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momlooking4cure's Recent CancerCompass Activity

  • momlooking4cure has replied to a post on the message board

    My 22 year old daughter was diagnosed 9/18/2015 with GBM.   She just had her second surgery 12/18/2016 for a reoccurrence.  Both times we have traveled to Duke for a second opinion at the Tisch Center.  The care there has been excellent and fortunately has agreed with the plan of care at our main facility in anothe state.  Dr. Katherine Peters has been great to see at ...

    December 31, 2016 view post
    • momlooking4cure has replied to a post on the message board

      Thank you for your words of encouragement.  We must keep fighting the fight.

      September 01, 2016 view post
      • momlooking4cure has replied to a post on the message board

        My 21 yr old daughter was diagnosed 10 months ago with GBM, had resection left temporal lobe, radiation, and Temodar, and then 6 cycles more Temodar cycles.  We have been having MRIs every 8 weeks.  We had another today which was the same as the last 2 with no new growth so we are celebrating each week and month.  She is strong and positive and is heading back to hopefully resume her senior y...

        August 02, 2016 view post
        • momlooking4cure has created a new message board discussion

          I am a parent of a 21 yr old diag Sept. 2015 with GBM mutiforme stage 4, had surgery, radiation, and is now on Temodar monthly.  We have MRIs every 8 weeks.  She has no cognitive or physical effects yet.  It seems every time we have a scan, one previous suspicious area is no longer visable only to have another new small suspicious area visible.  The doctors cannot confirm it is or is not a new tum...

          March 18, 2016 view discussion
          • momlooking4cure has replied to a post on the message board

            The peppermint oils/drops are something I want to get for her.  She is using 2 anti-nausea meds 30 minutes apart right now.  Thank you for the tips!

            January 28, 2016 view post
            • momlooking4cure has replied to a post on the message board

              It is good to know the counts usually go back up.  Thank you!

              January 28, 2016 view post
              • momlooking4cure has replied to a post on the message board

                Thank you for the tips.  We may need to try switching from night to morning like your husband did.

                January 28, 2016 view post
                • momlooking4cure has created a new message board discussion

                  My daughter, who is 21, finished her first maintenance dose of Temodar of the 5 days on and 23 days off after initial chemo and radiation.  Her white blood cell count went down during it.  Her doctor wants to adjust the next dose of Temodar before proceeding.  Has this happened to others and if so, how did you proceed? The higher dose of Temodar was tough on her, resulting in several days of nausea and...

                  January 26, 2016 view discussion
                  • momlooking4cure has replied to a post on the message board

                    Laurie, I also have a daughter who was diagnosed with GBM 1 month after her 21st birthday this past September.  She has finished the initial radiation and chemo and is beginning to start the maintenance chemo regimen.  She will be going back to college in a couple weeks.  Are there any supplements or other things your daughter has done during her 3 1/2 years that you would suggest?  My daughter k...

                    December 31, 2015 view post
                    • momlooking4cure has replied to a post on the message board

                      Thank you for your uplifting and hopeful message!  We are just staring this journey with my 21 year old daughter.  Today she has her last radiation treatment.  She has tolerated Temodar and radiation well so far. 

                      December 04, 2015 view post
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                      About momlooking4cure

                      Caregiver
                      Brain Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Alternative Treatments

                      My 21 year old daughter was diagnosed with grade IV GBM multiforme 9/16/15 and had a resection 9/18/15.She finished 6 weeks of radiation and Temodar. Her post treatment scan looked stable so both teams of doctors said as we went for a second opinion. Doctors have okayed her to go back to college part-time this semester. She is excited to get back to some "normal" and I will worry about her. She will be on the maintenance Temodar for 6-12 months - that is the plan right now unless the every 8 week scans show new growth.

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