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mlruoro's Recent CancerCompass Activity

  • mlruoro has created a new message board discussion

    My wonderful Christian mother is now in Heaven.  I want to celebrate her life on Earth and be joyous in knowing that she is with Jesus.  I don't want anything depressing or sad.  Does anyone have any ideas? 

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    • mlruoro has created a new message board discussion

      Hello friends.  My mom was peacefully and comfortably surrounded by my brother and me as she took her last breath here on earth.  She is now in the best place there is.  She is with her Heavenly and Earthly Father, her brothers, aunts, uncles, grand-parents and friends.  I miss her but, I feel very peaceful right now knowing where she is. She was such an inspiration... never complained, fought ha...

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      • mlruoro has created a new message board discussion

        Hello friends,  I have some questions about GBM in the last stages.  My mom was quite alert up until the last few days.  I checked on BrainHospice.com which speaks of using Decadron to bring down swelling and that it helps "buy time".  Has anyone used it in this capacity -- the obvious end-stages and been successful?  Your honest feedback would be appreciated.  Thank You!...

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        • mlruoro has created a new message board discussion

          I feel like I was so naive in believing that my mom would be healed that I missed out on spending time with her while she was still able to get out and have fun.  She still wants to do things but is now bound to a wheel chair so it makes things so difficult.  I love being next to her, watching tv, holding her hands and helping her with her cares.  It is such an honor to care for her.  She is beaut...

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          • mlruoro has created a new message board discussion

            My mom is more confused today -- yesterday too.  She also had a little twitch in her cheek and chin.  It was only for about 20 seconds or so and was pretty mild.  She was able to continue speaking while it happened and then said she was really cold.  I don't think she was truly cold--I think she just thought she was due to the tremor/shiver-like episode.  Today she was pretty tired and more c...

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            • mlruoro has created a new message board discussion

              Now that mom isn't on Temodar and Avastin, she is more alert than she has been in the last 7 months.  That stuff knocked her down and out.  She isn't as strong physically (can't walk much) but her mind is alert and she is awake most of the day and sleeps normal hours.  But, she does have confusion and short term memory problems.  Surprisingly though, she is better now than she has been since last ...

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              • mlruoro has created a new message board discussion

                I am feeling that I would like my mom to live with us.  She is no longer on Temodar or Avastin because they stopped working.  She still has her apartment and has been paying the rent since her dx in January of last year (2010) but has not lived there.  Right now she is in a nursing home, which was suppose to be for 1-2 weeks.  Since she has had pneumonia three times this year (2011), she has been ...

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                • mlruoro has created a new message board discussion

                  Hi all.  I was just thinking of something that would be totally awesome.  Maybe my mom is confused right now because of the infection.  One thing I noticed during the last 4 months is that every time she gets an infection (bronchitis, sinusitis, pneumonia, UTI, C. Diff) she gets confused.  Although there was "an enhancement" on her most recent MRI, does that necessarily mean that the tumor is goin...

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                  • mlruoro has created a new message board discussion

                    Hi all,  Just wanted to updated you on my mom.  It was one year ago this past January 29th that she had the surgery.  Things had gone quite well for a few months.  Then...one thing after the other -- PE's, CHF, Tumor recurrence, etc.  But, when she started the daily Temodar and bi-weekly Avastin, everything improved.  Her tumor shrunk!!!  Sadly, the most recent news is that my beaut...

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                    About mlruoro

                    Caregiver
                    Brain Cancer
                    Emotional Support, Spiritual Support

                    I am seeking friends who have gone through what I have. Here is my story...My mom was dx with a GBM in her right temporal lobe on January 28, 2010. She had the resection on the 29th followed by 7 weeks of radiation along with 5/28 Temodar. After a regrowth, she had steriotactic radiosurgery and eventually went to daily Temodar. That worked for a couple months. She had a strange area on the MRI but they said it was "radiation necrosis". Eventually, she was receiving Avastin therapy every two weeks. That went on for six months and it kept the tumor away. She even had some shrinkage. During this time, she developed CHF, PE's and had a sub arachnoid hematoma due to a fall. Through it all, she never complained. She kept fighting...but it was for us, not herself. From day 1, she said she isn't afraid to die and will win either way. Either she is healed and can live here with us or Jesus will take her home. This year (2011) in January, she developed bronchitis and sinusitus after a bad cold. It progressed to pneumonia three times but she fought hard and beat it. She eventually developed C Diff and battled with it about 5 times. In March 2011, the MRI indicated swelling and regrowth so we decided to stop all treatment. She did much better for a while which gave us quality time together. In May, she started getting very sleepy so they put her back on Dexamthasone. I believe that bought us some extra quality time with her. July 2 she started getting weaker and sleepier but she still had a good appetite and loved to drink liquids. Her voice was weak so she was only able to whisper. On July 7th, she was able to eat a little and drink a lot but by the next day she was unable to each--only drink. On the 9th she did not eat or drink or wake up. The proceeding days she was still answering questions but by the 10th she wasn't able to anymore. I stayed with her from 3:30 on the 9th, in her bed, holding her hand, talking to her. I was with my mom every day from January 11th until she went home to be with Jesus at 1:05 am July 11, 2011. My brother and I were in her bed holding her hands, rubbing her back. I told her to go to Jesus and that we will be ok. It was a very peaceful moment. I want to tell each of you what I learned... that there is only one God and we are not He! Our days are numbered and we can go at any time. Savor each moment with those you love. Learn to love others. Praise God in all things. I miss my mom but, I am at peace knowing that we spent every day together for six months and that we were able to talk about things we might now have spoken about if she was well. Peace to you all! Maria

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