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mjl304's Recent CancerCompass Activity

  • mjl304 has replied to a post on the message board

    This is a very tough question. The statistics are daunting and doctors feel they have to be honest about the chances. But once we go beyond statistics to individuals, there is always the chance that your mom will be one of the ones who survives for longer. It does happen, lots, but you need to know and accept the odds. And then hope that she will be with you for much longer. My wife still marvels at what has happened...

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    • mjl304 has replied to a post on the message board

      Hi Rick, Sorry to hear about your mom, but hopefully the Whippple will work. I have the same kind of pc, adenocarcinoma, but mine was stage 4. It had spread to my liver, so surgery was not possible. I have survived since with treatment by chemotherapy only, first with GTX for 4 years and now with something called FOLFOX and a trial drug called ABT 888. It sounds like your mom caught the pc just in time. Good luc...

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      • mjl304 has replied to a post on the message board

        On Oct 28, 2012 6:47 PMTransitionwrote: Hi - came across your post and wondered how your Dad was doing and I truly hope this finds him well.  If you could offer me any advice, I would appreciate it.  I was dx 2010 with a tumor on my pancreas - had whipple - did well followed by 6 months of GTX.  Almost two years later, I now have mets in lungs and need to go back on chemo (more than likely GTX or ...

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        • mjl304 has commented on a news story

          I also agree strongly with this article. I was diagnosed with stage 4 pancreatic cancer nearly 5 years ago. When I did not die as expected, I wrote about the experience with my oncologist. The importance of the doctor in understanding what is going on and trying to ensure that your quality of life at the end is as good as possible is the most important gift that the doctor, the family, the caretakers, and your f...

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          • mjl304 has replied to a post on the message board

            I think the honest answer to this question is no, for most of us. That said, survival for a period of years is possible. I was diagnosed in December 2007 with stage 4 pc. It had already spread to my liver. Having surgery was not possible, and in any event the Whipple is not a panacea, by any means, and is a brutal operation. I was and am at Johns Hopkins. I was put on GTX and it is worked pretty well. I have recently...

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            • mjl304 has commented on a news story

              This is well-meaning advice, but, with respect, it does not work in all situations. I write from the perspective of one who has stage 4 pancreatic cancer, and as the co-author of "Pancreatic Cancer: A Patient and His Doctor Balance Hope and Truth". I am one of the very few and very fortunate patients, who has survived this diseases for more than 3 years now. When I was first diagnosed, I had lost 10 pounds and contin...

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              About mjl304

              Patient
              Pancreatic Cancer
              Clinical Trials and Research

              I was diagnosed with stage 4 pancreatic cancer metastasized to the liver in December 2007. I was 64 years old at the time. I started on GTX, and this proved very effective for over 4 years, including 2 longish breaks, about 7 months each time, one in 2009, and one in 2010. In 2011 it seemed that the cancer had spread to my lungs and we added Tarceva to the cocktail mix. This proved effective, but earlier this year, the cancer began to once again grow in the pancreas. I then entered a trial study at nearby Georgetown, involving Folfox and a PARP inhibitor, ABT-888. This seems to be working, although it has proved difficult to maintain the required schedule because my platelets have been very low.

              The picture is of my grandaughter, born 2 years after my diagnosis.

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