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modesta's Message Board Messages

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yes! getting off the steroids will help - but depending on where the tumor was/is has alot to do with the personality change.  I tried to remember and always reminded my children that the change is NOT the real person he used to be.  Hope that makes sense - alot of patience is needed.

So sorry!!!

yes! it is very normal - think until she is done with radation/chemo

Prayers for you and your family - lost my husband in 2011 after a 31 month battle to gliobastoma.  Praying for a cure as well.

RE: What type of Brain Cancer?

by modesta - February 26, 2018

wow - that is tough - first of all I think he NEEDS to be at a good cancer hospital, maybe MD Anderson - they will surely be able to answer that question correctly.

Prayers

Modesta

RE: Temodar

by modesta - February 20, 2018

tell her to stop the sugar - if nothing else

Katie, I get it - i am sooooo sorry - I wish I know what to say - prayer for you and yours

when we filed for my husband, I was shocked at how easy it was.  I was told that GBM's almost always qualifiy.  Go for it!!

there are no words!   So sorry

Wifeofmichael, it's funny you talk about westerns - that was one of the things that did keep my husband calm.  Even when he got to the point of not opening his eyes much, we didn't always know if he was awake until we tried to turn the channel and we would point at the TV (meaning "put it back") without even opening his eyes.  I think you have some good ideas, I did the same thing, as far as distracting him from what was upsetting him.  Best of Luck/lots of prayers for all!

Modesta

Karen, I am sorry to hear about you husband. I know first hand aboutthe personality change.  I have no advice, we went thru it for 31 months and there wasn't anything that helped.  I usually has to do with where the tumor is - again I am sorry.

Modesta

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About modesta

Caregiver
Brain Cancer
Cancer Treatments, Chemotherapy, Insurance

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