Loading...

miraclegirl69's Message Board Messages

Loading...
Showing 1 - 10 of 10

Page 1 of 1

I am two years out from pelvic radiation and have peripheral neuropathy in my feet, sometimes legs and fingers.  The numb sensation in my feet is the most annoying because I have it all the time -- it feels like the bottom of my feet have an inch of fur on them and if I sit too long, my feet will feel as if they're freezing cold, even though they feel normal to the touch.  I take Gabapentin every night because that does help with the little electrical-feeling and tiny but hurtful stabbing pains I get in my forearms, hands, feet, toes and shins if I don't. 

RE: No feedback

by miraclegirl69 - April 04 at 4:22 PM

On Mar 14, 2019 3:55 PM Cervivor wrote:

I joined to connect with other people who have similar experiences with cervical cancer treatment and life afterwards. Nobody has replied to my request to add a friend or share their stories so I guess I will look elsewhere and discontinue this app.t

Cervivor... I actually did reply to you, but never heard anything back from you... I hope you're well...

Hi Cervivor, my name is Peggy, I live just outside Gainesville, FL and have been NED since 2/28/17.  My cervical adenocarcinoma was diagnosed and staged 2b2 in October of 2016 and radiation (external and internal brachytherpy) and adjuvant chemo (cisplatin) treatment began 1-5-17. I am assuming from the way your message is worded that you are experiencing post-treatment issues, as am I.  I am a member of a wonderful online support group and I find that most of us have issues ranging from annoying to debilitating.  I will be glad to share any information you would like.

I agree with everything PunkyD said... Especially about Hospice.  They are Earth's angels and allow the person to pass on with painless dignity. Highly recommend she, her doctor, family or HCS contact them immediately...  Love to you all.

PeggyS

Hi lkemper,

All I can say is congratulations!  Your dysplasia was caught so early and you are only CIN1.  Please remember that dysplasia CAN -- NOT DOES -- progress to cancer.  Go for your 6 month check-up and, in the meantime, enjoy every moment with your baby girl.  Do not spend another minute worrying about something that may not even happen. Life is far too precious... I send you positive thoughts and a big hug...

Hi wantiheal65... We've been talking for a while now and I was sad to see this post.  We all have to remember that tomorrow isn't promised to any of us, regardless of whethr or not we have or have had cancer.  I believe we have to live life and love the people we love like there is no tomorrow... Please read Meghan Trainor's lyrics and take them to heart.  Rather than wrapping yourself in your fear and running away, you need to embrace every moment of like you have and every moment of love you have with your new man.  I've been thinking about you.. <3

Meghan Trainor Lyrics

"Like I'm Gonna Lose You"

[Meghan Trainor:]
I found myself dreaming
In silver and gold
Like a scene from a movie
That every broken heart knows
We were walking on moonlight
And you pulled me close
Split second and you disappeared
And then I was all alone

I woke up in tears
With you by my side
A breath of relief
And I realized
No, we're not promised tomorrow

So I'm gonna love you
Like I'm gonna lose you
I'm gonna hold you
Like I'm saying goodbye
Wherever we're standing
I won't take you for granted
'cause we'll never know when
When we'll run out of time
So I'm gonna love you
Like I'm gonna lose you
I'm gonna love you
Like I'm gonna lose you

[John Legend:]
In the blink of an eye
Just a whisper of smoke
You could lose everything
The truth is you never know

So I'll kiss you longer, baby
Any chance that I get
I'll make the most of the minutes
And love with no regrets

Let's take our time
To say what we want
Use what we got
Before it's all gone
'Cause no, we're not promised tomorrow

[Both:]
So I'm gonna love you
Like I'm gonna lose you
I'm gonna hold you
Like I'm saying goodbye
Wherever we're standing
I won't take you for granted
'Cause we'll never know when
When we'll run out of time
So I'm gonna love you
Like I'm gonna lose you
I'm gonna love you
Like I'm gonna lose you

Hey
Whoa

I'm gonna love you
Like I'm gonna lose you
I'm gonna hold you
Like I'm saying goodbye
Wherever we're standing
I won't take you for granted
'Cause we'll never know when
When we'll run out of time
So I'm gonna love you
Like I'm gonna lose you
I'm gonna love you
Like I'm gonna lose you

RE: Adenomyosis & CIN 3

by miraclegirl69 - October 26, 2017

Since you don't have cancer, it's best to ask your doctor or someone familiar with Adenomysis and CIN.  The treatment your doctor suggested is standard for that and anything else is just a personal choice about whether you want to have a hysterectomy... 

RE: I'm a nervous wreck

by miraclegirl69 - September 28, 2017

I was diagnosed with 2b2 cervical adenocarcinoma last November, had radiation, chemo and brachytherapy in January and February, was told I was in remission in June and still in remission in September.  Just keep a good sense of humor, stay really positive, keep your faith, reach out to friends and family, and take all the help that's offered, because you will need it.  Fatigue is the worst, nausea/diarrhea a few days a week is tough.  Eat everything you want and can eat, and be very selective when you can't.  Be sure to reach out to family and friends though and understand that your diagnosis will be hard even for them...   Best of luck to you!!!

Pink, I had abnormal pap smears back in the early 80's, had cone surgery and seemed to be fine... Nothing ever showed up again in the paps until last November when I showed positive for HPV 18.  AND for the last  24 years I have been celibate!  So the HPV lay dormant all that time and November is when I was diagnosed with Stage IIb2 adenocarcinoma of the cervix with spread to the uterus and parametrium.  Only indication something was wrong was bleeding similar to a period for about 1 minute!  Since I was 69, I hadn't had a pap for 4 1/2 years, at which time the pap was indetermine and HPV was negative.  I believe HPV is similar to Herpes (whether chicken pox, shingles or HPV, that it's never "cured," it simply goes dormant and as long as it's dormant, it doesn't show up on paps.

Hi wanttiheal65!  I know it's been 4.5 years since you posted this, but I too have Stage IIB2 adenocarcinoma of the cervix which was inoperable.  I was also treated with 7 weeks of external radiation with adjuvant chemotherapy and 4 weeks of brachytherapy.  How are you doing now???  My last brachy was 7 weeks ago and both the radiation oncologist (from MRI) and the gynocological oncologist (from physical exam) feel they can no longer see any cancer or tumor.  I was curious how you're doing and what, if any, side effects you have experienced over the last 5 years.  I got through treatment amazingly well, physically, mentally, and physically, but now I feel as if my body was hit by a truck!   I have my PET scan on May 30 and follow up with oncologists the following week and I am staying convinced that I received a miracle and am totally cured...  I hope you are well...

Showing 1 - 10 of 10

Page 1 of 1

Loading...

About miraclegirl69

miraclegirl69 has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

We care about your feedback. Let us know how we can improve your CancerCompass experience.