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ottoh's Recent CancerCompass Activity

  • ottoh has replied to a post on the message board

    Hi Jaygirl, we use THC and CBD's . Do a little reading and see what you come up with. It seems to be working for us. Good luck and God bless

    October 07 at 6:51 AM view post
    • ottoh has replied to a post on the message board

      Hi Chloe, my wife had stage 4 glioblastoma and surgery in 2015. It came back and 6 months later had it resected. Spent about a year in Houston at MD Anderson in a clinical trial where they geniticlly modified her T-cells to fight the cancer. We had her on CBD's and THC through the trial and have kept using them ever since. She has had clean MRI's every 3 months ever since. She is doing great but has memory loss and s...

      September 02 at 6:50 PM view post
      • ottoh has replied to a post on the message board

        Hi Andrea, Yes, there can be some personnality changes. First off, while removing the tumor, they had to take some of the brain matter with it. That can change the way a person thinks. Is he still on Dex or some other steroid for swelling? The radiation can also have that effect as it clouds the brain and you can't think as clear as before and that can be very frustrating. My wife has had two surgeries in the right f...

        June 27 at 3:50 PM view post
        • ottoh has replied to a post on the message board

          Dear KB, long story short, my wife had 2 surgeries for GBM and the last one was at MD anderson. We gave her THC and CBD oil and took her off Dex, and other durgs that the THC and CBD oils replaced. That was in 2016. She just had her lastest MRI and is still clear. The THC will help your husband with nausea, sleep, appitite, and when combined WITH CDB oil, can help with GBM. I'm convienced it is one of the main reason...

          June 07 at 3:00 PM view post
          • ottoh has replied to a post on the message board

            Hi Huxley. My wife was in the CMV clinical trial at M D Anderson a few years ago and has had clear MRI's since. You should check that one out. Good luck on you journey! 

            May 16 at 3:51 PM view post
            • ottoh has replied to a post on the message board

              Hi Fighter, the wife had glioblastoma and was on Keppra and Dex. We weened her of both while she was going through her clinical trial with CBD and THC oils. They helped with convulstions, nausea, sleeping and appitite. I also believe they help retard the growth of cancer. She just had another MRI and she is clean once again now for the last three years. Do some reading about the oils and make your own mind up, but I'...

              March 07 at 4:52 PM view post
              • ottoh has replied to a post on the message board

                Hi Buster, My wife had a glio tumor and has been clean for the last three years. I believe that a big part of the reason is we keep her on CBD and tHC oils. GW pharacuticals has a couple of clinical trials going on right now and they are showing much promise. Do a little research on the oils and google GW pharacuticals and read up on their trials. There are many clinical trials going on and they have better drugs an...

                March 07 at 4:36 PM view post
                • ottoh has replied to a post on the message board

                  Hi Palmerclan, Spinalgliowife has it pretty much covered, but I would add talking to someone at MD Anderson and UCSF brain center as well. I'm a big believer in the THC and CBD oils. My wife had Glioblastoma in the front right lobe and the oils helped her with nausea, appitite, sleeping seizures and other things besides helping with the glio. Look at GW Pharmacuticals clinical trials with the CBD and THC with Temador...

                  January 03 at 10:23 PM view post
                  • ottoh has replied to a post on the message board

                    Hi KiHaBu, sorry to hear about your sister. My wife had the stage 4 glioblastoma 3 years agao. There are many people who live longer than the 14-15 months. We have been to Duke U brain center, MD Anderson and UCSF brain center and have seen many long term survivours. There are many clinical trials to enroll in. My wife was in the CVS clinical trial at MD Anderson and has been having clears MRI's since. The only medic...

                    December 25 at 8:23 PM view post
                    • ottoh has replied to a post on the message board

                      I want to say it was 5cm but am not sure anymore. It was the size of a small orange in her front right temporal lobe. We enrolled her in the ALA-5 clnical trial @ UCSF and Dr. Berger was the surgeon. Google the ALA-5 trials. They inject you with a chemical that when they get all that they can see of the tumor, they turn out the lights and turn on a black light that lights up the remaining pieces of the tumor to a flo...

                      December 07, 2018 view post
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