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mizjay's Recent CancerCompass Activity

  • MizJay has replied to a post on the message board

    Maybe you should ask a social worker at the hospital where you were diagnosed and treated to help you with an appeal. It looks like glioblastoma is on the list of SS's "compassionate allowance" conditions, meaning you should be fast tracked for disability. Or maybe contact the Patient Advocate Foundation for help.  Good luck. https://secure.ssa.gov/apps10/poms.nsf/lnx/0423022185

    November 15, 2018 view post
    • MizJay has replied to a post on the message board

      Citation please? 

      November 19, 2015 view post
      • MizJay has replied to a post on the message board

        Of course most places will check your health insurance, but CTCA only takes you if you have very good private insurance; they reject Medicare patients. 

        July 25, 2015 view post
        • MizJay has replied to a post on the message board

          Oops, I meant round the clock PAIN relief, not treatment relief. D'oh. 

          March 05, 2015 view post
          • MizJay has replied to a post on the message board

            My husband had the same thing two years ago: Stage IV oropharyngeal. He was in a fair amount of pain, but he started using a Fentanyl patch that really helped make it more tolerable. He was on the feeding tube from about the midpoint of the radiation until about 6 weeks after it was over. The radiation side effects continue for quite a while after radiation ends... at least a month, maybe two or three. That's because...

            March 05, 2015 view post
            • MizJay has replied to a post on the message board

              The Gleason score is a measurement of tumor grade, which is an indication of how likely a tumor is to grow and spread rapidly. High grade tumors tend to spread more aggressively. I wouldn't postpone treatment if I had a high-grade tumor. That's how you end up with metastatic disease. Stage IV prostate cancer is not curable. Don't dither. You don't have time to waste. 

              March 05, 2015 view post
              • MizJay has replied to a post on the message board

                "When you see people flaunting alternatives that are off the wall it hurts those alternatives that do have some benefit!" Great point!

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                • MizJay has replied to a post on the message board

                  Differentiation refers to the tumor grade; moderate differentiation is pretty much medium grade or grade 2, meaning the cancer is neither very slow or very fast growing. More information on tumor grade is available here: http://www.cancer.gov/cancertopics/factsheet/detection/tumor-grade.   A CT scan would certainly be helpful in assessing the stage of a head and neck cancer. My husband had a type of throat...

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                  • MizJay has replied to a post on the message board

                    I agree completely, Diana! My husband had Stage IVa oropharyngeal cancer, and if not for cisplatin, he would not be here today. But complementary and alternative medicine certainly has its place, as well. I read a study that showed acupuncture showed some promise in relieving mouth dryness in head and neck cancer patients, so my husband "took a stab at it" not long after he finished radiation. Despite his initial sce...

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                    • MizJay has replied to a post on the message board

                      And let us not forget, Suzanne Sommers had a lumpectomy and radiation, she just decided against additional treatment. She wasn't cured by wheatgrass juice and vitamins. She was cured by surgery and radiation. Please, people, trust in science when your life is at stake. 

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