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mjmelo's Recent CancerCompass Activity

  • MjMelo has replied to a post on the message board

    I also have mets to lungs. I've tried Gemzar and xeloda but did not get any results and was taken off after 1st scans. I'm in a immunotherapy trial right now and hoping to stay in it but my white blood and platlets are not cooperating! Hoping they come up, I've missed two treatments. Need them to come up so I don't get dropped from the trial. Wishing you thie best. Marjorie

    October 27, 2015 view post
    • MjMelo has replied to a post on the message board

      Hi Julia, Sorry I haven't been posting, I've been trying different chemos but nothing has help. My dr told me I'm chemo resistant since I've tried 4 different treatments and I keep progressing.I decided to take a break and travel this last month and enjoy myself! Dr Siefker got me a appointment with trial 1 Dr's this past Tuesday and I got into a immunotherapy trial and start next week! It all happened in one appoi...

      July 31, 2015 view post
      • MjMelo has replied to a post on the message board

        I just started Gemzar and xeloda 2 weeks on 1 week off. Starting 2nd cycle Monday, not sure how it's going but will get scans after this cycle and I will let you know. We have talked before I also have mets to lungs and now local lymph node involvement i believe the medistanal also. My tumors double every 3 months without treatment so I'm hoping this treatment helps. Wishing you all the best , Marjorie

        April 19, 2015 view post
        • julesgreenb

          julesgreenb Marjorie, how are you doing? Big hugs to you!

          July 28, 2015
      • MjMelo has replied to a post on the message board

        Vivian, We're in Dallas are you from? We just moved from Frisco to the woodlands in Houston. If you have some down time tonight give me a call. I sent my # in a private message Marjorie

        March 23, 2015 view post
        • MjMelo has replied to a post on the message board

          I have 11:15 blood work and 1:00 Dr's appt. how long is the infusion? Maybe we can get together. Is your appt in Mays Clinic building? Marjorie

          March 22, 2015 view post
          • MjMelo has replied to a post on the message board

            Vivian, I will definitely ask about ablation, I go to Mda Monday for my 1st round of new chemo. I'll let you know what Dr Arlene R.S. Says about it. My children are 20, 17 and 15 thankful there not too young but not grown either. Marjorie

            March 22, 2015 view post
            • MjMelo has replied to a post on the message board

              Thanks Steve, I will definitely pray for you and all of us fighting this Cancer. I finished 5 cycles of 5 fu and have neuropathy in my feet, not a fun side effect and it's permanent. That why this time I'm doing Gemzar and xelona there is no neuropathy side effects. What type of surgery are you doing? Surgery isn't a option for me too many tumors. Good Luck, Marjorie

              March 21, 2015 view post
              • MjMelo has replied to a post on the message board

                Hi Vivian I had my 1st chemo treatment at Mda from Dr Arlene S.R which was 5-fu treatment. Did chemo for 6 months had response and tumors shrunk, but only took 9months for tumors to come back to same size. Then Dr Cowey got me into Mek162 trial because I did have right mutation that got me another 10 months, it was the melanoma drug. Once I started trial I found out that it usually only works for about 5 months on ...

                March 20, 2015 view post
                • MjMelo has replied to a post on the message board

                  Hi Vivian I had my 1st chemo treatment at Mda from Dr Arlene S.R which was 5-fu treatment. Did chemo for 6 months had response and tumors shrunk, but only took 9months for tumors to come back to same size. Then Dr Cowey got me into Mek162 trial because I did have right mutation that got me another 10 months, it was the melanoma drug. Once I started trial I found out that it usually only works for about 5 months on ...

                  March 20, 2015 view post
                  • MjMelo has replied to a post on the message board

                    When I found out about my cancer it was already in the lungs, my tumor was t3a muscle invasive before they discovered that it had metastasized to the lungs now it's stage 4. The lung nodule was so small at the time it was not noted till it grew and then had two more develop. It can spread anywhere it wants to once its gets into blood, Doesn't need lymph nodes to travel. Cancer is so unpredictable! Marjorie

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                    About mjmelo

                    Patient
                    Bladder Cancer
                    Cancer Diagnosis, Cancer Nutrition, Conventional Treatments, Diet, Emotional Support

                    I am a 41 year old female, just had a urachal mass and top of bladder removed and 2 lymph nodes out and waiting on results. Dr said margins were clear and seemed contained. There not telling me much keep saying wait for results. Would love to hear from anyone with any experience with this.

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