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nanamcallister's Message Board Messages

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HI, I AM TURNING 43 IN A FEW DAYS BUT KEEP WONDERING HOW MANY MORE BIRTHDAYS I WILL END UP HAVING!? JULY 2018 I FINALLY FOUND OUT WHAT A LOT OF MY STOMACH PROBLEMS WERE BEING CAUSED BY "NEUROENDOCRINE TUMORS IN MY SMALL INTESTINE" SEVERAL WEEKS AFTER SURGERY I FINALLY HEAR I HAVE STAGE 3 CARCINOID CANCER BECAUSE IT HAD SPREAD INTO MY LYMPH NODES! HERE IT IS MARCH 2019 AND I STILL HAVE ONLY HAD THE SURGERY AS TREATMENT EVEN THOUGH I'VE BEEN BATTLING CARCINOID SYNDROME FOR MONTHS!  I MET WITH MY ONCOLOGIST FOR THE 2ND TIME YESTERDAY AND YES I DID SAY 2ND TIME AND HE DID FINALLY OFFER ME SOME INJECTIONS TO POSSIBLY EASE SOME OF THE SYMPTOMS!!!  NO MATTER HOW MUCH PAIN AND DISCOMFORT I HAVE BEEN EXPERIENCING NO ONE SEEMS TOO CONCERNED WITH FINDING ANY ANSWERS! I LIVE IN OKLAHOMA AND AS OF YET I HAVE NOT FOUND AN ONCOLOGIST THAT SPECIALIZES IN CARCINOID CANCER.  I CANNOT GET ANY REAL ANSWERS TO ANY OF MY QUESTIONS AND I'M LOSING HOPE THAT I WILL FIND ANYONE THAT CARES ENOUGH TO HELP ME FIND ANSWERS!

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