until it was too late to operate. It was found accidently while I was in the hospital ...

            June 15, 2017 view post
            • mike1220 has replied to a post on the message board

              Thanks, I'll try it.

              October 15, 2015 view post
              • mike1220 has changed their profile photo
                October 14, 2015
                • mike1220 has commented on a news story

                  I am currently battling Renal Cell Carcinoma, Metastatic. I also live alone, which has an effect on your eating habits. The immunotherapy drug I am on, "Sutent", as all drugs, has it's side effects. One of those side effects, as I'm sure with most chemotherapy drugs, is loss of apetite. You get to the point where you just don't feel like eating most of the time. It's very difficult to continuously force yourself to e...

                  October 14, 2015 view news story
                  • mike1220 has created a new message board discussion

                    Has anybody found a good lotion to deal with Hand and Foot Syndrome?

                    September 29, 2015 view discussion
                    • mike1220 has replied to a post on the message board

                      Sue, If your husband is disabled, he should be able to get medicaid, and they will pay for it. That is the route I am on, and they have paid 100%. You are correct about being eligible for medicare 24 months after being declared disabled. Mike

                      August 26, 2015 view post
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                      About mike1220

                      Patient, Survivor
                      Kidney Cancer
                      Alternative Treatments, Cancer Treatments, Clinical Trials and Research, Insurance, Side Effects

                      I am 65 yr old male. I was diagnosed with Renal Cell Carcinoma in October, 2014. I had a nephrectomy in August, 2007 and it has metastasized to my lungs. I am taking Sutent..Update 10/11/17...I am now closing in on my 64th birthday (Dec 20th) and am feeling great. and doing very well in my battle against cancer. I switched to Opdivo 6 months ago and the results have been fantastic with virtually no side effects. My left lung is now clear and my right lung has a few much smaller nodules.
                      Update 1/26/2019. I am doing very well. I have not had any treatment in 9 months and my doctor has now got me on CT scans every 6 months. Life is good, don't get discouraged. You can beat cancer.

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