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morningstar24's Recent CancerCompass Activity

  • morningstar24 has replied to a post on the message board

    Hello there, I was diagnosed with PV one year ago.  I am also JAK2 positive.  My platelets hover around one million, my white cell count is raised slightly and my red count continues to constantly climb after all of my phlebotomies.  I had several blood tests, an ultrasound and x-ray plus bone marrow biopsy and aspiration to help with the diagnosis.  I was also told I have Essential thrombocytosi...

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    • morningstar24 has replied to a post on the message board

      Hi mushysway, Sorry to hear you are having a rough time.  I belong to a couple of Polycythemia support groups on Facebook.  You should go on there because there are a lot of people who share their experiences and they have a lot of great info and links that you can go to.   Not to mention they are a really nice group as well.  I know there is one girl named Anne who is from the Philippines. She i...

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      • morningstar24 has replied to a post on the message board

        Hi meabouthis, Thanks for sharing your experience.  I have been doing ok this last little while.  I go on April 12 for my regular checkup.  Hoping that my numbers are all where they should be.  I wish you all the best in your journey with this crazy disorder.  Keep a smile upon your face and enjoy every day as best you can.  Take care!

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        • morningstar24 has replied to a post on the message board

          Just wondering if anybody can share any info about the side effects they had from Hydroxyurea, other than the tingling.  Hair loss? Nausea? I am a 45 year old woman recently diagnosed with Polycythemia vera.  I have had a lot of phlebotomies but my Dr. wants me to start this med now. Any help or info would be greatly appreciated. Best of luck to everyone.

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          • morningstar24 has replied to a post on the message board

            I am supposed to start on Hydroxyurea and I noticed one of the side effects is hair loss.  Has anyone on this drug lost their hair when they took it?

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            • morningstar24 has replied to a post on the message board

              Hello there, I was wondering if you can share your experiences of being on hydroxyurea with me.  I go back to my Dr. on September 13 and depending on my levels he may want to put me on this med.  I have read some stuff online which I do not like.  I realize everyone is different so I may or may not be affected the same way with side effects.  I am a 45 year old woman recently diagnosed with polyc...

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              • morningstar24 has created a new message board discussion

                I am a 45 year old woman in Canada who has been recently diagnosed with polycythemia vera.  I have a high hemaglobin and platelet count.  I have had 6 phlebotomies and my doctor is considering putting me on hydroxyurea.  Can anybody give me any information about their experience on this med and I would also love to meet others who are unfortunately dealing with the same problem as myself.&nbs...

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                • morningstar24 has replied to a post on the message board

                  Hi there, I am a 45 year old female who was recently diagnosed with Pollycythemia vera.  I have almost all of the systems related to the disorder.  I figure I have had it for about 5 years.  I was going in for surgery on my hand and when they did the routine bloodwork they found that my blood count was extremely high.  I was sent for more blood work, x-rays, an ultrasound and a bone marrow aspirat...

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